Im nervous

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Trying
Posts: 149
Joined: Sun May 13, 2018 10:11 pm

Im nervous

Postby Trying » Wed Mar 13, 2019 7:01 pm

Scan in two weeks. Past two scans have been great. 8 tumots are gone. Any words of wisdom or comfort? Would the chemo usually still be effective if i started last june. I know you guys arent drs. Just looking for your experience to give me hope.
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets and peri metApril 2018
Folfox as of June 2018
Down to 2 mets in liver dec 2018.

Detox
Posts: 43
Joined: Fri Apr 28, 2017 5:27 pm

Re: Im nervous

Postby Detox » Wed Mar 13, 2019 9:19 pm

Sorry you still have to go through this for almost a year now. I've seen/read about patients who have managed their disease for years with various chemo cocktails. HOWEVER, your ultimate goal is to obviously try to rid your body of the cancer entirely and surgery is almost always the best strategy for doing so. Any reason why the doctors are not being more aggressive with your peritoneal metastasis?

I've also seen patients on here who have done a simultaneous procedure of HIPEC for peri met and liver resection surgery for liver metastases. I apologize that I don't recall the exact post but I've definitely seen it posted here. You might want to try "searching" forum posts.

Koreysue
Posts: 91
Joined: Mon Apr 30, 2018 2:36 pm

Re: Im nervous

Postby Koreysue » Wed Mar 13, 2019 9:23 pm

I do not have any wisdom or advice, just wanted to say you are not alone. I have my cea check on Monday and am terrified. Almost can’t think of anything else.
Most likely you scan will be good, and my blood test good, but in the meantime we are stuck in worry.
Seems like the chemo has worked great for you.
Keep on keepin on,
Koreysue
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8

Trying
Posts: 149
Joined: Sun May 13, 2018 10:11 pm

Re: Im nervous

Postby Trying » Wed Mar 13, 2019 9:51 pm

Detox wrote:Sorry you still have to go through this for almost a year now. I've seen/read about patients who have managed their disease for years with various chemo cocktails. HOWEVER, your ultimate goal is to obviously try to rid your body of the cancer entirely and surgery is almost always the best strategy for doing so. Any reason why the doctors are not being more aggressive with your peritoneal metastasis?

I've also seen patients on here who have done a simultaneous procedure of HIPEC for peri met and liver resection surgery for liver metastases. I apologize that I don't recall the exact post but I've definitely seen it posted here. You might want to try "searching" forum posts.

They are waiting for my liver mets to be recectable at the same time. Im in canada so im not sure if processes are the same. Thank you for your reply.
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets and peri metApril 2018
Folfox as of June 2018
Down to 2 mets in liver dec 2018.

crikklekay
Posts: 86
Joined: Thu Feb 15, 2018 9:47 am
Location: Richmond, VA

Re: Im nervous

Postby crikklekay » Thu Mar 14, 2019 8:38 am

I know nothing of liver mets, but I do know everything about scanxiety. It doesn't always help, but try to stay busy with tasks that don't let your mind wander. Spending time with family and friends, talking with coworkers, working with my foster cats, just generally doing anything that can get me out of my own head. People here before have told me to hang on to previous good results. The last two scans were great, there is no reason the third can't be great as well! Consider this a metaphorical hug, we're thinking of you and praying for another great result. <3
Caring for DH John, 41
DX: Colon Cancer, Sigmoid colon
Tumor type: Adenocarcinoma
Tumor grade: G2, Moderately differentiated w/invasion of visceral peritoneum
Stage IIIC
Positive lymph nodes: 6/22
Chemotherapy: FOLFOX (6)
12/17 ER and emergency surgery
02/18 Hospital w/ MSSA infected port, PICC line inserted, abdominal CT scan clear chest CT scan showed septic emboli & blood clots
03/18 Hospital w/ CDIFF
04/18 Chest CT scan clear
06/18 Colonoscopy Clear
08/18 CT Scan Clear, NEMD

DarknessEmbraced
Posts: 3250
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Im nervous

Postby DarknessEmbraced » Tue Mar 19, 2019 10:38 am

I hope you get good scans!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18


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