Pyro wrote:You’re focused on food quite a bit, and you’re correct, it can hurt or help a person on chemo. However, I never wanted to eat on FOLFOX, and many people share this problem, if my food were limited, I probably wouldn’t have eaten at all. If he wants an ice cream, let him! There is a lot of good and bad on the internet, however, most medical text books are not indexed, trust your doctor. Decide on your own for some of the more complex procedures, for example HIPEC. It seems like the hot item right now and cancer has seen this type of hype before, I’ll attach what I saw and you decide. I was 38 when diagnosed, age is on his side but stage 4 is a long game, don’t forget to live now, he will win some and lose some, you never know what the next scan brings.
https://www.cancernetwork.com/news/no-o ... tal-cancer
Pyro wrote:You’re focused on food quite a bit, and you’re correct, it can hurt or help a person on chemo. However, I never wanted to eat on FOLFOX, and many people share this problem, if my food were limited, I probably wouldn’t have eaten at all. If he wants an ice cream, let him! There is a lot of good and bad on the internet, however, most medical text books are not indexed, trust your doctor. Decide on your own for some of the more complex procedures, for example HIPEC. It seems like the hot item right now and cancer has seen this type of hype before, I’ll attach what I saw and you decide. I was 38 when diagnosed, age is on his side but stage 4 is a long game, don’t forget to live now, he will win some and lose some, you never know what the next scan brings.
https://www.cancernetwork.com/news/no-o ... tal-cancer
ginabeewell wrote:Pyro wrote:You’re focused on food quite a bit, and you’re correct, it can hurt or help a person on chemo. However, I never wanted to eat on FOLFOX, and many people share this problem, if my food were limited, I probably wouldn’t have eaten at all. If he wants an ice cream, let him! There is a lot of good and bad on the internet, however, most medical text books are not indexed, trust your doctor. Decide on your own for some of the more complex procedures, for example HIPEC. It seems like the hot item right now and cancer has seen this type of hype before, I’ll attach what I saw and you decide. I was 38 when diagnosed, age is on his side but stage 4 is a long game, don’t forget to live now, he will win some and lose some, you never know what the next scan brings.
https://www.cancernetwork.com/news/no-o ... tal-cancer
I have to agree here. Before my chemo started, I announced my intention to eat a healthy diet, plant-based and no refined carbs, no sugar, etc. My doctors all but laughed at me, and said, “That’s great but you may hit a point when all you want to eat is Frosted Flakes, and on that day I want you to eat Frosted Flakes.”
I tried to follow my diet for a few rounds of chemo. I was miserable - and I lost a ton of weight. One morning my “green juice” made me nauseous, and I couldn’t drink another again. Once I got down to 90 lbs (and an infection that landed me in the hospital), my husband convinced me that there was literally NO WAY to get my weight back without being less restrictive on my diet. I had a chemo break and gained back almost 30 lbs.
I still try to eat mostly healthy, but I’ve had to rely way more on dairy and other things that I started out trying to avoid. Now I can keep my weight on - and I’m not miserable. And I do eat Frosted Flakes on my bad days!
brokenwings wrote:
Concerning HIPEC, there is a lot of disagreement between oncologists right now. But... Prodige 7 was a flawed study. My surgeon participated in that study and told me that their big mistake was using Oxaliplatin as the chemo agent. Usually (whether it's in the US or France) the agent used in HIPEC is mitomicyn C (I hope I spelled it right!). In any case, I think everybody agrees on the fact that the most important part of the surgery is the debulking... so you need a good surgeon!
brokenwings wrote:Pyro wrote:You’re focused on food quite a bit, and you’re correct, it can hurt or help a person on chemo. However, I never wanted to eat on FOLFOX, and many people share this problem, if my food were limited, I probably wouldn’t have eaten at all. If he wants an ice cream, let him! There is a lot of good and bad on the internet, however, most medical text books are not indexed, trust your doctor. Decide on your own for some of the more complex procedures, for example HIPEC. It seems like the hot item right now and cancer has seen this type of hype before, I’ll attach what I saw and you decide. I was 38 when diagnosed, age is on his side but stage 4 is a long game, don’t forget to live now, he will win some and lose some, you never know what the next scan brings.
https://www.cancernetwork.com/news/no-o ... tal-cancer
Concerning HIPEC, there is a lot of disagreement between oncologists right now. But... Prodige 7 was a flawed study. My surgeon participated in that study and told me that their big mistake was using Oxaliplatin as the chemo agent. Usually (whether it's in the US or France) the agent used in HIPEC is mitomicyn C (I hope I spelled it right!). In any case, I think everybody agrees on the fact that the most important part of the surgery is the debulking... so you need a good surgeon!
Pyro70 wrote:brokenwings wrote:Pyro wrote:You’re focused on food quite a bit, and you’re correct, it can hurt or help a person on chemo. However, I never wanted to eat on FOLFOX, and many people share this problem, if my food were limited, I probably wouldn’t have eaten at all. If he wants an ice cream, let him! There is a lot of good and bad on the internet, however, most medical text books are not indexed, trust your doctor. Decide on your own for some of the more complex procedures, for example HIPEC. It seems like the hot item right now and cancer has seen this type of hype before, I’ll attach what I saw and you decide. I was 38 when diagnosed, age is on his side but stage 4 is a long game, don’t forget to live now, he will win some and lose some, you never know what the next scan brings.
https://www.cancernetwork.com/news/no-o ... tal-cancer
Concerning HIPEC, there is a lot of disagreement between oncologists right now. But... Prodige 7 was a flawed study. My surgeon participated in that study and told me that their big mistake was using Oxaliplatin as the chemo agent. Usually (whether it's in the US or France) the agent used in HIPEC is mitomicyn C (I hope I spelled it right!). In any case, I think everybody agrees on the fact that the most important part of the surgery is the debulking... so you need a good surgeon!
I’m 99% certain oxaliplatin is the standard HIPEC drug used in Europe.
Pyro70 wrote:I too was essentially symptom free during my 6 months of FOLFOX/avastin. After chemo and before my first surgery I took a 3 week road trip sightseeing and kiteboarding through Egypt. I didn’t follow any specific diet, so anecdotally it’s not required.
You have to remember with all this unproven stuff, it’s essentially a shot in the dark. There are obvious things you need to do (get enough calories, protein, and other nutrients), but beyond that, it quickly turns into quackery. The reason that oncologists turn their nose at this stuff is that most of it is quite ridiculous. It’s sad so many “doctors” take advantage of emotionally vunerable cancer patients to make a quick $$$. Very evil when you think about it...
Pyro wrote:
SIDEBAR - sort of. @Pyro70, good name, funny when youre signing up you never see the guy who took the original name except this time , I digress.
Pyro wrote:
the article I found and worry about:
https://www.nytimes.com/1999/10/03/us/h ... ience.html
If you read about th S African study in there, turns out they falsified a bunch of data, came out later. Article show the tail wagging the dog in patient care and it can be, all about money. It’s breast cancer, but people will get the point. I know it seems like I’m comparing this to HIPEC, but obviously they are different. My point is, be careful!
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