Thinking of you AmyG

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Gravelyguy
Posts: 177
Joined: Thu Jul 05, 2018 6:03 pm

Re: Thinking of you AmyG

Postby Gravelyguy » Wed Mar 27, 2019 12:09 pm

That is such wonderful news! My wife is the youngest of 10. I am only the youngest of 5.

Welcome Nicolas!

Dave
6/17 dx mCRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

Cmarie03
Posts: 25
Joined: Sat Feb 16, 2019 6:35 pm

Re: Thinking of you AmyG

Postby Cmarie03 » Wed Mar 27, 2019 1:04 pm

Congrats Amy on your new addition!!! Best of luck with everything in the future!! I had to switch to formula when my girl was 5 months old bc of chemo. It sucks but your right..they need their moms cancer free more!!
Diagnosed stage IIIC rectal cancer 12/20/18 in ER
4 rounds FOLFOX January 2019-February 2019
Xeloda/Radiation March 2019-April 2019
4 more rounds FOLFOX 6/5-7/17
Surgery sched 8/20/19

kandj
Posts: 250
Joined: Sun Sep 27, 2015 11:29 am

Re: Thinking of you AmyG

Postby kandj » Wed Mar 27, 2019 2:02 pm

AmyG wrote:
Lee wrote:Can you pump and freeze some of your milk now? I understand he is a newborn requiring feeding every few hours, but is it possible to to pump some right after feeding and freeze that?



Yup! Trying to build up a freezer stash in the next few weeks. I nursed all my babies at least a year, some a little longer. So the thought of swapping to formula and bottle feeding is outside of my skillset! But, in the long run he needs his mommy cancer free more than he needs to be exclusively breastfed. We'll figure it out!


I don't know where you live, or even if you are open to this, but if you are, contact your local LLL and see if they have contacts with a BM donation bank. Your case is exactly what those milk banks are for!

And after reading your signature, have you considered going to MSKCC and seeing Dr. Kemeny? you sound like you could be a prime candidate for the HAI pump and possibly surgery. It is best to get in on the ground floor with treatments. A lot of people seek her out after a recurrence, but starting with her for the initial chemo is best. I know you have a lot going on in your house (we have three boys, so too much testosterone here!). Best of luck to you and enjoy that sweet baby.
wife to DH, dx 8/15 stage IV @36, numerous unresectable liver Mets
resection and HAI placed 12/15
Liver resection 5/19/2016 15-20 mets removed (surgeon lost count, but it hopeful he got it all!)
Recurrence 7/2017 4 Liver mets and one possible lung met
Radiation on liver Mets 12/17
Lung met 10/18
VATS on lung met 11/18 started xeloda
chemo break, nothing seen on scans 6/19 Hopeful

SGNYC
Posts: 35
Joined: Mon Sep 03, 2018 9:20 pm

Re: Thinking of you AmyG

Postby SGNYC » Fri Mar 29, 2019 10:14 pm

Congratulations Amy! Welcome to the world little one!
Wife to DH, 44
DX July 18 - RC at Rectosigmoid
Adenocarcinoma, Mod diff
T3N1M1
Stage IV (but MSK said not a true Stage IV at Dx)
Pos nodes: 1/18
1 Liver Met and 1 Lung Met - liver Met dead tissue at surgery, hence MSK M1 status
Baseline CEA value of 25, now 3.4
LAR (Robotic)/Liver resect(dead tissue), VATS lung - clear margins
Temp Ileo- Reversal Feb 19
Folfox - 5 Rounds Neoadj, 3 rounds Adj, then discontinued Oxali and 4 rounds just 5FU
NED and Reversal Feb 2019 - clear contrast CT, clear contrast MRI

DarknessEmbraced
Posts: 3308
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Thinking of you AmyG

Postby DarknessEmbraced » Sun Mar 31, 2019 8:50 am

Congratulations! I'm glad you and baby are doing well! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

Koreysue
Posts: 101
Joined: Mon Apr 30, 2018 2:36 pm

Re: Thinking of you AmyG

Postby Koreysue » Sun Mar 31, 2019 1:52 pm

Congrats! Happy to hear :D
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4

AmyG
Posts: 216
Joined: Tue Dec 25, 2018 8:08 pm

Re: Thinking of you AmyG

Postby AmyG » Wed Apr 03, 2019 9:36 pm

You guys are all so swell!! :D

Had an appointment with the oncologist today and took Nicholas with me. Everyone swooned over him! The entire clinic from the receptionist, to the lab to the oncologist to the social worker were thrilled that he made it to term. Lots of people have been following our case pretty closely.

Get my port placed this Friday, CT scan as well. Will be my first one, hoping for no surprises. Chemo starts 4/16.

I might be a little bit terrified because it's actually here now.

In other news, Nicholas was 6.12 last Friday and today his goal weight was 7.1 My little porker was 7.7! :shock: 10 ounces in 5 days!!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19

Punky44
Posts: 331
Joined: Mon Oct 01, 2018 4:29 pm

Re: Thinking of you AmyG

Postby Punky44 » Thu Apr 04, 2019 8:11 am

Baby is doing great, just like mom! Will be thinking of you!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9
6/28/19 Reversal and port out

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

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LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Thinking of you AmyG

Postby LPL » Thu Apr 04, 2019 12:19 pm

Amy, I’m sending positive vibrations and Best of luck regarding your port placement and CT tomorrow!
Will be thinking about you <3
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

User avatar
juliej
Posts: 3015
Joined: Thu Aug 05, 2010 12:59 pm

Re: Thinking of you AmyG

Postby juliej » Thu Apr 04, 2019 2:09 pm

AmyG wrote:In other news, Nicholas was 6.12 last Friday and today his goal weight was 7.1 My little porker was 7.7! :shock: 10 ounces in 5 days!!

The average newborn gains 2/3 to 1 ounce a day, so he is double that number! He sounds like one healthy baby! :D :D :D

About your port, try to get a PowerPort if you can (just ask for one that can be used for CT scans as well as chemo). It makes it so much easier down the line.

Sending good thoughts for the port placement and CT scan on Friday!

Juliej
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 6/13/2019, CEA<1

AmyG
Posts: 216
Joined: Tue Dec 25, 2018 8:08 pm

Re: Thinking of you AmyG

Postby AmyG » Thu Apr 04, 2019 7:12 pm

juliej wrote:The average newborn gains 2/3 to 1 ounce a day, so he is double that number! He sounds like one healthy baby! :D



The running joke with all the other kids was I don't make milk, I make cream. :lol: However, with our nursing relationship being cut so short, I decided today would be a perfect day to see if he would take a bottle and tolerate formula. He had no issues taking it from me and so far, no tummy troubles. So it's good to know that hopefully won't be too hard of a transition for him.

CT has to be rescheduled as it conflicted with port placement. They are going to call me back with my new appointment time. I know I shouldn't complain about a 2hr drive to the hospital, but I am anyway. That's 4 hours of just being in the car! :roll:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19

Beccaschocked
Posts: 36
Joined: Mon Oct 30, 2017 7:33 pm
Facebook Username: Becca Fender schock

Re: Thinking of you AmyG

Postby Beccaschocked » Mon Apr 08, 2019 7:59 pm

Amy,

First off, congratulations! I was diagnosed with stage 4, mets to my liver, when my daughter was just weeks old. Those new born cuddles were the very best medicine!

I know someone mentioned it previously, but we used breastmilk banks and I am forever grateful for them. It was a small condolence for not being able to breastfeed her for longer. Additionally, my daughter has always been so healthy! She’s four, and still hasn’t ever been really sick. We joke it’s from all the different antibodies she was exposed to during her breastmilk months.

Sending prayers for your CT scan and a clear treatment path! Keep up the good fight mama, you got this!!
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection followed by 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.; 1.0; 1.1; 1.1
7/2018 & 1/2019 Clear scan NED


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