Possible world driving record for ULAR patient!

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Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

Possible world driving record for ULAR patient!

Postby Gravelyguy » Tue Mar 12, 2019 5:45 pm

Only because you people would get it and to give hope to those still fighting... it is spring break and I drove most of my family from MN to Florida. One day ended up being 15 hours because of so much rain from Illinois to Alabama. The only near “accident” was the final stretch where the rest of the family had fallen asleep and I just wanted to get there!

We have been enjoying the sun and surf after 50 inches of snow in February alone back home.

My son was worried that I would have to take naps like last year. So far I have outlasted the 12 year old!

Take care all!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!

User avatar
mobrouser
Posts: 174
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Possible world driving record for ULAR patient!

Postby mobrouser » Tue Mar 12, 2019 9:42 pm

Congratulations. Fortunately it's been relatively good driving weather this break. Enjoy the holiday and let us know if you'll be taking on Dakar next :lol:
Cheers 8)
mob
CC Dx 102017 age 58
Lap. right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX start Jan/18 end Aug/8 (felt like a year)
CEA - 01/15/18-2.8; 07/29/18-5.3; 09/19-2.4; 03/20-2.7; 09/20-2.9
CT scan 08/18 - Clear; 10/19 - Clear; * 10/20 - 8mm & 6mm nodules in liver
PET scan 09/18 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Possible world driving record for ULAR patient!

Postby Punky44 » Wed Mar 13, 2019 12:48 am

Awesome! Enjoy your Spring Break!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.


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