Does your Medtronic pump TICK?

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ginabeewell
Posts: 220
Joined: Wed Oct 24, 2018 10:30 am

Does your Medtronic pump TICK?

Postby ginabeewell » Wed Apr 10, 2019 10:54 pm

The past few days a ticking sound has kept me awake, and I had been trying to figure out what it is.

Today I realized: it’s coming from my belly! It’s the pump!!

Nobody mentioned I would be able to hear it. But it’s as loud as a loud watch with the ticking. And I think it doesn’t stop.

Is this something others have experienced? None of the online materials reference this, which makes me worry that maybe it’s not working properly? I’ll call tomorrow but posting tonight in case anyone else has insight.
45 year old mom of twins (7) and lucky stepmom of 13 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets (largest 11 cm)
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 Routine scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 Surgery: HAI pump placement / colon resection
4/8/19 Resume chemo (#9-12) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
Late summer: liver resection hopefully

mpbser
Posts: 905
Joined: Wed Apr 19, 2017 11:52 am

Re: Does your Medtronic pump TICK?

Postby mpbser » Thu Apr 11, 2019 5:38 am

I don't think my husband's pump is making an audible ticking. It loudly vibrated and made a buzzing sound when he had an MRI, however. We believe that its location - as it was implanted in his chest cavity - provides an echo chamber for it. I would think if anyone would hear a ticking it would be someone with it implanted in the chest. Based on that, I surmise your case is unusual. Please keep us posted!
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

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ginabeewell
Posts: 220
Joined: Wed Oct 24, 2018 10:30 am

Re: Does your Medtronic pump TICK?

Postby ginabeewell » Thu Apr 11, 2019 8:43 am

I talked to a Medtronic rep this morning. She confirmed that I was hearing the gears that move in the device and that it’s possible I would hear it during “quiet times.”

That seems to mean any time I’m not actively listening to something / someone else.

I sure hope I get used to it! But I guess this can be an FYI for anyone else who experiences the same issue.
45 year old mom of twins (7) and lucky stepmom of 13 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets (largest 11 cm)
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 Routine scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 Surgery: HAI pump placement / colon resection
4/8/19 Resume chemo (#9-12) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
Late summer: liver resection hopefully

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juliej
Posts: 2984
Joined: Thu Aug 05, 2010 12:59 pm

Re: Does your Medtronic pump TICK?

Postby juliej » Thu Apr 11, 2019 5:52 pm

ginabeewell wrote:I talked to a Medtronic rep this morning. She confirmed that I was hearing the gears that move in the device and that it’s possible I would hear it during “quiet times.”

That seems to mean any time I’m not actively listening to something / someone else.

I sure hope I get used to it! But I guess this can be an FYI for anyone else who experiences the same issue.

Smart move to call a Medtronic rep!!! :D

The Codman and Medtronic pumps work completely different. The Codman used the heat of your body (no batteries or gears) to administer the FUDR to your liver. The Medtronic has gears (which tick, as you noted!) and has to be programmed externally.

The Medtronic one also has auditory alarms if something goes wrong, which is a little freaky to me. I worry enough when I go through TSA since they know nothing about HAI pumps without an alarm going off as I'm walking through security! :shock:

Here is a page at MSK with info about the new Medtronic pump. It also has a link to info about the alarms. Scroll down to the "Understanding Pump Alarms” section of the second link and you can hear examples of alarm noises.

https://www.mskcc.org/cancer-care/patient-education/about-your-medtronic-implanted-infusion-pump

https://www.medtronic.com/us-en/patients/treatments-therapies/drug-pump-cancer-pain/living-with/daily-living.html
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 3/18/2019, CEA<1

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CRguy
Posts: 9898
Joined: Sun Feb 10, 2008 6:00 pm

Re: Does your Medtronic pump TICK?

Postby CRguy » Thu Apr 11, 2019 11:09 pm

juliej wrote: I worry enough when I go through TSA since they know nothing about HAI pumps without an alarm going off as I'm walking through security! :shock:

Sent you a PM homie
Call me if you need to make bail money ... :shock: :shock: :shock:

:mrgreen:
Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

VeggieLvr
Posts: 61
Joined: Fri Mar 09, 2018 3:02 pm
Location: NY

Re: Does your Medtronic pump TICK?

Postby VeggieLvr » Mon Apr 22, 2019 9:20 am

Yes, my pump ticks and it freaked me out at first! I barely notice it now and was actually worried when I realized I didn't hear it ticking the other day - I had my husband listen to my belly and he confirmed the tick is still there. :)
F, 42, Stage IV CC
2/23/18 - colonoscopy/virtual colonoscopy, diagnosed CC
3/6/18 - left hemicolectomy, 12" removed, clear margins. Multiple mets to lymph nodes (removed), omentum & liver, 1 possible lung met
4/6/18 - port install
4/9/18 - Folfox (Oxaliplatin/Leucovorin/5FU) 4 rounds
6/19/18 - liver resection, HAI pump install
8/30/18 - Folfiri (Irinotecan/Leucovorin/5FU)
12/5/18 - Erbitux added
5/28/19 - 2nd liver resection/ablation

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ginabeewell
Posts: 220
Joined: Wed Oct 24, 2018 10:30 am

Re: Does your Medtronic pump TICK?

Postby ginabeewell » Mon Apr 22, 2019 10:46 pm

The Medtronic rep was there for my flush today and he played the emergency alarm for us from inside of me. Wild!! Pretty sure I will panic if I hear it in real life.

The Northwestern head nurse flushed the pump and did it like a pro. She seemed to have an easier time than the MSK nurse did two weeks ago! So glad they got trained and I can do it there.
45 year old mom of twins (7) and lucky stepmom of 13 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets (largest 11 cm)
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 Routine scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 Surgery: HAI pump placement / colon resection
4/8/19 Resume chemo (#9-12) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
Late summer: liver resection hopefully

kandj
Posts: 245
Joined: Sun Sep 27, 2015 11:29 am

Re: Does your Medtronic pump TICK?

Postby kandj » Wed Apr 24, 2019 11:18 am

Ok, this might not make you laugh, but you saying something about the alarms made me think of when a smoke detector in the house is low on batteries and it gives that annoying beep, which always seems to happen at 2am. I just imagine the alarm going off at 2 am like a smoke detector! Did they say if there is a way to silence it? Does it sound like those FUDR pumps they send home that beep every 5 mins when they are done? That is so freaky and cool at the same time
wife to DH, dx 8/15 stage IV @36
Told unresectable liver Mets
Primary resection and HAI pump placed Dec 2015 at MSKCC, FUDR started Dec 2015
Liver resection 5/19/2016 15-20 mets removed (surgeon lost count, but it hopeful he got it all!)
Recurrence 7/2017 4 Liver mets and one possible lung met
Radiation on liver Mets 12/17
Lung met 10/18
46 rounds of chemo 8/15-5/18
VATS on lung met 11/18 started xeloda


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