Thinking of you AmyG

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Punky44
Posts: 334
Joined: Mon Oct 01, 2018 4:29 pm

Thinking of you AmyG

Postby Punky44 » Tue Mar 26, 2019 2:00 pm

AmyG,

How did your labor and delivery go? Hope you and baby are doing well. Please update on your treatment plans when you can.

Thinking of you!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9
6/28/19 Reversal and port out

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

User avatar
LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Thinking of you AmyG

Postby LPL » Tue Mar 26, 2019 2:39 pm

Punky44 wrote:AmyG,

How did your labor and delivery go? Hope you and baby are doing well. Please update on your treatment plans when you can.

Thinking of you!

Me too - thinking of you !
Hope everything is fine.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

AmyG
Posts: 218
Joined: Tue Dec 25, 2018 8:08 pm

Re: Thinking of you AmyG

Postby AmyG » Tue Mar 26, 2019 2:50 pm

Hi!!

I'm currently snuggling baby #8, Nicholas Reed. He brings the tally to 3 boys, 5 girls. We were in dire need of some testosterone in our house. :lol: 7.2 pounds, 21.25 inches long. He's the spitting image of my husband. I'm so smitten, it's not even funny.

I had him a week ago Friday, 3/15 after 2.5 total hours of labor. That was it!! His was by far the easiest pregnancy, labor, delivery and recovery. Cancer included. I'm already at my pre pregnancy weight at 11 days post partum. :shock:

He's nursing really well, I'm pumping like a dairy cow. Will have to swap from breast to formula as soon as I start treatment. We see his doctor this Friday for routine 2 week checkup, then I see my oncologist next Wednesday to get an idea of what is happening when. I *think* I get to wait until he's 6 weeks old before everything starts, but not positive since I had an uncomplicated vaginal delivery.

Thanks for thinking of me!! I keep checking in and leaving a tab open on my phone and then get distracted... :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19

stu
Posts: 1167
Joined: Sat Aug 17, 2013 5:46 pm

Re: Thinking of you AmyG

Postby stu » Tue Mar 26, 2019 2:58 pm

A very big welcome to the world Nicolas Reed . We have been willing you on every step of the way .

Mum you are unbelievable. So glad everything went well .

Somehow I just feel you are one of life’s survivors .

Enjoy the cuddles . How precious they are . As mum of older teenagers I miss those daily hugs . However every now and then my adult sons hug their mum . Xx
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Punky44
Posts: 334
Joined: Mon Oct 01, 2018 4:29 pm

Re: Thinking of you AmyG

Postby Punky44 » Tue Mar 26, 2019 4:05 pm

That’s so great!!! Congratulations!

You are A-mazing!!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9
6/28/19 Reversal and port out

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

lakeswim
Posts: 209
Joined: Sat Mar 31, 2018 9:37 am

Re: Thinking of you AmyG

Postby lakeswim » Tue Mar 26, 2019 4:50 pm

EIGHT?! And you trained for a marathon?

Cancer has no idea what it’s in for - getting mixed up with YOU! You will kick its butt!

Congratulations!!!!!
50 - F - Mom
RC - dgns 3/18 at age 49
Adenocarcinoma
10-11 cm frm anal verge ("large")
Stage 3a - T4N0M0
FOLFOX May -Sept '18
Capecetabine + Radiation - 28 sessions - Oct - Nov 2018
Jan 19 - MRI & flex sig show tumor gone
Mid-Feb 19 - MRI & flex sig show tumor gone
W&W

AmyG
Posts: 218
Joined: Tue Dec 25, 2018 8:08 pm

Re: Thinking of you AmyG

Postby AmyG » Tue Mar 26, 2019 4:53 pm

stu wrote:Enjoy the cuddles . How precious they are . As mum of older teenagers I miss those daily hugs . However every now and then my adult sons hug their mum . Xx



Our oldest is 20, followed by 19, 17, 14, 9, 4 and 2. The 19 year old recently joined the Navy and is stationed in Hawaii. He's realized how much he misses his mommy on a daily basis! The 20 year old still lives at home and is a total mommy's girl. Just like all the rest of them!! :lol:

I'm so unbelievably lucky.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19

User avatar
LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Thinking of you AmyG

Postby LPL » Tue Mar 26, 2019 5:10 pm

Oh.. thank you for update, for sharing this with us.
Big Congratulations :D
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

Lee
Posts: 5939
Joined: Sun Apr 16, 2006 4:09 pm

Re: Thinking of you AmyG

Postby Lee » Tue Mar 26, 2019 6:51 pm

Amy,

That is so TOTALLY AWESOME!! Congratulations to your new son, Nickolas Reed (what an awesome name BTW, We had a cat named Nickolas, he was an awesome guy. Had to be put down last year after 18 yrs). Anyway congratulations to you and your family.

Now kick that cancer into the next universe!!

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Lee
Posts: 5939
Joined: Sun Apr 16, 2006 4:09 pm

Re: Thinking of you AmyG

Postby Lee » Tue Mar 26, 2019 6:56 pm

AmyG wrote:Hi!!

He's nursing really well, I'm pumping like a dairy cow. Will have to swap from breast to formula as soon as I start treatment.



Can you pump and freeze some of your milk now? I understand he is a newborn requiring feeding every few hours, but is it possible to to pump some right after feeding and freeze that?
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

AmyG
Posts: 218
Joined: Tue Dec 25, 2018 8:08 pm

Re: Thinking of you AmyG

Postby AmyG » Tue Mar 26, 2019 7:57 pm

Lee wrote:Can you pump and freeze some of your milk now? I understand he is a newborn requiring feeding every few hours, but is it possible to to pump some right after feeding and freeze that?



Yup! Trying to build up a freezer stash in the next few weeks. I nursed all my babies at least a year, some a little longer. So the thought of swapping to formula and bottle feeding is outside of my skillset! But, in the long run he needs his mommy cancer free more than he needs to be exclusively breastfed. We'll figure it out!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19

WarriorSpouse
Posts: 195
Joined: Tue Aug 16, 2016 9:02 pm

Re: Thinking of you AmyG

Postby WarriorSpouse » Tue Mar 26, 2019 9:01 pm

Great news Amy G. Thank you for sharing it with us!
I love babies and large families too. It is so wonderful to read of your good news and to see everyone here enjoy it as well.
Congratulations!
WS
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot

Nohogirl
Posts: 114
Joined: Sun Oct 14, 2018 12:15 am

Re: Thinking of you AmyG

Postby Nohogirl » Tue Mar 26, 2019 9:12 pm

Awee congratulations. That's so cute. I am sure your new bundle of joy will give positive vibes throughout your treatment.
04/18 DH 49 Stage 2A T3N0M0 rectal cancer moderately differentiated.
05/18 chemorad. (Xeloda) 28 days
08/18 Surgery- 24 cm, including entire rectum out
Path -Stage II T2N0M0 moderate to poorly diff. adenocarcinoma
0 of 15 lymph nodes
No PNI
No LVI
Clear margins
10/18-02/19 8 cycles of Folfox
02/19 Pet Scan. NED
07/18 Pet Scan NED

Danielito82
Posts: 28
Joined: Sat Aug 11, 2018 1:53 pm

Re: Thinking of you AmyG

Postby Danielito82 » Wed Mar 27, 2019 12:56 am

Congratulations and a big welcome to the little Nicolas! !!
You are fantastic. .!!!
Always walk on!!!!!

brokenwings
Posts: 99
Joined: Mon Jan 07, 2019 1:50 am

Re: Thinking of you AmyG

Postby brokenwings » Wed Mar 27, 2019 7:26 am

All the best, Amy.
Enjoy your beautiful family and kick cancer's butt big time.

Hugs,

Paola
DX January 2019
Liberkulien Adenocarcinoma - Sigmoid colon
Met to right ovary or borderline cyst?
Obstruction during hospital stay.Temporary colostomy. Primary tumour still there.
Folfirinox: 6 cycles
CT Scan/PET Scan: ok for surgery
Surgery (CRS + HIPEC) scheduled for 04/29: not optimally resectable, surgery cancelled. Right ovary removed though...
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin).
06/25: 4th cycle
07/03: peritoneography
07/04: exploratory laparoscopy


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