Knock on wood

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Posts: 100
Joined: Tue May 22, 2018 4:04 pm

Knock on wood

Postby Mohrfamily » Tue Mar 12, 2019 4:45 am

DH. Has 1/3 of the requests done for MSK. His new MRI shows everything unremarkable except of course the liver his largest liver lesion is 3x3 cm which if it's the same spot from a year ago it was 6x6 cm. Thankfully with all the prayers and his fighting attitude and strength things are still tending positively.

Thursday is PET day and next week meet with the surgeons for a new colonoscopy.

DH has me a little frustrated, he's mentioned that if his progress continues this way he doesn't want to return to MSK. I am not backing that choice after everything I've been told and read. He clarified that if MSK suggests the liver pump he would do it without question he is just wondering if there's anywhere closer that might be able to just get surgery done without it and continue mop up chemo.

It's no doubt been a slow process I'm trying to remind myself slow and steady wins the race. Also God works on a different time table.
DH dx officially stage IV with liver mets largest measuring 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
4/3/19 consult radiologist for possible radiation treatment.

Posts: 152
Joined: Thu Jul 05, 2018 6:03 pm

Re: Knock on wood

Postby Gravelyguy » Tue Mar 12, 2019 5:39 pm

That is great news! Continued prayers for you guys.

6/17 dx mCRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!

Posts: 216
Joined: Fri Apr 06, 2018 11:40 am

Re: Knock on wood

Postby boxhill » Thu Mar 14, 2019 11:15 pm

have him take a gander at the superlative survival rates of the HAI pump patients at MSK. :) It might change his mind!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemicolectomy
11 of 25 nodes,5 of 5 mesentery nodes
0.5 cm sub-capsular liver met removed
pT3 pN2b pM1
BRAF wild, KRAS G12D
5/4/18 FOLFOX
Neulasta 6/28/18
7/9/18 CT no masses or enlarged nodes, 2mm indeterminate lung nodule
11/20/18 CT same, Lung nodule likely calcified granuloma. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met and 2 lymph nodes in porta hepatis, CT review shows progression of nodes on FOLFOX
12/31/18 Keytruda

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