stu wrote:Hi Momserati,
Just want to reach out to you as that is a very difficult situation you are in . Watching someone you love endure so much is heartbreaking plus parenting children under pressure too . Not easy at all .
Where are you located ? It is a shame he had to come off his clinical trial for Immuotherapy . Certainly there is some positive results with it .
I think in cancer care there is often a tipping point where the body starts to decompensate with the disease and the treatment . Up until that point anything is possible .If the Doctor is offering treatment they must feel there is a clinical benefit .
What are your own thoughts as you know him best ?
Thinking of you ,
We are located in Warren NJ and seen by Dr Martin Gutierrez at Hackensack Cancer Center. he's been losing weight lately almost no appetite but once in a while he has days where he eats a little bit better and gets out of bed, hangs out with us for a little bit in the leaving room but I do hate that the kids get to witness the pain ( he makes noises ) and we can't let the kids make too much noise or run around as the pain makes him intolerant to noises and very impatient with everyone. The other concern I have is how to prepare the children in case something does happen to him. They are aware he has cancer but unaware of the magnitude of his disease. i do not want them to suffer in advance and do not know what the best approach is.
Some days I look at him and have a feeling that death is close, others he looks better and my hope that he will be ok comes back. I keep looking for examples of cases like him with success stories but as I mentioned in my previous post I can never find patients with such disease progression.
I appreciate the replies and will keep coming here for support.