Hello all,
Looking to gather stories of successful users of immunotherapy in Canada. Please share your story here. Or contact me through the PM button. It would be neat to get a group together for potentially lobbying for faster approval.
Thanks,
Beth
Canadians and Immunotherapy
-
Stewsbetty
- Posts: 170
- Joined: Thu Jul 14, 2016 7:08 am
Canadians and Immunotherapy
42yo At diagnosis. Female in BC, Canada
Dx: CC ascending
Right Hemi colectomy 06/16 clear margins
Adenocarcinoma 6cm High Grade
pT3 pN2a Stage 3
10 out of 16 lymph involved
MSI-h, Kras mut, Braf wild
Finished chemo Feb. 2017
PET scan showing active area April 2017
July 2017 CT showing LN mass and spread to other LN
Stage 4
Aug 2017 failed Fofiri
Sept 2017 keytruda scans every 3 months showing shrinkage and stability
November 2018 CT shows only 1 small tumour left
September 2019 clear CT finally NED!!!
Dx: CC ascending
Right Hemi colectomy 06/16 clear margins
Adenocarcinoma 6cm High Grade
pT3 pN2a Stage 3
10 out of 16 lymph involved
MSI-h, Kras mut, Braf wild
Finished chemo Feb. 2017
PET scan showing active area April 2017
July 2017 CT showing LN mass and spread to other LN
Stage 4
Aug 2017 failed Fofiri
Sept 2017 keytruda scans every 3 months showing shrinkage and stability
November 2018 CT shows only 1 small tumour left
September 2019 clear CT finally NED!!!
Re: Canadians and Immunotherapy
Good on you . I have been raising it here too . We are behind in Bowel cancer but keeping up in other primaries. So annoying . Then I noticed a trial for Immuotherapy for MMS patients which I assume is the High Tumour Mutation Burden . Not only that but it’s my city so I am off and running putting the news out there .
We have to influence where we can .
Stu
We have to influence where we can .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .
-
WarriorSpouse
- Posts: 220
- Joined: Tue Aug 16, 2016 9:02 pm
Re: Canadians and Immunotherapy
https://www.fda.gov/Drugs/InformationOn ... 577093.htm
This is from the U.S. Food and Drug Administration. I hope by showing this, it can "prime the pump" for information that you are seeking in Canada. Together, the free world should be able to work in synergy on this issue.
Good luck and best wishes on your research.
WS
This is from the U.S. Food and Drug Administration. I hope by showing this, it can "prime the pump" for information that you are seeking in Canada. Together, the free world should be able to work in synergy on this issue.
Good luck and best wishes on your research.
WS
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot
Re: Canadians and Immunotherapy
Just a little light reading for folks to get up to speed
Google search = immunotherapy Canada
I will link this topic to the Calling ALL Colorectal CANUCKS ! topic
and our current Adjuvant immunotherapy topic
Here is a search specifically for BC Cancer Agency immunotherapy
PMH Toronto will also have a good set of resources.
Cheers all
CRguy
Google search = immunotherapy Canada
I will link this topic to the Calling ALL Colorectal CANUCKS ! topic
and our current Adjuvant immunotherapy topic
Here is a search specifically for BC Cancer Agency immunotherapy
PMH Toronto will also have a good set of resources.
Cheers all
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Re: Canadians and Immunotherapy
As far as I know, immunotherapy has yet to be approved in Canada for msi-high CRC cases or regular ones for that matter .
Though oncologists can get approval on case to case basis.
Hopefully, situation will improve soon and immunotherapy drugs such as nivolumab and keytruda are approved in Canada.
Though oncologists can get approval on case to case basis.
Hopefully, situation will improve soon and immunotherapy drugs such as nivolumab and keytruda are approved in Canada.
46yo M msi-high Lynch +ve
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes ,onset of multi nodules in liver
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
CT all clear exc a nodule in Lung. liver norm
1/18 3.6
Aspirin start
6/18 1.5 CT clear
12/18 1.1 NED
1/20 NED Opdivo stop
8/23 1.0 All ok
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes ,onset of multi nodules in liver
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
CT all clear exc a nodule in Lung. liver norm
1/18 3.6
Aspirin start
6/18 1.5 CT clear
12/18 1.1 NED
1/20 NED Opdivo stop
8/23 1.0 All ok
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