Postby mariane » Mon Mar 11, 2019 10:32 pm
My husband tried to make an appointment for me with Dr. Kemeny back in 2015. The first nurse refused him because I didn't have all the necessary scans. I had only abdominal and pelvis scans and resonance, no chest. I was recovering from the colon surgery in the hospital in Europe at that time. My husband called a few days later again. This time a very nice nurse answered and showed all my scans to Dr. Kemeny herself. Dr Kemeny wanted to see me immediately. A week later I was flying to NY. Some nurses are more open than others. I think you may try to call once more and ask nurses to show your medical documentation to Dr. Kemeny herself. On my first appointment I asked Dr. Kemeny whether she will refuse to treat me if my chest scans show extra hepatic disease. She promised to help me no matter what my scans showed. I know a few patients of dr. Kemeny who had ovarian and hepatic mets and they got the pump.
Good luck!
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016
I praise God for every day with my family!