Radioactive Sugar Uptake -PET

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Cured
Posts: 519
Joined: Thu Nov 27, 2008 10:53 pm
Location: MO

Radioactive Sugar Uptake -PET

Postby Cured » Sat Mar 30, 2019 12:56 pm

2 days ago I had my 3rd PET Scan. It showed the largest tumor in my lung had decreased to the point you can’t see it. The scan probably doesn’t declare all clear- according to my medical oncologist. I still need directly to see the radiologists’ report. My Onc prefers that I stay on Maintenence chemo. I want to take a long break.

Onc pointed out “good news” that the uptake of the Radioactive Sugar was much less than my previous scan in August. 2 vs 9.

What do you all know about UPTAKE as an indicator of active cancer?
5-08:Stg 3 Rectal: 6/14 Nodes
Ace Surgeon Remvd 90%Rectum,lots of Colon-Full Incision
Ileo Rev'd 6 Mos.
Radiatn+5fu Pre-Surgery
FOLFOX 8 CyclDone 1-09
Clear Scope 8-17; CEA 2-18
Glory to God! Healed by prayers of many: for 10 years
7-18: tumor pressing against brain Removed
Metastatic to lung. CEA 6.9 Began Folfiri
CEA dropped to 4.5 after 1 chemo
After 8 rounds CEA 3
CEA 1.8 2.3 now
Finished 12 rounds of Folfiri
Avastin infusions every 3 weeks.
Had seizure-Anti-seizure meds working;no driving for 6 months

User avatar
O Stoma Mia
Posts: 1600
Joined: Sat Jun 22, 2013 6:29 am

Re: Radioactive Sugar Uptake -PET

Postby O Stoma Mia » Sat Mar 30, 2019 2:39 pm

Cured wrote:...What do you all know about UPTAKE as an indicator of active cancer?

Some SUV threads

e_enyedy
Posts: 25
Joined: Sat Nov 25, 2017 5:28 pm

Re: Radioactive Sugar Uptake -PET

Postby e_enyedy » Sat Mar 30, 2019 6:16 pm

The Standard Uptake Value (SUV) is kind of a complex topic. Assuming you had your scan at the same place and there were no other physical changes (your weight, etc) a lower uptake value is definitely a good sign. Nonetheless, I would suggest you discuss it with your Radiologist. (FYI: there are no universal tables of SUV, say like height/weight scales).

Re "Maintenance Chemo": I am on "Maintenance Chemo" for the last 4 years, and it seems to control the disease. I am a great fan of doing it non-stop -and will do it for as long as it works (hopefully the rest of my life)

Regards

E
77 yrs male (73 at Dx)
2/13 Dx Carcinoma, Sigmoid Colon
3/13 Sigmoid Colon Hemicolectomy,( 12"+)
3/13 Pathology Staging: T1N0M0; no follow-up chemo
5/15 Recurrence: in pre-sacral space -no other mets detected (Instantly became Stage IV)
5/15 Started 8 sessions of Folfox + Avastin
11/15 Finished chemo, PET/CT: NED
11/15 Started Xeloda+ Avastin every 3 weeks. Still Doing it.
Still NED -(Hope treatment keeps working)

rp1954
Posts: 1517
Joined: Mon Jun 13, 2011 1:13 am

Re: Radioactive Sugar Uptake -PET

Postby rp1954 » Sat Mar 30, 2019 6:33 pm

We used supplement enhanced immunochemo as a maintenance therapy to keep the side effects down and the cell kill up for 8 years "maintenance". Vacations can be dangerous things.

Maybe what you need is a better maintenance formula rather than a chemo vacation. More cancer kill and less side effects. For years, a little less chemistry, not even a chemo "vacation," meant marker rises. Finally after years, we bottomed and stabilized CEA and some other markers, for a long while. An honest vacation, so far.

Also, IV vitamin C probably can reduce cancer sugar metabolism and the PET SUV, as well as reduce cancer cells' survival as an addon adjuvant.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now mostly IV C & no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper to almost nothing mid 2018


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