Thanks for looking, my name is Matt and I’ve been around a while, just started posting regularly again. I have a question for those of you with a permanent ostomy and all of the back door removed(anus). I am in constant pain back there, and it’s getting worse. I’ve been to specialist, I’ve asked my MD Anderson docs, I tried acupuncture through marijuana with fentanyl patches in between. If it breaks through everything I have, I’m gonna have to go to the ER! I’ve been told it’s scar tissue, and there isn’t much they can do. Does anyone else have this?
I start Keytruda on Monday.........
Aug 2015- Diag Stage 4 CC with mets to liver (38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not a surgery candidate for liver
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery, Dr. Vauthey
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jan 2017-perm colost @MDA
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Mar 2019 - Keytruda, CEA @30(3), shit still here