weisssoccermom wrote:If it would make you feel better, go back and see the GI or consult with another doc. If you have a GP whom you trust, then talk to him/her. However, I do think that you need to be prepared that maybe you just have a benign polyp. Back in 2008, I was told that I had a polyp removed during my first scope after my surgery/chemo was finished. I admit to being nervous until the pathology report came back. When it came back as BENIGN, I didn't question it or worry that the pathologist didn't get it right or that there was more to it than a simple, benign polyp. Instead of looking for the worst case scenario, take a look at the positive side of this....you had a scope, they found a polyp and found it BEFORE it turned cancerous. That's the ideal, perfect situation.
Question for you though.....and I want you to think about it. Will you be relaxed if you see a GI and he tells you that everything is fine? Will you be able to calm down and move on with your life? You stated in your last post that you can't imagine going two years....what are you going to do when the doctor tells you that you were lucky and had a benign polyp? You'll likely not find another doctor to perform another scope on you in less than 2 years time and I can almost guarantee you that with a diagnosis of a benign polyp, your insurance company won't pay for another scope any earlier. Besides, too often, insurance companies are now saying that since you already have a 'history' of any type of polyps (benign) your next scope is NOT preventative and they almost certainly won't pay for it as though it is a preventative procedure.
del5del wrote:
Thank you for your kindness and advice. And those are good questions that I do need to think about. I guess I should make an appointment with my GI and just tell him of my concerns...ask him about the pathology (level of dysplasia, carcinoma in situ, etc.) and, also, how certain he is that the resection was complete since the polyp was so large, tubulovillous, on the right side, and he had to piecemeal it. Those are the 4 big things I've consistently read are not good signs at all for the future. I do remember when he called that he mentioned something about the followup to "make sure nothing was left behind" and something about "the clock would start all over". .........
weisssoccermom wrote:Please don't take this as being offensive but one thing that seems to be coming through loud and clear in your posts is that you seem to not believe that a polyp can't just be benign....no cancer in situ, NO level of dysplasia, no cancerce.
Maggie Nell wrote:del5del wrote:
Thank you for your kindness and advice. And those are good questions that I do need to think about. I guess I should make an appointment with my GI and just tell him of my concerns...ask him about the pathology (level of dysplasia, carcinoma in situ, etc.) and, also, how certain he is that the resection was complete since the polyp was so large, tubulovillous, on the right side, and he had to piecemeal it. Those are the 4 big things I've consistently read are not good signs at all for the future. I do remember when he called that he mentioned something about the followup to "make sure nothing was left behind" and something about "the clock would start all over". .........
The thing is your GI deals with thousands of biopsies every year and he has made a couple of remarks that your mind has latched onto and
you don't share in that complacency. Quite naturally you want to receive confirmation that nothing has been left behind and you're not sitting
on a ticking clock NOW. Unfortunately, the GI has planted the seeds of anxiety and just about everyone who comes to this forum can
tell stories about jerks with medical degrees; being fobbed off and misdiagnosed for years before getting a stage 4 diagnosis.
Absolutely schedule an appointment with your GI and get him to clarify the comments he has made and tell him that you have been
bothered by an element of vagueness in his reporting style. Give him some feedback as "make sure nothing was left behind" is not
good enough - that has planted a seed of doubt.
Trying wrote:Wish i was in your shoes. Im only 39 stage 4. We are all wishing for news as good as yours. Wishing you the best
boxhill wrote:Why don't you simply call them up and ask for a pathology review? Find another facility such as a large hospital and have your samples sent there. If you are this distraught about it, pay for it yourself if necessary.
KimT wrote:Perhaps you should talk to somebody about your anxiety. Lay off google.
It’s a bit rude coming to a board of cancer patients being so upset about a benign polyp. Every one of us would gladly trade places with you. I don’t mind questions from people who don’t have cancer and I would always encourage anyone to advocate for themselves. But a little sensitivity would be nice when you do so. To us, anything outside of a cancer diagnosis is good news. And we would be so thankful. You had a polyp. You got a colonoscopy and it removed a growth before it had a chance to become cancerous. Coming back in two years is a very reasonable course of action. Be thankful and move on.
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