Neuropathy improvement: individual experience

Please feel free to read, share your thoughts, your stories and connect with others!
Posts: 2478
Joined: Fri Jul 21, 2017 3:43 am

Re: Neuropathy improvement: individual experience

Postby NHMike » Wed Jan 08, 2020 10:26 am

jts wrote:I have a question for FOLFOX veterans. I will start on FOLFOX soon. An oncologist at the hospital (not my local oncologist) suggested that I wear tight chilled gloves and socks during infusions. I guess to cut down circulation to those areas while the poison is strongest. Did anyone try that? Given the cold sensitivity people get, is it going to be possible?

Thanks for any advice.

It's in your bloodstream so I would think that it would circulate. I guess that his hypothesis is that it some gets deposited in areas. I think that I'd ask him for research on this. Just remember that cancer cells can go through the bloodstream too.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Posts: 171
Joined: Thu Aug 01, 2019 10:58 am

Re: Neuropathy improvement: individual experience

Postby Siti » Wed Jan 08, 2020 11:05 am

Sounds logical cause the half life of oxaliplatin is pretty short and this would reduce the reach to hands and feet. I read somewhere in the forum that sucking on ice chips helps too.

My husband gets his infusion through the arm and almost immediately has sensitivity to the cold. So I’m not sure if chilled gloves and socks are feasible — my husband puts on a heat pack on the arm to reduce the pain.

Anyway, I think no harm trying, tell us how it goes :)
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.

Posts: 102
Joined: Thu Feb 15, 2018 9:47 am
Location: Richmond, VA

Re: Neuropathy improvement: individual experience

Postby crikklekay » Tue Jan 21, 2020 4:36 pm

4us4 wrote:
crikklekay wrote:My husband's last treatment was August last year, and our doctor recommended adding B Complex to his daily meds regimen at home to help with the neuropathy. She warned us that it could take years to see improvement but not to lose hope. I know it seems trivial, but recently his feet have become ticklish again! Before he couldn't really feel much sensation except for the electric jolt or tingling so I feel like it's an improvement.

Just wondering if you had an update about how you think the B Complex affected the neuropathy? :D

Sorry! I didn't get the notification for some reason and as checking the board can make me a little anxious I don't log on very often. Actually he's doing better! He says there is still a vague tingly feeling in his feet and the tips of his fingers but he does have feeling. It's just a constant background sensation that he has gotten used to. He still takes the B Complex, it can't hurt and hopefully it will continue to help.
Caring for DH John
Colon Cancer, Sigmoid colon
G2, Moderately differentiated w/invasion of visceral peritoneum
Stage IIIC
Positive lymph nodes: 6/22
Chemotherapy: FOLFOX (6)
12/17 ER and emergency surgery
02/18 Hospital w/ MSSA infected port, PICC line inserted, chest CT scan showed septic emboli & blood clots
03/18 Hospital w/ CDIFF
04/18 Chest CT scan clear
06/18 Colonoscopy Clear
08/18 CT Scan Clear, NEMD
06/19 Colonoscopy Clear
08/19 CT Scan Clear
08/20 CT Scan Clear

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”

Who is online

Users browsing this forum: No registered users and 5 guests