Does your Medtronic pump TICK?

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ginabeewell
Posts: 145
Joined: Wed Oct 24, 2018 10:30 am

Does your Medtronic pump TICK?

Postby ginabeewell » Wed Apr 10, 2019 10:54 pm

The past few days a ticking sound has kept me awake, and I had been trying to figure out what it is.

Today I realized: it’s coming from my belly! It’s the pump!!

Nobody mentioned I would be able to hear it. But it’s as loud as a loud watch with the ticking. And I think it doesn’t stop.

Is this something others have experienced? None of the online materials reference this, which makes me worry that maybe it’s not working properly? I’ll call tomorrow but posting tonight in case anyone else has insight.
45 year old mom of twins (7) and lucky stepmom of 13 and 15 year olds
9/11/18 colonoscopy
9/17/18 DX stage 4 CRC with inoperable liver metastasis (largest 11 cm)
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 Routine scan picked up typhlitis - hospital stay for 7 days - but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6!
1/14/18 Resume chemo (rounds 6-8)
3/27/19 Surgery: HAI pump placement / colon resection; liver resection to follow
CEA 2.6!!

mpbser
Posts: 801
Joined: Wed Apr 19, 2017 11:52 am

Re: Does your Medtronic pump TICK?

Postby mpbser » Thu Apr 11, 2019 5:38 am

I don't think my husband's pump is making an audible ticking. It loudly vibrated and made a buzzing sound when he had an MRI, however. We believe that its location - as it was implanted in his chest cavity - provides an echo chamber for it. I would think if anyone would hear a ticking it would be someone with it implanted in the chest. Based on that, I surmise your case is unusual. Please keep us posted!
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 met in liver
Resection & HAI Mar 7

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ginabeewell
Posts: 145
Joined: Wed Oct 24, 2018 10:30 am

Re: Does your Medtronic pump TICK?

Postby ginabeewell » Thu Apr 11, 2019 8:43 am

I talked to a Medtronic rep this morning. She confirmed that I was hearing the gears that move in the device and that it’s possible I would hear it during “quiet times.”

That seems to mean any time I’m not actively listening to something / someone else.

I sure hope I get used to it! But I guess this can be an FYI for anyone else who experiences the same issue.
45 year old mom of twins (7) and lucky stepmom of 13 and 15 year olds
9/11/18 colonoscopy
9/17/18 DX stage 4 CRC with inoperable liver metastasis (largest 11 cm)
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 Routine scan picked up typhlitis - hospital stay for 7 days - but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6!
1/14/18 Resume chemo (rounds 6-8)
3/27/19 Surgery: HAI pump placement / colon resection; liver resection to follow
CEA 2.6!!

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juliej
Posts: 2940
Joined: Thu Aug 05, 2010 12:59 pm

Re: Does your Medtronic pump TICK?

Postby juliej » Thu Apr 11, 2019 5:52 pm

ginabeewell wrote:I talked to a Medtronic rep this morning. She confirmed that I was hearing the gears that move in the device and that it’s possible I would hear it during “quiet times.”

That seems to mean any time I’m not actively listening to something / someone else.

I sure hope I get used to it! But I guess this can be an FYI for anyone else who experiences the same issue.

Smart move to call a Medtronic rep!!! :D

The Codman and Medtronic pumps work completely different. The Codman used the heat of your body (no batteries or gears) to administer the FUDR to your liver. The Medtronic has gears (which tick, as you noted!) and has to be programmed externally.

The Medtronic one also has auditory alarms if something goes wrong, which is a little freaky to me. I worry enough when I go through TSA since they know nothing about HAI pumps without an alarm going off as I'm walking through security! :shock:

Here is a page at MSK with info about the new Medtronic pump. It also has a link to info about the alarms. Scroll down to the "Understanding Pump Alarms” section of the second link and you can hear examples of alarm noises.

https://www.mskcc.org/cancer-care/patient-education/about-your-medtronic-implanted-infusion-pump

https://www.medtronic.com/us-en/patients/treatments-therapies/drug-pump-cancer-pain/living-with/daily-living.html
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 2/1/2019, CEA<1

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CRguy
Posts: 9811
Joined: Sun Feb 10, 2008 6:00 pm

Re: Does your Medtronic pump TICK?

Postby CRguy » Thu Apr 11, 2019 11:09 pm

juliej wrote: I worry enough when I go through TSA since they know nothing about HAI pumps without an alarm going off as I'm walking through security! :shock:

Sent you a PM homie
Call me if you need to make bail money ... :shock: :shock: :shock:

:mrgreen:
Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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