Chemo pushed back twice, so I'm doing another half.

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AmyG
Posts: 260
Joined: Tue Dec 25, 2018 8:08 pm

Chemo pushed back twice, so I'm doing another half.

Postby AmyG » Wed Apr 24, 2019 8:38 pm

I was supposed to start my first round of chemo two weeks ago. Due to not having a CT, that got pushed back to this week.

Go in ready to get started this week, to find out there was no treatment plan/orders for chemo. Doctor tries to push it through but the insurance needs all the drugs pre certified. Come back tomorrow they tell me! Uh, no. I didn't drive two hours, wait for an hour and a half for labs and another half hour to see the doctor to drive home 2 hours to come back and do it again the next day.

So I said F it and registered for a local half marathon this Saturday. :lol:

I had originally written this one off, thinking that I would have already started treatment and with not knowing how the first round was going to have me feeling, seemed silly to attempt it.

Not now yall. I'll have another medal on the wall Saturday afternoon and will try for the third time to get chemo going next Tuesday!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

Jannine
Posts: 175
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Chemo pushed back twice, so I'm doing another half.

Postby Jannine » Wed Apr 24, 2019 9:01 pm

haha good for you! I hope your race results make you super proud. :)

Sucks about the chemo getting delayed. I hope the next time you go in they'll be ready for you. What a hassle.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

Pyro
Posts: 298
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Chemo pushed back twice, so I'm doing another half.

Postby Pyro » Wed Apr 24, 2019 9:17 pm

AmyG wrote:I was supposed to start my first round of chemo two weeks ago. Due to not having a CT, that got pushed back to this week.

Go in ready to get started this week, to find out there was no treatment plan/orders for chemo. Doctor tries to push it through but the insurance needs all the drugs pre certified. Come back tomorrow they tell me! Uh, no. I didn't drive two hours, wait for an hour and a half for labs and another half hour to see the doctor to drive home 2 hours to come back and do it again the next day.

So I said F it and registered for a local half marathon this Saturday. :lol:

I had originally written this one off, thinking that I would have already started treatment and with not knowing how the first round was going to have me feeling, seemed silly to attempt it.

Not now yall. I'll have another medal on the wall Saturday afternoon and will try for the third time to get chemo going next Tuesday!


Are you on Medicare? Good luck on the run, wish I could still do it!
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

AmyG
Posts: 260
Joined: Tue Dec 25, 2018 8:08 pm

Re: Chemo pushed back twice, so I'm doing another half.

Postby AmyG » Wed Apr 24, 2019 9:45 pm

Not on Medicare! Going to a university hospital that has just had some communication errors. I'm pleased with my care, just annoyed that all the moving parts aren't quite working together.

It wouldn't be nearly as obnoxious if we lived closer. It's such a production to plan after school pick ups, child care, etc. But I guess that's my fault for having 8 kids and living in the middle of nowhere. :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

User avatar
CRguy
Posts: 9998
Joined: Sun Feb 10, 2008 6:00 pm

Re: Chemo pushed back twice, so I'm doing another half.

Postby CRguy » Wed Apr 24, 2019 11:08 pm

AmyG wrote:So I said F it and registered for a local half marathon this Saturday. :lol:
I'll have another medal on the wall Saturday afternoon and will try for the third time to get chemo going next Tuesday!

Ya know .. when you said chemo pushed back ...so just doing a half ....
I am thinking OK so she's just doing half chemo ... ????

BUTT ..... JUST so you KNOW .....
my wife loves amaryllis bulbs
gets them and grows them every year

ME = not a house plant/ gardener type .. BUTT love them and have nicknamed them
wait for it ...... Amy :shock: ... SO
this year we had one and it bloomed all over the place
pulled back / got cut back ......

fast forward to last week

Amy IS back
going STRONG


pushing up stalks WITH flowers
been there all along !

we are waiting for "her" to blossom

seems like I don't have to wait now ... 'COS

we CTalkers have our OWN ... Amy
and it IS YOU
and YES you are gonna run and .. "blossom"

is it Ok to equate your efforts with Amy ???

HELL YEAH !!!!!!

Bring it HOME .... homie
I know sometimes I do get carried away ... BUTT ... folks like YOU,
inspire me = WORD !

Harmony on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

AmyG
Posts: 260
Joined: Tue Dec 25, 2018 8:08 pm

Re: Chemo pushed back twice, so I'm doing another half.

Postby AmyG » Thu Apr 25, 2019 8:26 am

Omfg. Dude. I read that while enjoying a slice of lemon cake and coffee for breakfast. I almost lost it all over my phone!! :lol:

That would have been tragic, because it's a delicious cake.

At any rate, I think you're fabulous CRguy. You made my morning.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

User avatar
CRguy
Posts: 9998
Joined: Sun Feb 10, 2008 6:00 pm

Re: Chemo pushed back twice, so I'm doing another half.

Postby CRguy » Thu Apr 25, 2019 11:55 am

Backatcha' sista !!!

Cheers
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

MissMolly
Posts: 645
Joined: Wed Jun 03, 2015 4:33 pm
Location: Portland, Ore

Re: Chemo pushed back twice, so I'm doing another half.

Postby MissMolly » Thu Apr 25, 2019 1:10 pm

Amy:
I have not commented on your prior posts as I am not a cancer patient and so tend to comment only on areas where my ileostomy and ostomy experience is appropriate.

But you are nothing short of amazing. A-m-a-z-i-n-g.

Your personal Finish Lines include a recent pregnancy and welcoming of Nicholas into the world. And several 5 and 10 K races since you have been a member of this forum.

I am a former marathon-distance runner. Running was my personal oxygen. One foot in front of her other. Repeat. I honestly feel that running gave me a focus of mind and physical resiliency that has aided in my perseverance despite frail health.

Sending you best wishes in the upcoming half-marathon. My you find that centering “in the zone” place within yourself that a good run brings us to.

You truly are an example of all things possible.
Karen
Dear friend to Bella Piazza, former Colon Club member (NWGirl).
I have a permanent ileostomy and offer advice on living with an ostomy - in loving remembrance of Bella
I am on Palliative Care for broad endocrine failure + Addison's disease + osteonecrosis of both hips/jaw + immunosuppression. I live a simple life due to frail health.

AmyG
Posts: 260
Joined: Tue Dec 25, 2018 8:08 pm

Re: Chemo pushed back twice, so I'm doing another half.

Postby AmyG » Fri Apr 26, 2019 8:55 am

MissMolly wrote:Amy:
I have not commented on your prior posts as I am not a cancer patient and so tend to comment only on areas where my ileostomy and ostomy experience is appropriate.

But you are nothing short of amazing. A-m-a-z-i-n-g.

Your personal Finish Lines include a recent pregnancy and welcoming of Nicholas into the world. And several 5 and 10 K races since you have been a member of this forum.

I am a former marathon-distance runner. Running was my personal oxygen. One foot in front of her other. Repeat. I honestly feel that running gave me a focus of mind and physical resiliency that has aided in my perseverance despite frail health.

Sending you best wishes in the upcoming half-marathon. My you find that centering “in the zone” place within yourself that a good run brings us to.

You truly are an example of all things possible.
Karen


You are incredibly kind! Packet pick up is this afternoon during the expo. What's your favorite color? I'll pick up a new pair of race socks and wear them in your honor tomorrow. :D
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

AmyG
Posts: 260
Joined: Tue Dec 25, 2018 8:08 pm

Re: Chemo pushed back twice, so I'm doing another half.

Postby AmyG » Sat Apr 27, 2019 11:32 am

Another 13.1 miles in the books!

It was a beautiful day, nice course and omfg this medal is HUGE. :shock:

Next one isn't until late September, we'll see where I am with treatment..... :twisted:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

Caat55
Posts: 671
Joined: Sat Dec 23, 2017 6:01 pm

Re: Chemo pushed back twice, so I'm doing another half.

Postby Caat55 » Sat Apr 27, 2019 11:48 am

You are amazing. I hope you danced at the finish line.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

AmyG
Posts: 260
Joined: Tue Dec 25, 2018 8:08 pm

Re: Chemo pushed back twice, so I'm doing another half.

Postby AmyG » Sun Apr 28, 2019 1:52 pm

Caat55 wrote:You are amazing. I hope you danced at the finish line.
Susan


I looked at my finish line photos...I looked...intense. :lol: I ran intervals for most of the race, since I haven't done anything resembling training in quite some time. But as soon as I turned the corner and saw the finish line, i picked up the pace and then just sprinted down the final stretch.

I left it all on the course, there was nothing more in my tank. Just the way it should be!

Oh!! I shaved just under 40 minutes off of my time from the half in February!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

kandj
Posts: 261
Joined: Sun Sep 27, 2015 11:29 am

Re: Chemo pushed back twice, so I'm doing another half.

Postby kandj » Mon Apr 29, 2019 8:29 am

AmyG wrote:
Caat55 wrote:You are amazing. I hope you danced at the finish line.
Susan


I looked at my finish line photos...I looked...intense. :lol: I ran intervals for most of the race, since I haven't done anything resembling training in quite some time. But as soon as I turned the corner and saw the finish line, i picked up the pace and then just sprinted down the final stretch.

I left it all on the course, there was nothing more in my tank. Just the way it should be!

Oh!! I shaved just under 40 minutes off of my time from the half in February!



Wait, didn’t you just have a baby?!?!? You are going to kick cancer’s ass just like you did this race! Way to go, you are amazing and inspiring!
wife to DH, dx 8/15 stage IV @36, numerous unresectable liver Mets
resection and HAI placed 12/15
Liver resection 5/19/2016 15-20 mets removed (surgeon lost count, but it hopeful he got it all!)
Recurrence 7/2017 4 Liver mets and one possible lung met
Radiation on liver Mets 12/17
Lung met 10/18
VATS on lung met 11/18 started xeloda
chemo break, nothing seen on scans 6/19 or 8/19 Hopeful

AmyG
Posts: 260
Joined: Tue Dec 25, 2018 8:08 pm

Re: Chemo pushed back twice, so I'm doing another half.

Postby AmyG » Mon Apr 29, 2019 11:27 am

kandj wrote:Wait, didn’t you just have a baby?!?!? You are going to kick cancer’s ass just like you did this race! Way to go, you are amazing and inspiring!


Well, he's 6 weeks old now, so it's been a little bit! My race day recovery was much faster than the one I did when I was 33 weeks pregnant with him. It's amazing how much easier things are without another person living inside your midsection! :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3


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