The Colon Club

Scan in two weeks. Past two scans have been great. 8 tumots are gone. Any words of wisdom or comfort? Would the chemo usually still be effective if i started last june. I know you guys arent drs. Just looking for your experience to give me hope.

Sorry you still have to go through this for almost a year now. I've seen/read about patients who have managed their disease for years with various chemo cocktails. HOWEVER, your ultimate goal is to obviously try to rid your body of the cancer entirely and surgery is almost always the best strategy for doing so. Any reason why the doctors are not being more aggressive with your peritoneal metastasis?

I've also seen patients on here who have done a simultaneous procedure of HIPEC for peri met and liver resection surgery for liver metastases. I apologize that I don't recall the exact post but I've definitely seen it posted here. You might want to try "searching" forum posts.

I do not have any wisdom or advice, just wanted to say you are not alone. I have my cea check on Monday and am terrified. Almost can’t think of anything else.
Most likely you scan will be good, and my blood test good, but in the meantime we are stuck in worry.
Seems like the chemo has worked great for you.
Keep on keepin on,
Koreysue

Detox wrote:Sorry you still have to go through this for almost a year now. I've seen/read about patients who have managed their disease for years with various chemo cocktails. HOWEVER, your ultimate goal is to obviously try to rid your body of the cancer entirely and surgery is almost always the best strategy for doing so. Any reason why the doctors are not being more aggressive with your peritoneal metastasis?

I've also seen patients on here who have done a simultaneous procedure of HIPEC for peri met and liver resection surgery for liver metastases. I apologize that I don't recall the exact post but I've definitely seen it posted here. You might want to try "searching" forum posts.

They are waiting for my liver mets to be recectable at the same time. Im in canada so im not sure if processes are the same. Thank you for your reply.

I know nothing of liver mets, but I do know everything about scanxiety. It doesn't always help, but try to stay busy with tasks that don't let your mind wander. Spending time with family and friends, talking with coworkers, working with my foster cats, just generally doing anything that can get me out of my own head. People here before have told me to hang on to previous good results. The last two scans were great, there is no reason the third can't be great as well! Consider this a metaphorical hug, we're thinking of you and praying for another great result. <3

I hope you get good scans!*hugs*

Hi Trying ,

How are you getting on ? I have been thinking about you .

Take care,

Stu

Hi stu

I have ups and downs. I need a chemo break. I dont onow if these are common but my body is begging for a break. Hope you and your mom are well.

Trying wrote:Hi stu

I have ups and downs. I need a chemo break. I dont onow if these are common but my body is begging for a break. Hope you and your mom are well.

Just tell the doctor you need 1 cycle (or more) off, they’ll do it. It is a risk, he will tell you that, I’ve found if you feel life isn’t worth living on these drugs, you’ll probably stop taking them all together. So take a break, so you can continue in the future. I have also found with my nearly 4 years of dealing with this, things I’ll do and things I just will not, no matter what the doc says. I understand the risk, it gives me a sense of control.