O/T but I completed my half marathon!

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
LPL
Posts: 519
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: O/T but I completed my half marathon!

Postby LPL » Mon Feb 11, 2019 5:02 pm

GrouseMan wrote:Congratulations. - My wife would have given you a big thumbs up. She was a long time runner - Joined her HS Boys CC team when there were no such thing as girls CC. Ran 5, 10K's and half marathons and was training for a marathon when she was diagnosed. The fatigue from Chemo ended her running. She tried to do a 10 K trail run about 7 months after her resection and between rounds of FolFox plus Avastin, but the trails were much more brutal than she thought they would be and she had to pull the plug at the 5K mark. After that she never ran again. I think this was probably the lowest part of her life prior to the end. Still; she remained active just no longer a runner. Ran and trained her dogs, rode her horse and judged field trial events to within a few of weeks of her passing.

GrouseMan, I wish I had meet your wife. It sounds as she was a wonderful person! Every time you have talked about her I have wanted to say that. Finally I said it now! Warm hugs & Thank you for staying here on ColonClub, helping us ’on the journey’ (as CRguy says).
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

AmyG
Posts: 40
Joined: Tue Dec 25, 2018 8:08 pm

Re: O/T but I completed my half marathon!

Postby AmyG » Mon Feb 11, 2019 5:21 pm

I wish I had the eloquence and grace to convey my feelings after reading about your wife.

Since I don't, I'll just tell you that she sounds like an amazing woman and I would have been a better person for having known her. I'm sorry I didn't get the chance.
42 dx @ 9wks pregnant w/baby #8 8/18
Originally thought to be stage 2, no lymphnodes involved 9/18
Spot on liver found prior to bowel resection 9/18
Liver biopsy, it's malignant 12/18
Stage IV, 1 liver met 4.7cm
2019 plan is to deliver baby early and start FOLFOX w/Avastin

lakeswim
Posts: 182
Joined: Sat Mar 31, 2018 9:37 am

Re: O/T but I completed my half marathon!

Postby lakeswim » Tue Feb 12, 2019 1:21 pm

WOW! WOW! Wow! CONGRATS!!!! WAY TO GO!

p.s. I'd rather run in dry single digits than in the 30's and wet! (Forget the rest of your major challenges for a moment - just that is incredible!)
50 - F
Mom to 2 teens
RC - dgns 3/18 at age 49
Adenocarcinoma
10-11 cm frm anal verge ("large")
Stage 3a - T4N0M0
FOLFOX May -Sept '18
Capecetabine + Radiation - 28 sessions - Oct - Nov 2018
Jan 19 - Tumor gone but determining next steps

SGNYC
Posts: 34
Joined: Mon Sep 03, 2018 9:20 pm

Re: O/T but I completed my half marathon!

Postby SGNYC » Tue Feb 12, 2019 4:01 pm

Congrats Amy!!! You’re amazing and your tenacity is an incredible asset as you continue on this path of healing!!!!
Wife to DH, 44
DX July 18 - RC at Rectosigmoid
Adenocarcinoma, Mod diff
T3N1M1
Stage IV (but MSK said not a true Stage IV at Dx)
Pos nodes: 1/18
1 Liver Met and 1 Lung Met - liver Met dead tissue at surgery, hence MSK M1 status
Baseline CEA value of 25, now 4.7 - normal per MSK
LAR (Robotic)/Liver resect(dead tissue), VATS lung - clear margins
Temp Ileo- Reversal Feb 19
Folfox - 5 Rounds Neoadj, 3 rounds Adj, then discontinued Oxali and 4 rounds just 5FU
NED Feb 2019 - clear contrast CT, clear contrast MRI

Punky44
Posts: 203
Joined: Mon Oct 01, 2018 4:29 pm

Re: O/T but I completed my half marathon!

Postby Punky44 » Tue Feb 12, 2019 4:10 pm

You are INCREDIBLE!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Trying total neoadjuvant therapy—chemo first, then short course radiation, then surgery
Completed 8 rounds of neoadjuvant Folfox 11/5/18 - 2/11/19
Current CEA 7.0

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

jenbklyn
Posts: 2
Joined: Sat Nov 17, 2018 7:11 am

Re: O/T but I completed my half marathon!

Postby jenbklyn » Tue Feb 12, 2019 7:12 pm

AmyG wrote:
jenbklyn wrote:Have been wondering about whether I'll be able to do the half marathon that I have on the calendar for May (will be in between radation and surgery) and you are giving me a ton of hope!


Yes. Yes you can. I believe in you. :D

I signed up for a race series, I need to complete 7 more half marathons between now and the end of next year. I'm hoping to be able to complete my next one this September, but have zero idea what to expect with chemo and possibly a liver resection. No clue if it would be open or not.



Thanks for the positive thoughts! based on your record so far, I believe in your ability to power through your series :!: :!:
51 F DX oct/18
4cm, mod-poor differentiated
~10cm from av straddling rectum/sigmoid
T4a N+ M0,
11/8 started round 1 of 8 rounds of FOLFOX
To be followed by CRT and then surgery


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 39 guests