The Colon Club

I am writing this siting in the infusion chair. I am struggling to organize my thoughts as my fingers keep slipping off the keys as I am pumped full of some new and some old drugs.
It had been almost 3 years since diagnosis. I had gone from scans every three months to scans every 6 months. Then the second 6 month scan found the tumor on my kidney. My oncologist, perhaps, looked more stunned than I did. The onc referred me to a urologist.
Somehow, I did not think that was a sufficient response to my worst nightmare coming to life. So after two visits to MSKCC and multiple visits to Dana Faber, i/we were almost convinced that we could shrink the tumor with chemo and have a simple surgery to remove the left over tumor on the kidney. Then I had a PET Scan and my world came undone all over again. Multiple areas scattered over my retroperitoneum/bowel/pelvis lit up.
The plan is to take it a day at a time. Everytool is being kept in the bucket including HIPEC. But will start with chemo and see what happens.
Wish me luck everyone.

Hi ,

Hope your infusion is going as smoothly as possible . I am sad for you but also know just how powerful chemo can be so hope it has started already dealing with the spread .
Wishing you every success with your treatment .
Take care ,
Stu

So sorry you are dealing with this again. Stay strong. Best of luck to you.

Thanks everyone. That’s the plan, stay strong and live life, and discontinue the Ativan- it almost knocked me out.

So sorry to hear about the recurrence, Fumaros. Since the new tumors were not visible on the scan (except for the one in the kidney) it seems that they're likely quite small, so hopefully chemo can wipe them out! Good thing you had that PET scan before they grew larger. I wish cost for PET scans would go down so it became a standard checkup method; there's nothing like them to catch early tumors.
Good luck XXX
Claudine

Hi Fumaros,

Read your post today so sorry to read what you are going through.

I may have something similar as I went for my biopsy today and tech took tissue. He called the tumor a pelvic mass. He said it is by the sciatica nerve and asked about leg pain.
He said been doing biopsies for years and. 90 percent it is cancer.

Do you know how they treat the pelvic area. I should gave results by Wednesday or next Friday

Prayers and hugs.

I'm sorry you're dealing with a recurrence!*hugs*

I am sorry to read of your recurrence. Going to Dan Farber and MSK in NYC are great opportunities for progress back to NED. I noticed that your footer does not reflect taking Oxyplatin, Avasitin or other drugs commonly mentioned on this blog. It would appear that you have many more options, depending on the tumor profile. Get the new plan, follow the new plan and continue the fight with vigor. You are young and can handle whatever they prescribe. My wish is to read of your NED sooner than most... Good luck and my thoughts and prayers are with you:)
WS

I'm so sorry to hear this news, I keep you in my prayers. Stay strong!

So sorry to hear this news. It must be very challenging to deal with.

Warrior Spouse, FOLFOX, which the OP has had, includes Oxaliplatin. But yes, hopefully there are other alternatives.

OP, do you know your tumor genetics?

fumaros wrote:Then I had a PET Scan and my world came undone all over again. Multiple areas scattered over my retroperitoneum/bowel/pelvis lit up.
The plan is to take it a day at a time. Every tool is being kept in the bucket including HIPEC. But will start with chemo and see what happens.
Wish me luck everyone.

Oh my gosh, I am so sorry to hear what you're going through. The first thing I remembered when I saw your post was your response last year when I posted about Annie (aka Beansmama). I hate to hear that you have to go through this kind of recurrence. Darn stupid cancer!

I see you're from the Syracuse area. I am too. I'm going to PM you. Just remember, they threw everything including the kitchen sink at Annie and while things seemed really hopeless and desperate for a while, in the end her treatment DID work. Her cancer was gone, and the tumor when they removed it was completely dead. So there is always, ALWAYS hope.

Hugs from me to you.

Tracy (aka WriterGirl)