Scan-time

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brokenwings
Posts: 147
Joined: Mon Jan 07, 2019 1:50 am

Scan-time

Postby brokenwings » Mon Mar 18, 2019 8:18 am

Dear friends,

Scan-time is here.

Thank God I had a mid-chemo CT scan that was sort of positive (nothing in lungs nor in liver, lymph nodes looking ok, peritoneal disease looking stable, CEA slightly down).

Now, after 4 rounds of bad-ass Folfirinox, I have another CT scan and a PET scan.

This morning I was feeling so anxious that I had to take a "happy pill" to get me through the CT. (I might take another one before my PET scan this afternoon).

So... what can I say? Stupid peritoneal carcinomatosis doesn't usually respond very well to systemic chemo, so I know I won't have a terrific response nor a miraculous shrinkage... Let's just hope it shrinks enough to get me to the OR...

Please send me good thoughts and prayers, they're very much needed :roll:

Hugs,

Paola
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy.
Folfirinox + Avastin: 6 cycles. Scans: partial response.
Surgery (CRS + HIPEC) 04/29: too much disease, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin). 8 cycles
10/31/2019: 11 hour-long Hipec + 6 weeks in hospital
12/30/2019: liver met
02/05/2020: reversal surgery. New peri mets discovered
March 2020: 5fu+Avastin
May 2020: fistula
Back to 1957: 5fu.
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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Scan-time

Postby LPL » Mon Mar 18, 2019 10:24 am

Hi Paola, scanxiety is no fun :(
Sending a Lot of Good thoughts your way!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets
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Koreysue
Posts: 258
Joined: Mon Apr 30, 2018 2:36 pm

Re: Scan-time

Postby Koreysue » Mon Mar 18, 2019 10:27 am

Scan time is HARD. Happy pills are GOOD. Hang in there!
I get some test results this afternoon and I’m freaked out, and also making use of some anxious meds. We do what we can to get through :D
Dx: 6/2017 stage 3 CC
Sigmoid, 2 nodes
CEA at dx: 6.1
Sigmoid Colectomy/folfox (last chemo (1/31/18)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/18 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/19 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5
CEA 5/21 4.2
CEA 10/21 3.4
colonoscopy 10/21 10mm polyp
CEA 4/22 3.7
CEA 7/22 3.8
CEA 12/22 4
CEA 1/22 3.2 and NED 5yr scan
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Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Scan-time

Postby Punky44 » Mon Mar 18, 2019 11:26 am

Sending you good vibes!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.
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Danielito82
Posts: 28
Joined: Sat Aug 11, 2018 1:53 pm

Re: Scan-time

Postby Danielito82 » Mon Mar 18, 2019 11:53 am

Sending good thoughts !!!
Buona fortuna! !!!!
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Eleda
Posts: 328
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Scan-time

Postby Eleda » Mon Mar 18, 2019 12:15 pm

Good luck
Fingers and toes crossed for u
ADELE X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th
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brokenwings
Posts: 147
Joined: Mon Jan 07, 2019 1:50 am

Re: Scan-time

Postby brokenwings » Mon Mar 18, 2019 1:12 pm

THANKS A LOT!!

I read your messages between scans and I felt so comforted ♡

It's really hard indeed. Psychologically is a terrible ordeal.

Now it's done and I have to wait until Wednesday to see my doctor and have the results.

Keep your fingers crossed and sending positive thoughts please!

@Koreysue: keep us posted! I hope everything goes fine.

Big hugs,
Paola
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy.
Folfirinox + Avastin: 6 cycles. Scans: partial response.
Surgery (CRS + HIPEC) 04/29: too much disease, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin). 8 cycles
10/31/2019: 11 hour-long Hipec + 6 weeks in hospital
12/30/2019: liver met
02/05/2020: reversal surgery. New peri mets discovered
March 2020: 5fu+Avastin
May 2020: fistula
Back to 1957: 5fu.
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Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: Scan-time

Postby Trying » Mon Mar 18, 2019 3:28 pm

Sending positive thoughts. My scans in 2 weeks and im already nervous. Perimets too
Your in my thoughts
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scan-time

Postby DarknessEmbraced » Tue Mar 19, 2019 10:27 am

I get anxious during scans and waiting for results too. I hope you get good scans!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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brokenwings
Posts: 147
Joined: Mon Jan 07, 2019 1:50 am

Re: Scan-time

Postby brokenwings » Tue Mar 19, 2019 4:22 pm

Thank you!

I'll be sending you good vibes as well, Nicole!

Hugs,

Paola
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy.
Folfirinox + Avastin: 6 cycles. Scans: partial response.
Surgery (CRS + HIPEC) 04/29: too much disease, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin). 8 cycles
10/31/2019: 11 hour-long Hipec + 6 weeks in hospital
12/30/2019: liver met
02/05/2020: reversal surgery. New peri mets discovered
March 2020: 5fu+Avastin
May 2020: fistula
Back to 1957: 5fu.
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