Encouragement and Hope

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ibcaree
Posts: 37
Joined: Wed Nov 19, 2008 6:12 pm
Location: Oklahoma

Encouragement and Hope

Postby ibcaree » Tue Apr 09, 2019 1:35 pm

I wanted to pop on here and encourage those of you fighting this current battle with colon and rectal cancer that there is hope. I know that not everyone receives their healing from this horrible disease, but I am living proof that it can and does happen. 10 years ago I was given a 50/50 chance of survival. I was 33 with a 2 year old and a 4 year old and trying to conceive a third child. Everything in that moment after diagnosis stopped and beating cancer was the only goal. I had no idea what my future would hold. In December 2018 I celebrated 10 years cancer free with no recurrence. I was very fortunate that chemotherapy did not cause menopause and I was even able to conceive and give birth to a (surprise!) beautiful baby girl 6 years after my chemotherapy.

I know what you are experiencing and dealing with right now is horribly difficult and sometimes hope is hard to hold on to, but healing and restoration is possible. God gets all the glory in my outcome, but He definitely placed me in the hands of an amazing surgeon and a fantastic Oncologist. I want to encourage you that healing is possible and remind you that it can and does happen. This is a fight worth fighting. Keep fighting. Praying for you all and praying for a cure.
Last edited by ibcaree on Wed Apr 10, 2019 12:34 am, edited 1 time in total.
Diagnosed with Rectal Sigmoid Colon Cancer at age 33 11/11/08
Colon Resection Surgery 12/15/08
Stage IIIB; 4/18 lymph nodes affected
5FU 1/28/09 (12 treatments over 6 mos)
Mom to two boys age 15 and 12, and a beautiful post cancer baby girl aged 3 years!
Age: 44
NED as of July 09!!
"God can restore what is broken and change it into something amazing. All you need is faith." Joel 2:25

zephyr
Posts: 222
Joined: Thu Aug 18, 2016 7:31 am

Re: Encouragement and Hope

Postby zephyr » Tue Apr 09, 2019 1:39 pm

ibcaree wrote:I know what you are experiencing and dealing with right now is horribly difficult and sometimes hope is hard to hold on to, but healing and restoration is possible.


Thank you for encouraging words that give so many of us hope.
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, MSS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
April-2019 Xeloda + Avastin

Lee
Posts: 5938
Joined: Sun Apr 16, 2006 4:09 pm

Re: Encouragement and Hope

Postby Lee » Tue Apr 09, 2019 8:10 pm

ibcaree wrote:I wanted to pop on here and encourage those of you fighting this current battle with colon and rectal cancer that there is hope. I know that not everyone receives their healing from this horrible disease, but I am living proof that it can and does happen. 10 years ago I was given a 50/50 chance of survival. I was 33 with a 2 year old and a 4 year old and trying to conceive a third child. Everything in that moment after diagnosis stopped and beating cancer was the only goal. I had no idea what my future would hold. In December 2018 I celebrated 10 years cancer free with no recurrence. I was very fortunate that chemotherapy did not cause menopause and I was even able to conceive and give birth to a (surprise!) beautiful baby girl 6 years after my chemotherapy.

I know what you are experiencing and dealing with right now is horribly difficult and sometimes hope is hard to hold on to, but healing and restoration is possible. God gets all the glory in my outcome, but He definitely placed me in the hands of an amazing surgeon and a fantastic Oncologist. I want to encourage you that healing is possible and remind you that it can and does happen. This is a fight worth fighting. Keep fighting. Praying for you all and praying for a cure.


Congratulations, that is so awesome. May you always reside in NEDville.

Would you please update your info in this special thread- For Stage III's: NED for how long now.

viewtopic.php?f=1&t=10574&hilit=stage+iii+ned+how+long

Your thread could be on page 2 within a week, the above thread has been around for 12+ years. It is a thread many newbies go to for inspiration

Again congratulations,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

ibcaree
Posts: 37
Joined: Wed Nov 19, 2008 6:12 pm
Location: Oklahoma

Re: Encouragement and Hope

Postby ibcaree » Wed Apr 10, 2019 12:37 am

Thank you Lee for the info! It has been awhile since I’ve been on the forum. I posted on the link you provided. :D
Diagnosed with Rectal Sigmoid Colon Cancer at age 33 11/11/08
Colon Resection Surgery 12/15/08
Stage IIIB; 4/18 lymph nodes affected
5FU 1/28/09 (12 treatments over 6 mos)
Mom to two boys age 15 and 12, and a beautiful post cancer baby girl aged 3 years!
Age: 44
NED as of July 09!!
"God can restore what is broken and change it into something amazing. All you need is faith." Joel 2:25

jmn
Posts: 22
Joined: Sat Aug 11, 2018 8:20 pm
Location: New York/Philadelphia

Re: Encouragement and Hope

Postby jmn » Sun Apr 28, 2019 2:05 pm

Many thanks for your encouraging words. Much appreciated.
DX: CC, 7-9-18 @ age 61, male
Severe anemia (4.5 g/dl), 5-11-18; colonoscopy, 6-29-18
Laparoscopic-assisted right hemicolectomy, 7-16-18
G2, moderately differentiated adenocarcinoma in cecum, 4.2 x 3.7 x 0.7 cm
Stage IIB, T4aN0M0
0/24 lymph nodes, LVI present, PNI present, surgical margins clear, MSS
CEA: 3.0 (pre-op, 7-10-18); 0.7 (post-op, 8-8-18)
TX: Xeloda (Capecitabine) monotherapy, 10-16-18 to 4-21-19
CEA: 4-19, 3.4; 5-19, 3.0
NED: 5-28-19 :D

Eleda
Posts: 293
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Encouragement and Hope

Postby Eleda » Sun Apr 28, 2019 3:59 pm

Its so amazing to read such a positive and possible outcome,,,,
As everyone knows "CURE "is not in our physicy,,, we always worry about matastais or re accurance,,,
( ALLLLLLLLL the time ) WELL ME ANYWAY!!!!!
We love to b positive for our families and friends but deep down when we are alone with our own thoughts, we are never sure that the demon will call us back......
Who will it return to??? No one is safe
I'm not being negative or morbid, but this is only a personal thought,,,,.
Maybe I'm too new to b more positive????
Ive clear margins ( MMR INTACT) and no reason to believe I'm at risk but it's not a risk analysis,,, otherwise there would b no vegans on here,,,?????
TBH IT gives me hope to think,,," maybe I'll make it too ??
And I thrive on stories like this
Thank you for posting

I can only vent here!!!
I'm strong and positive for my family
But I know only you get it and you will understand what I mean :?

Adele x
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

DarknessEmbraced
Posts: 3297
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Encouragement and Hope

Postby DarknessEmbraced » Mon Apr 29, 2019 8:41 am

I'm so happy that you had such a wonderful outcome and congratulations on 10 years!!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

tater
Posts: 95
Joined: Wed Jul 19, 2017 5:53 pm

Re: Encouragement and Hope

Postby tater » Mon Apr 29, 2019 11:40 am

Greta story thanks for the positive vibes today.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18, 1.8 3/19, 2.5 6/19
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18

Mohrfamily
Posts: 111
Joined: Tue May 22, 2018 4:04 pm

Re: Encouragement and Hope

Postby Mohrfamily » Tue May 14, 2019 10:28 am

That is fantastic DH was diagnosed a year ago we have a 7 and 4 year old and my 10 year old step son of his. He was 31at diagnosis and fights the fight every day suffering through 100% vectibix a full 6 months of oxiplatin before being forced off due to neuropathy.

He's a huge fighter we pray for the same outcome
DH dx officially stage IV with liver mets largest measuring 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
4/3/19 consult radiologist for possible radiation treatment.

Pyro
Posts: 240
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Encouragement and Hope

Postby Pyro » Tue May 14, 2019 10:51 am

I like reading stories like this, it gives hope to the hopeless! I don’t like reading stories like this because it not me, sorry, it’s true. Keep them coming!!
Aug 2015- Diag Stage 4 CC with mets to liver (38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not a surgery candidate for liver
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery, Dr. Vauthey
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda, CEA @36, treatment failure


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