It’s today (with update) Take down scheduled

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tminor5
Posts: 30
Joined: Wed Jun 13, 2018 11:46 am

It’s today (with update) Take down scheduled

Postby tminor5 » Thu Mar 21, 2019 12:59 pm

My husbands take down is scheduled for next Friday March 29. A little nervous. But I hope it will all go good. He is a bit more nervous but ready to start the next chapter. He then has his scan on June 10. Then he gets to heal and have a hip replacement in July sometime.
DH DX at 46  pT4a,pN1a CEA 1.6
5/25/18 ER suspected bowel obstruction, found infection and diverticulitis
5/27/18 Colonoscopy found colon cancer, couldn't insert stint to do chemo first
5/27/18 Surgery to remove 18" of colon and cancer 1/33 lymph nodes not seen on any near by organs, has colostomy because of infection could reattach after removing tumor
6/25/18 First FOLFOX chemo treatment (12 cycles)
11/26/18 Last chemo treatment
12/17/18 Colonoscopy showed surgeon got all cancer

tminor5
Posts: 30
Joined: Wed Jun 13, 2018 11:46 am

Re: It’s today (with update) Take down scheduled

Postby tminor5 » Fri Mar 29, 2019 1:20 pm

He’s been back there for almost 3 hours. They found a lot of adhesions. So the take down hasn’t even started yet (as of 50 min ago). They say he’s doing great. I’m just being a worry wart.
DH DX at 46  pT4a,pN1a CEA 1.6
5/25/18 ER suspected bowel obstruction, found infection and diverticulitis
5/27/18 Colonoscopy found colon cancer, couldn't insert stint to do chemo first
5/27/18 Surgery to remove 18" of colon and cancer 1/33 lymph nodes not seen on any near by organs, has colostomy because of infection could reattach after removing tumor
6/25/18 First FOLFOX chemo treatment (12 cycles)
11/26/18 Last chemo treatment
12/17/18 Colonoscopy showed surgeon got all cancer

User avatar
CRguy
Posts: 9928
Joined: Sun Feb 10, 2008 6:00 pm

Re: It’s today (with update) Take down scheduled

Postby CRguy » Fri Mar 29, 2019 3:59 pm

Sending POSI VIBES ++++++ to him

best wishes to you both
Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

tminor5
Posts: 30
Joined: Wed Jun 13, 2018 11:46 am

Re: It’s today (with update) Take down scheduled

Postby tminor5 » Fri Mar 29, 2019 4:26 pm

Thank you. I’ll let him know when I finally get to see him. He’s still back there it’s been 6 hours now. I know they started with the robot but said they had to open him up a bit more.
DH DX at 46  pT4a,pN1a CEA 1.6
5/25/18 ER suspected bowel obstruction, found infection and diverticulitis
5/27/18 Colonoscopy found colon cancer, couldn't insert stint to do chemo first
5/27/18 Surgery to remove 18" of colon and cancer 1/33 lymph nodes not seen on any near by organs, has colostomy because of infection could reattach after removing tumor
6/25/18 First FOLFOX chemo treatment (12 cycles)
11/26/18 Last chemo treatment
12/17/18 Colonoscopy showed surgeon got all cancer

Punky44
Posts: 321
Joined: Mon Oct 01, 2018 4:29 pm

Re: It’s today (with update) Take down scheduled

Postby Punky44 » Fri Mar 29, 2019 6:44 pm

Any update? Thinking of you! I was recently in this position waiting 6 hours during my mom’s surgery so I can relate to the anxiety.
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1
6/28/19 Reversal and port out

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

tminor5
Posts: 30
Joined: Wed Jun 13, 2018 11:46 am

Re: It’s today (with update) Take down scheduled

Postby tminor5 » Fri Mar 29, 2019 6:49 pm

Not what we expected. There was so much scar tissue and his rectum was stuck to his pelvis. When the dr was done with that he sent a “staple” up there to make sure it was ok. It didn’t come out the other side. So they had to open him up more. They did hook him up and the leak test passed. BUT he now has a illostomy so the other can heal. Because he said if he leaks with the reattach he will have a permanent colostomy. We did well with the colostomy hopefully he will do well with this. He said in about 8 weeks he will get this one reversed. He is still in recovery. He’s gonna be devastated.
DH DX at 46  pT4a,pN1a CEA 1.6
5/25/18 ER suspected bowel obstruction, found infection and diverticulitis
5/27/18 Colonoscopy found colon cancer, couldn't insert stint to do chemo first
5/27/18 Surgery to remove 18" of colon and cancer 1/33 lymph nodes not seen on any near by organs, has colostomy because of infection could reattach after removing tumor
6/25/18 First FOLFOX chemo treatment (12 cycles)
11/26/18 Last chemo treatment
12/17/18 Colonoscopy showed surgeon got all cancer

Punky44
Posts: 321
Joined: Mon Oct 01, 2018 4:29 pm

Re: It’s today (with update) Take down scheduled

Postby Punky44 » Fri Mar 29, 2019 7:49 pm

Oh no I’m sorry it didn’t go smoothly and that you have to deal with another reversal in the future. Glad it didn’t end in a permanent colostomy though.
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1
6/28/19 Reversal and port out

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

tminor5
Posts: 30
Joined: Wed Jun 13, 2018 11:46 am

Re: It’s today (with update) Take down scheduled

Postby tminor5 » Fri Mar 29, 2019 10:36 pm

He was pretty out of it when we finally got to see him. It was also pretty late. 7 hour surgery plus being there early and then recovery. He did ask about his surgery. When I told him about the new bag he asked so it can’t be fixed. So he was atleast glad when I told him this is just 8 weeks enough time for the other one to heal so it shouldn’t leak and it will take. But now he will have 3 surgeries this year. He was going to get his hip replaced later this summer.
DH DX at 46  pT4a,pN1a CEA 1.6
5/25/18 ER suspected bowel obstruction, found infection and diverticulitis
5/27/18 Colonoscopy found colon cancer, couldn't insert stint to do chemo first
5/27/18 Surgery to remove 18" of colon and cancer 1/33 lymph nodes not seen on any near by organs, has colostomy because of infection could reattach after removing tumor
6/25/18 First FOLFOX chemo treatment (12 cycles)
11/26/18 Last chemo treatment
12/17/18 Colonoscopy showed surgeon got all cancer

boxhill
Posts: 268
Joined: Fri Apr 06, 2018 11:40 am

Re: It’s today (with update) Take down scheduled

Postby boxhill » Sat Mar 30, 2019 10:25 am

Don't despair on the ultimate fix yet.

I have a very good friend who had a really dreadful case of diverticulitis, was in the ICU on a respirator for weeks, septic, multiple surgeries, came very, very close to dying. Was ultimately released from the hospital with an ostomy. After several months, that one was replaced with another in order to take pressure off the first. Her innards were a mess. Significant amounts of intestine removed, tons of scar tissue, much damaged tissue. Only one surgeon in our area would agree to try to reverse the ostomy. It was touch and go, but she succeeded.

Your husband must be very, very disappointed, but I hope things work out for him in the long run.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemicolectomy
11 of 25 nodes,5 of 5 mesentery nodes
5mm liver met removed
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED, 2mm indeterminate lung nodule
11/20/18 CT NED, Lung nodule calcified granuloma. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met and 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/5/19 Triphasic CT LNs shrunk to normal, Liver node stable
6/28/19 Keytruda paused, predisone for joint pain

tminor5
Posts: 30
Joined: Wed Jun 13, 2018 11:46 am

Re: It’s today (with update) Take down scheduled

Postby tminor5 » Fri Jun 14, 2019 3:08 pm

Thought I’d post an update. Roger had a barium test done to test for leaking. The barium didn’t go up far enough. So we got to visit the surgeon earlier this week. He said he could “see” a pin hole opening so he was sending us back for another barium type test. He had us go with his cell number so he could talk to the tech about exactly what he wanted done. In the mean time he said we should try to move up my husbands hip replacement, since this was gonna take a bit. So we did get that moved up to June 27. The surgeon office finally called today and said yes they can see everything is connected correctly and no leaks so to the gastroenterologist we will go to put a ballon in and open that pin hole up. That is being done next Thursday June 20. So he’s slowly getting there. We are just going with. We’d rather go slow and make sure no problems then rush it and have issues.
DH DX at 46  pT4a,pN1a CEA 1.6
5/25/18 ER suspected bowel obstruction, found infection and diverticulitis
5/27/18 Colonoscopy found colon cancer, couldn't insert stint to do chemo first
5/27/18 Surgery to remove 18" of colon and cancer 1/33 lymph nodes not seen on any near by organs, has colostomy because of infection could reattach after removing tumor
6/25/18 First FOLFOX chemo treatment (12 cycles)
11/26/18 Last chemo treatment
12/17/18 Colonoscopy showed surgeon got all cancer


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