HAI pump criteria

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
ginabeewell
Posts: 145
Joined: Wed Oct 24, 2018 10:30 am

Re: HAI pump criteria

Postby ginabeewell » Mon Apr 08, 2019 10:02 pm

Kbee816 wrote:
Butt wrote:Pump is not having any side effects like a systemic chemo does. No fatigue or anything.


That’s great! CAn I ask what limitations you have in terms of activity with the pump? I’m a fitness instructor/yoga teacher and am concerned that I won’t be able to keep my job if I get the HAI pump.


Dr K says no contact sports and no jogging. The surgeons are less restrictive in their recommendations if you are fit, I know several pump patients who say they run.
45 year old mom of twins (7) and lucky stepmom of 13 and 15 year olds
9/11/18 colonoscopy
9/17/18 DX stage 4 CRC with inoperable liver metastasis (largest 11 cm)
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 Routine scan picked up typhlitis - hospital stay for 7 days - but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6!
1/14/18 Resume chemo (rounds 6-8)
3/27/19 Surgery: HAI pump placement / colon resection; liver resection to follow
CEA 2.6!!

User avatar
juliej
Posts: 2940
Joined: Thu Aug 05, 2010 12:59 pm

Re: HAI pump criteria

Postby juliej » Tue Apr 09, 2019 6:04 pm

ginabeewell wrote:
Kbee816 wrote:
Butt wrote:Pump is not having any side effects like a systemic chemo does. No fatigue or anything.


That’s great! CAn I ask what limitations you have in terms of activity with the pump? I’m a fitness instructor/yoga teacher and am concerned that I won’t be able to keep my job if I get the HAI pump.


Dr K says no contact sports and no jogging. The surgeons are less restrictive in their recommendations if you are fit, I know several pump patients who say they run.

I was a competitive runner and also hiked and did rock climbing before I got the pump. I was allowed to run as long as I wore "supportive garments" (like compression running tights) to support the pump and agreed to go more slowly. However, I discussed all this with my oncologist and surgeon prior to having the pump implanted. The surgeon then implanted the pump a bit deeper so it wouldn't shift around when I worked out/ran. It helped that I was very fit prior to the surgery.

I had to avoid contact sports (like volleyball), scuba diving, and hot tubs. I would think yoga would be fine, but it's always best to check with the docs first.

Juliej
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 2/1/2019, CEA<1

User avatar
CRguy
Posts: 9811
Joined: Sun Feb 10, 2008 6:00 pm

Re: HAI pump criteria

Postby CRguy » Tue Apr 09, 2019 8:05 pm

juliej wrote:I had to avoid contact sports (like volleyball), scuba diving, and hot tubs. I would think yoga would be fine, but it's always best to check with the docs first.
Juliej

Just gotta say ..... except for that one time in Palm Springs ... :oops:
I have never really considered "hot tubbing" as a contact sport :shock: :mrgreen:

We need more info please !!!!
BUTT ... if it involves Bosch and bikinis ...
I'll give you a pass on this :mrgreen: :mrgreen: :mrgreen:

Yes I know ... mybad

Cheers and Harmony all
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

brokenwings
Posts: 54
Joined: Mon Jan 07, 2019 1:50 am

Re: HAI pump criteria

Postby brokenwings » Wed Apr 10, 2019 10:50 am

CRguy wrote:
juliej wrote:I had to avoid contact sports (like volleyball), scuba diving, and hot tubs. I would think yoga would be fine, but it's always best to check with the docs first.
Juliej

Just gotta say ..... except for that one time in Palm Springs ... :oops:
I have never really considered "hot tubbing" as a contact sport :shock: :mrgreen:

We need more info please !!!!
BUTT ... if it involves Bosch and bikinis ...
I'll give you a pass on this :mrgreen: :mrgreen: :mrgreen:

Yes I know ... mybad

Cheers and Harmony all
CRguy


I was having a cr**ppy day... But you really made me laugh!! Thanks for that :)
DX January 2019
Adenocarcinoma - Sigmoid colon
Met to right ovary or borderline cyst?
Obstruction during hospital stay, just after colonoscopy. Emergency surgery. Temporary colostomy. Primary tumour still there (French protocol...)
Folfirinox: 4 cycles
CT Scan/PET Scan: ok for surgery
Surgery (CRS + HIPEC) scheduled for 04/29: let's hope my surgeon doesn't find any nasty surprises when he opens me up...

User avatar
CRguy
Posts: 9811
Joined: Sun Feb 10, 2008 6:00 pm

Re: HAI pump criteria

Postby CRguy » Wed Apr 10, 2019 11:02 am

Glad I could help homie !
I'm sure JJ will get me back for that :shock:

Best wishes
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
juliej
Posts: 2940
Joined: Thu Aug 05, 2010 12:59 pm

Re: HAI pump criteria

Postby juliej » Thu Apr 11, 2019 6:22 pm

CRguy wrote:
juliej wrote:I had to avoid contact sports (like volleyball), scuba diving, and hot tubs. I would think yoga would be fine, but it's always best to check with the docs first.
Juliej

Just gotta say ..... except for that one time in Palm Springs ... :oops:
I have never really considered "hot tubbing" as a contact sport :shock: :mrgreen:

We need more info please !!!!
BUTT ... if it involves Bosch and bikinis ...
I'll give you a pass on this :mrgreen: :mrgreen: :mrgreen:

Yes I know ... mybad

Cheers and Harmony all
CRguy

Not sure I'll ever live down my Bosch and bikini post! Not sure I want to! Still proud my Bosch 36 Volt Litheon Hammer Drill made you boys giggle like a bunch of school girls :D :D :D

I think we need more info about that trip to Palm Springs though... :mrgreen: :mrgreen: :mrgreen:

xo,
JJ
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 2/1/2019, CEA<1

User avatar
CRguy
Posts: 9811
Joined: Sun Feb 10, 2008 6:00 pm

Re: HAI pump criteria

Postby CRguy » Thu Apr 11, 2019 9:50 pm

I think we need more info about that trip to Palm Springs though... :mrgreen: :mrgreen: :mrgreen:

Don't want to hijack a serious topic here .... BUTT
all I recall is that

it was a ...
dark and stormy night
all I recall is a red bikini and
some kind of Bosch ... sorry it is all
SO clouded in mystery now ....

:shock: :oops: :shock: :oops:

sorry ... what was the question ?
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: ginabeewell, Google [Bot] and 42 guests