Postby rp1954 » Sun Apr 28, 2019 10:25 pm
P70's suggestion sounds reasonable, focused on financial wherewithal, if they haven't already been down those paths, perhaps many times.
I'll answer toward wherewithal of knowledge based resources, Plan B.
Mbpser's query sounds possibly similar to what drives the CAM/naturopathic industry, patients stuck in miserable - bouncing from MD to MD. They never get better or are unable to get a definitive diagnosis with a real resolution of symptoms. In many situations, algorithmic medicine seems to have broadly lost the ability to fix these patients' lives or to even correctly recognize some underlying biological problems, beyond in arrears.
These people often suffer for years, decades, or to the end of their days (or money) with little or no support from their families, drs, and insurers; much less for biological alternatives to the AMA-ADA-ASCO etc way. They are often treated as loafers, whiners, crazy or a combination thereof. They may be unsympathetic patients, irritable and long sick. The longer they are sick, the longer it may take to fix them, or in many situations, just a good biological (chemical) answer applied really thoroughly.
What to do? If they have the money and patience, someone should shop for 2-3-4 medical providers, typically ND or MD, with some kind of track record or reputation for similar tough cases with less conventional biological answers. Least total expense would be with as much at home (self ??) administered treatment, as possible, after the early, heavy lift parts are done. Then I'd arrange for their thorough work up and ask for a detailed analysis and written treatment plan, with common or possible variances, and expectations. Figure $500 - $2500 per dr's assessment for the consult(s) and labs, with some labs accumulating. Distance might be an issue but I try to find local resources first, or maybe, telephone support.
I don't have an instant recommendation for a personal case manager or adequate caretaker to aid or accompany them. Some church?
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper chemo to almost nothing mid 2018, IV C-->2021. Now supplements