tbt4snow wrote:Thank you Pyro70. I have an option to go with local surgeon. But from what I read so far, the CRS is a very extensive procedure and you would benefit greatly if you go with an experienced surgeon. At MSK, I will have Dr. Nash. My local surgeon is board certified in 2013. I saw a negative review on the surgeon from vitals. com. That scared me off greatly. From your signature, you have done HIPEC twice. Did you have it done as MSK? You don't think HIPEC will help much with peri met from CC?
tbt4snow wrote:Just update on my CRS/HIPEC treatment plan. I'm scheduled to have this procedure done at MGH with Dr. James Cusack. I was offered to participate in the study using LUM imaging system for detecting cancer cells during the surgery. This study was done for Breast cancer ( https://clinicaltrials.gov/ct2/show/NCT03686215 ) and I will be the first to try for peritoneal surface Malignancies in CC patient.
I am nervous because the CRS is an extensive procedure and adding LUM015 dye to my body with unknown side effect then heated chemo?
I'm debating should I go with this study or opt out? Any suggestion?
tbt4snow wrote:Hi Pyro70,
I'm all set with the insurance concern. The trial specific for peri met is https://clinicaltrials.gov/ct2/show/NCT ... ell&rank=3 .
I raised my concern with the doctor and was told that they have not seen that the LUM015 affects any post-operative chemotherapy on Breast cancer patients.
Quote "We do not expect that the LUM015 will interfere with the effectiveness of the HIPEC treatment in any way, but we do not know for certain. Because the LUM015 is simply a dye, Dr. Cusack expects that the HIPEC treatment will be as effective as it would be if you did not have the LUM015 injection."
I am hopeful this technic is as effective to detect cancer cells in peritoneum as it is in breast cancer.
Just an update on my CRS/HIPEC. The procedure was 10 hours long. I was in hospital for a week. It's about 3 and half weeks out since the surgery and I'm still in a lots of pain.
My PCI at the outset of the procedure was 16 and at the completion of procedure was 1. There are .5 to 1mm fine discrete flat plaques involving the ileum that were unrespectable due to the extensive nature of the distribution of these plaques. This is not very encouraging. I'm seeing my surgeon today to see what the next step would be.
Best of luck for brokenwings. Hope all go well for you today.
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