Seeking advice of colorectal cancer Survivors

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disissue
Posts: 2
Joined: Fri Mar 08, 2019 3:51 am

Seeking advice of colorectal cancer Survivors

Postby disissue » Fri Mar 08, 2019 4:01 am

Dear all,

Bf at 56y.o diagnosed with stage 3 colorectal cancer spreaded to lymph nodes. Surgery just done and starting chemotherapy in two weeks time.

May i know what supplements are Good to combat side effects of chemo?

Please Share your experiences of supplements taken during your chemo sessions and what has helped u through the rough journey.

Thank you

boxhill
Posts: 216
Joined: Fri Apr 06, 2018 11:40 am

Re: Seeking advice of colorectal cancer Survivors

Postby boxhill » Fri Mar 08, 2019 11:33 am

Which chemo regimen?

There are things one can take which are thought to help lessen the neuropathy associated with Oxaliplatin, for example, but if s/he isn't getting oxi there's no point.

By "supplements" is it safe to assume that you are talking about things other than prescription anti-nausea drugs, and also not over the counter drugs commonly used, such as immodium for diarrhea and various stool-softeners and laxatives? You mean things like CBD oil, Vitamin Bcomplex, L-Glutamine, et al?

If you clarify the chemo, for example FOLFOX or FOLFIRI, people can be more helpful.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemicolectomy
11 of 25 nodes,5 of 5 mesentery nodes
0.5 cm sub-capsular liver met removed
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28/18
7/9/18 CT no masses or enlarged nodes, 2mm indeterminate lung nodule
11/20/18 CT same, Lung nodule likely calcified granuloma. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met and 2 lymph nodes in porta hepatis, CT review shows progression of nodes on FOLFOX
12/31/18 Keytruda

Pyro
Posts: 197
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Seeking advice of colorectal cancer Survivors

Postby Pyro » Sun Mar 10, 2019 8:05 am

Medical marijuana, and not just CBD.
Aug 2015- Diag Stage 4 CC with mets to liver (38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not a surgery candidate for liver
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery, Dr. Vauthey
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda, CEA @30(3), shit still here

Tri girl
Posts: 10
Joined: Sun Aug 06, 2017 10:26 pm

Re: Seeking advice of colorectal cancer Survivors

Postby Tri girl » Sun Mar 10, 2019 4:19 pm

My mom is starting chemo on Wednesday. Folfox. She has mets to liver and lungs. I posted a topic wondering what people thought of Marinol (medical marijuana) to reduce side effects of chemo. I hope people respond with ideas to reduce side effects of Oxi.

Thanks.

crikklekay
Posts: 89
Joined: Thu Feb 15, 2018 9:47 am
Location: Richmond, VA

Re: Seeking advice of colorectal cancer Survivors

Postby crikklekay » Mon Mar 11, 2019 12:08 pm

All I remember is the Oncologist mentioning not to take any supplements that might cover up the effects of neuropathy. His general doctor said to take vitamin B to help the neuropathy but the Oncologist overruled, saying that it could mask the actual damage being done and she needed to know how bad it was so she could lower the dosage accordingly.

Good luck!
Caring for DH John, 41
DX: Colon Cancer, Sigmoid colon
Tumor type: Adenocarcinoma
Tumor grade: G2, Moderately differentiated w/invasion of visceral peritoneum
Stage IIIC
Positive lymph nodes: 6/22
Chemotherapy: FOLFOX (6)
12/17 ER and emergency surgery
02/18 Hospital w/ MSSA infected port, PICC line inserted, abdominal CT scan clear chest CT scan showed septic emboli & blood clots
03/18 Hospital w/ CDIFF
04/18 Chest CT scan clear
06/18 Colonoscopy Clear
08/18 CT Scan Clear, NEMD

radnyc
Posts: 353
Joined: Tue Apr 06, 2010 6:32 pm

Re: Seeking advice of colorectal cancer Survivors

Postby radnyc » Mon Mar 11, 2019 2:51 pm

What I believe helped me through chemo were three things: exercise, walking or running, acupuncture really helped and Coriolus versicolor or Turkey tail mushroom supplements. There are a few brands out there, but this is the one I used and still use: Mushroom science, https://mushroomscience.com/coriolus-super-strength/.

As always check with your oncologist first!

Peace
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15

disissue
Posts: 2
Joined: Fri Mar 08, 2019 3:51 am

Re: Seeking advice of colorectal cancer Survivors

Postby disissue » Tue Mar 19, 2019 2:39 am

Is It insane of not going to chemo for stage 3 colon cancer? Few days ago went for CT scan prior to chemo and result was clear. Chemo will start on 21st and there will be a total 8 sessions. Extremely fearful of secondary cancers or other permanent Damages caused By chemo. What r the chances?


Thanks

zephyr
Posts: 216
Joined: Thu Aug 18, 2016 7:31 am

Re: Seeking advice of colorectal cancer Survivors

Postby zephyr » Tue Mar 19, 2019 1:55 pm

disissue wrote:Is It insane of not going to chemo for stage 3 colon cancer?


In my opinion, yes.
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, MSS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
April-2019 Xeloda + Avastin

boxhill
Posts: 216
Joined: Fri Apr 06, 2018 11:40 am

Re: Seeking advice of colorectal cancer Survivors

Postby boxhill » Tue Mar 19, 2019 2:07 pm

Yes, from my perspective it is unacceptably risky not to do adjuvant therapy of some kind with Stage 3 cancer.

But again I will ask, WHAT KIND OF THERAPY/CHEMO is proposed??

Answer that simple question and you can get much more valuable feedback. All chemo regimens and therapies are not the same.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemicolectomy
11 of 25 nodes,5 of 5 mesentery nodes
0.5 cm sub-capsular liver met removed
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28/18
7/9/18 CT no masses or enlarged nodes, 2mm indeterminate lung nodule
11/20/18 CT same, Lung nodule likely calcified granuloma. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met and 2 lymph nodes in porta hepatis, CT review shows progression of nodes on FOLFOX
12/31/18 Keytruda

Cured
Posts: 517
Joined: Thu Nov 27, 2008 10:53 pm
Location: MO

Re: Seeking advice of colorectal cancer Survivors

Postby Cured » Tue Mar 19, 2019 3:45 pm

Disissue- If it is in the lymph nodes, one NEEDS Adjunct therapy. No question. Micro tumors have floated in the bloodstream and you need to kill them off before they find a ‘home’ to grow - thus Stage 4.

I have done both Folfiri and Folfiri. They aren’t that bad. Much better than dying. So you endure some fatigue, diarrhea & neuropathy.

SUPLEMENTS:
I regularly use Konsyl pfsyllium fiber. Vitamin D. Krill oil. Aspirin (known prophylactic for colon cancer) Garlic tablet. Turmeric. Drink Green Tea.

Wishing you comfort and faith.
5-08:Stage 3 Rectal: 6/14 Nodes
Ace Surgeon Removed 90%Rectum & lots of Colon-Full Incision
Ileo Rev'd @6 Mos.
Radiation+5fu Pre-Surgery
FOLFOX 8 Cycles Done 1-09
Clear Scope 8-17; Clear CEA 2-18
Glory to God! Healed by prayers of many: for 10 years
7-18: tumor pressing against brain. Removed.
Metastatic to lung. CEA 6.9 Began Folfiri
CEA dropped to 4.5 after 1 dose of chemo!
After 8 rounds CEA=3.0,in range
After 3 week break CEA = 1.8
Finished 12 rounds of Folfiri.

Ron50
Posts: 686
Joined: Fri Feb 10, 2006 7:04 pm

Re: Seeking advice of colorectal cancer Survivors

Postby Ron50 » Tue Mar 19, 2019 4:10 pm

Hi Disissue,
I was dxed with an aggressive stage3c into six nodes. Right from the start I chose to just do whatever the doctors told me to do and although I have issues from chemo at the time I made up my mind that there would be no regrets with whatever I chose to do. I had 48 sessions of chemo , every Tuesday for nearly a year. I was 48 at dx and next month I turn 69 , still cancer free. I still work four days a week and go out fishing in my 4 meter kayak every time I get the chance. Best of luck with your treatment, Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo


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