CT Scan – Still NED
Posted: Tue Apr 02, 2019 6:05 am
For the sake of the community here, I thought I should update. My wife remains free of any evidence of disease. This is naturally a great boon to us, but these scans take a lot out of us now after all we've been through—basically, she was (falsely) diagnosed with diffuse peritoneal carcinomatosis about a year ago, and we had to fight tooth and nail for her to have her fourth major open-abdominal surgery in seventeen months (since I disagreed with the assessment of the radiologist and oncologist, who was recommending only palliative chemo and no surgery). Any recurrence will of course be a death sentence at this point; as my wife refuses to ever go through chemo again—we don't have an oncologist anymore; her former oncologist, the head of medical oncology at one of the most major research hospitals in this part of the world, is an arrogant ignoramus (while my wife sobbed on the floor exactly a year ago, he told me to console her rather than continue asking him questions about his interpretation of the scan, despite her protests—total irresponsible, possibly murderous, moron)—there will be no further scans. We are obviously in a highly unusual situation, so I don't know who this will help. We've vacillated at least four times from "You have twelve weeks to live" to "There is no evidence of disease." It's been Russian roulette, and we're traumatized. We've had the worst imaginable: ascites (multiple times), pleural effusions (multiple times), purulent peritonitis (a full four litres of it) . . . We're pretty fed up. I don't think my wife's cancer has any propensity to spread to anywhere besides the ovaries, which she doesn't have anymore. I support her decision to have no further scans.