AppleTree, It looks like you’ve been through a lot. My Onc only prescribed 8 rounds of Folfox before- as I had 5 weeks solid of 5FU when I was undergoing daily radiation. He added them together. It worked...I was NED for 10 years.
This go around, on Folfiri, I actually took a 3 week break after 8 rounds. I believe the scans plus low CEA indicated I could have stopped then. But the Onc always planned for 12 rounds. I had to do the last 4 rounds to reassure my wife.
God sent me a message that I will live another 15 years, so I trust that is true. However, I am trusting that He gave us medicine, science and good doctors to help us. I must admit I can’t simply cure myself. This cancer journey has helped strengthen my faith.
May God also comfort and strengthen all members of our Club.
5-08:Stage 3 Rectal: 6/14 Nodes
Ace Surgeon Removed 90%Rectum & lots of Colon-Full Incision
Ileo Rev'd @6 Mos.
FOLFOX 8 Cycles Done 1-09
Clear Scope 8-17; Clear CEA 2-18
Glory to God! Healed by prayers of many: for 10 years
7-18: tumor pressing against brain. Removed.
Metastatic to lung. CEA 6.9 Began Folfiri
CEA dropped to 4.5 after 1 dose of chemo!
After 8 rounds CEA=3.0,in range
After 3 week break CEA = 1.8
Finished 12 rounds of Folfiri.