First CT results are in..

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AmyG
Posts: 299
Joined: Tue Dec 25, 2018 8:08 pm

First CT results are in..

Postby AmyG » Fri Apr 19, 2019 9:48 pm

I still only have the one met in my liver!!!

Chest is clear, nothing new in my abdomen, pelvis is clear. This was the first CT I've had since diagnosis. I wasn't stressing the outcome until I got the email that I had a new result in my chart.

Then I was all :shock: OMFG :shock:

Now all I have to do is let the drugs do their job, so the surgeon can do his then I'll be footloose and cancer free. That's how this works, right?

Hopefully this is the first of many good scans to come.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

Lee
Posts: 5974
Joined: Sun Apr 16, 2006 4:09 pm

Re: First CT results are in..

Postby Lee » Fri Apr 19, 2019 10:13 pm

AmyG wrote:I still only have the one met in my liver!!!


You had me there with that one line. Can I say TOTALLY AWESOME!!! :D

Keep it up,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
ginabeewell
Posts: 369
Joined: Wed Oct 24, 2018 10:30 am

Re: First CT results are in..

Postby ginabeewell » Sat Apr 20, 2019 10:01 am

This seems like a miracle! So glad to hear the disease hadn’t progressed further and you’re ready to get started. We will be with you as you do!
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

Punky44
Posts: 402
Joined: Mon Oct 01, 2018 4:29 pm

Re: First CT results are in..

Postby Punky44 » Sat Apr 20, 2019 10:20 am

Yay!!!!!!!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

margiej
Posts: 88
Joined: Sat Apr 14, 2018 8:46 am

Re: First CT results are in..

Postby margiej » Sat Apr 20, 2019 12:26 pm

Great news! I especially like "footloose and cancer free"... Nice turn of phrase!
Margie
Dx CC 12/2015, age 57 at Dx
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
Capox started 3/4/16 - Six rounds
CT-suspicious lymph 2/22/16
PET scan 2/24/16 clear
CT 6/8/16 clear
Clear Colonoscopy 3/17
CT 10/3/17 clear
CT 10/17/18 clear
CEA 12/17 1.7
5/16 3.8
7/16 1.9
3/17 1.3
10/17 1.2
4/18 1.6
11/18 1.2

AmyG
Posts: 299
Joined: Tue Dec 25, 2018 8:08 pm

Re: First CT results are in..

Postby AmyG » Sat Apr 20, 2019 4:42 pm

ginabeewell wrote:This seems like a miracle! So glad to hear the disease hadn’t progressed further and you’re ready to get started. We will be with you as you do!



I know right??!? I mean, who knows how long I even had my primary tumor. We know for sure there's been a met in my liver since August. That's at least 8 months that it has been hanging out being untreated and it's probably been there a lot longer. It's grown and my CEA has risen accordingly, but that's to be expected.

So I'm really pleased. Who knew being excited over a tumor was a thing. :lol:

I'm glad you guys get it!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

User avatar
chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: First CT results are in..

Postby chrissyrice » Sat Apr 20, 2019 8:05 pm

Great news for your first scan. :D
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

stu
Posts: 1219
Joined: Sat Aug 17, 2013 5:46 pm

Re: First CT results are in..

Postby stu » Sun Apr 21, 2019 3:24 am

Fantastic news . There is just something about you .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Jannine
Posts: 185
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: First CT results are in..

Postby Jannine » Sun Apr 21, 2019 8:17 am

So happy to hear this, Amy!
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

DarknessEmbraced
Posts: 3381
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: First CT results are in..

Postby DarknessEmbraced » Sun Apr 21, 2019 9:44 am

Wonderful news! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: First CT results are in..

Postby LPL » Sun Apr 21, 2019 4:19 pm

Great news AmyG :) Wishing you a good response to chemo.
Btw, (You have no info in your signature) do you now if you have any mutations and if you are MSS or MSI? I presume that they tested your resected colon tumor..
Kind regards/LPL
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

AmyG
Posts: 299
Joined: Tue Dec 25, 2018 8:08 pm

Re: First CT results are in..

Postby AmyG » Sun Apr 21, 2019 4:35 pm

LPL wrote:Btw, (You have no info in your signature) do you now if you have any mutations and if you are MSS or MSI? I presume that they tested your resected colon tumor..


I keep meaning to edit that signature.

I'm totally wild as far as KRAS/BRAF (and two others that I really can't remember) and MSS.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

Gravelyguy
Posts: 260
Joined: Thu Jul 05, 2018 6:03 pm

Re: First CT results are in..

Postby Gravelyguy » Sun Apr 21, 2019 5:16 pm

That is awesome news Amy. Being Wild type is a good thing. I had Vectibix with my initial chemo and it really did a number on my liver Mets as in one was completely dead and the other was a lates so could have been as well.

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

User avatar
juliej
Posts: 3049
Joined: Thu Aug 05, 2010 12:59 pm

Re: First CT results are in..

Postby juliej » Mon Apr 22, 2019 6:03 pm

AmyG wrote:I still only have the one met in my liver!!!

Chest is clear, nothing new in my abdomen, pelvis is clear. This was the first CT I've had since diagnosis.

This is fantastic and amazing news! I am so happy for you! :D :D :D

And, yes, let the drugs do their job. Then let the surgeon do his. Your job is to take care of your new little one and stay strong!

Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 9/23/2019, CEA<1


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