Preparing a facts & to-do-list for "newcomers"?

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O Stoma Mia
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Joined: Sat Jun 22, 2013 6:29 am

Re: Preparing a facts & to-do-list for "newcomers"?

Postby O Stoma Mia » Sat Apr 06, 2019 11:56 pm

AmyG wrote:... Standard chemo protocols?

At the beginning, just after diagnosis, it would be good if the newcomer could become familiar with the range of medications that have been approved for use with colorectal cancer. There are about a dozen of these at this point in time. Some are used separately, and some are used in combination. Some are used mainly for advanced, metastatic cancer, while others are used mainly for early stage, non-metastatic cancer.

    Drugs Approved in U.S. for Colorectal Cancer
  1. Avastin (Bevacizumab)
  2. Camptosar (Irinotecan Hydrochloride)
  3. Cyramza (Ramucirumab)
  4. Eloxatin (Oxaliplatin)
  5. Erbitux (Cetuximab)
  6. 5-FU (Fluorouracil Injection)
  7. Fusilev (Leucovorin Calcium)
  8. Keytruda (Pembrolizumab)
  9. Lonsurf (Trifluridine and Tipiracil Hydrochloride)
  10. Vectibix (Panitumumab)
  11. Xeloda (Capecitabine)
  12. Yervoy (Ipilimumab)
  13. Zaltrap (Ziv-Aflibercept)
    Drug Combinations Used in Colorectal Cancer
  1. FOLFIRI
  2. FOLFIRINOX
  3. FOLFIRINOX+AVASTIN
  4. FOLFIRI+AVASTIN
  5. FOLFIRI+ERBITUX
  6. FOLFOX
  7. FOLFOX+AVASTIN
  8. 5FU+LV
  9. XELIRI
  10. XELOX(CAPEOX)

rp1954
Posts: 1478
Joined: Mon Jun 13, 2011 1:13 am

Re: Preparing a facts & to-do-list for "newcomers"?

Postby rp1954 » Sun Apr 07, 2019 9:42 am

O Stoma Mia wrote:
AmyG wrote:... Standard chemo protocols?

I would suggest some improvements with a more global view of the best or most promising drugs.

    Drugs Approved in U.S. for Colorectal Cancer . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .Drugs Approved overseas for Colorectal Cancer
  1. Avastin (Bevacizumab)
  2. Camptosar (Irinotecan Hydrochloride) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. .tegafur - uracil (UFT)
  3. Cyramza (Ramucirumab) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. . tegarfur gimeracil and oteracil potassium
  4. Eloxatin (Oxaliplatin) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ..Polysaccharide K [PSK]
  5. Erbitux (Cetuximab) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ..(hot water extract of Trametes Coriolus versicolor)
  6. 5-FU (Fluorouracil Injection)
  7. Fusilev (Leucovorin Calcium) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .....Drugs with significant off label promise
  8. Keytruda (Pembrolizumab)
  9. Lonsurf (Trifluridine and Tipiracil Hydrochloride) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ..cimetidine
  10. Vectibix (Panitumumab) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. . . . . . . ....aspirin
  11. Xeloda (Capecitabine) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. . . . . . . . . . . . . . . . ...celecoxib
  12. Yervoy (Ipilimumab) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
  13. Zaltrap (Ziv-Aflibercept)
    Drug Combinations Used in Colorectal Cancer . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ..Combinations with significant promise
  1. FOLFIRI . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ..metronomic UFT + LV
  2. FOLFIRINOX . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. metronomic UFT + PSK + cimetidine
  3. FOLFIRINOX+AVASTIN . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. . . . . . . . . . . . . . .. . . . . ..metronomic Xeloda + celecoxib
  4. FOLFIRI+AVASTIN
  5. FOLFIRI+ERBITUX
  6. FOLFOX
  7. FOLFOX+AVASTIN
  8. 5FU+LV
  9. XELIRI
  10. XELOX(CAPEOX)
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now mostly IV C & no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper to almost nothing mid 2018

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O Stoma Mia
Posts: 1600
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Re: Preparing a facts & to-do-list for "newcomers"? wet wipes

Postby O Stoma Mia » Mon Apr 08, 2019 10:39 pm

WARNING: Some newcomers may not realize that the so-called "flushable wet wipes" are not really flushable:
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=43946&p=314621#p314621

In addition, wet wipes are not the best thing to use, especially on tender, irradiated skin, because they are too rough and can exacerbate existing skin problems. It's better to use a jet of warm water for clean-up.
.

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O Stoma Mia
Posts: 1600
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Re: Preparing a facts & to-do-list for "newcomers"?

Postby O Stoma Mia » Fri Apr 12, 2019 1:49 pm

Sometimes newcomers are confused about the differences between genetic testing and genomic testing. This distinction is an important one, especially for those diagnosed with advanced CRC, where it will be essential to do genomic testing on the tumor to help determine the best second-line regimens to try.

The distinction is discussed and clarified in the following thread:

https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=59347&p=470282#p470301

Genetic testing identifies abnormalities or predispositions we have been born with, and how these might affect our health.

Genomic testing refers to the examination of unique abnormalities or mutations that occur in the cancer. Some or all of these mutations may be driving the cancer to grow. In theory, targeting these would be a way to control the cancer. With genomic testing, we can reveal the genomic makeup of abnormalities within the cancer tissue. In other words, for some patients, more targeted precision may now be possible by identifying the genetic profile of a tumor and designing treatment options specifically for that person’s cancer.

Ref: https://wtop.com/cancer-qa/2015/01/difference-genetic-testing-vs-genomic-testing/

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O Stoma Mia
Posts: 1600
Joined: Sat Jun 22, 2013 6:29 am

Re: Preparing a facts & to-do-list for "newcomers"?

Postby O Stoma Mia » Sun Apr 14, 2019 1:25 pm

What I've noticed is that some newcomers here are not very familiar with the full range of options available to them on this Forum. Once a newcomer has registered here, he/she will have their own User Control Panel (UCP) where they can customize many features. These features are available each time you log in. However, these features are not accessible if you decide to browse the forum without logging in.

For those who are interested in further customizing their login sessions, here is a list of some of the UCP features that can be accessed by registered users:

List of forum options

Here is a summary of where some the main features are located in the software:

User Control Panel http://coloncancersupport.colonclub.com/ucp.php
Overview
Profile
Board Preferences
Private Messages
Friends & Foes
Profile
Logout http://coloncancersupport.colonclub.com/ucp.php?mode=logout

==
Quick Links

Your posts http://coloncancersupport.colonclub.com/search.php?search_id=egosearch
New posts http://coloncancersupport.colonclub.com/search.php?search_id=newposts
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LPL
Posts: 586
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Preparing a facts & to-do-list for "newcomers"?

Postby LPL » Mon Apr 15, 2019 11:29 am

Thank you for all that info OSM <3
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets


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