O/T but I completed my half marathon!

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LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: O/T but I completed my half marathon!

Postby LPL » Mon Feb 11, 2019 5:02 pm

GrouseMan wrote:Congratulations. - My wife would have given you a big thumbs up. She was a long time runner - Joined her HS Boys CC team when there were no such thing as girls CC. Ran 5, 10K's and half marathons and was training for a marathon when she was diagnosed. The fatigue from Chemo ended her running. She tried to do a 10 K trail run about 7 months after her resection and between rounds of FolFox plus Avastin, but the trails were much more brutal than she thought they would be and she had to pull the plug at the 5K mark. After that she never ran again. I think this was probably the lowest part of her life prior to the end. Still; she remained active just no longer a runner. Ran and trained her dogs, rode her horse and judged field trial events to within a few of weeks of her passing.

GrouseMan, I wish I had meet your wife. It sounds as she was a wonderful person! Every time you have talked about her I have wanted to say that. Finally I said it now! Warm hugs & Thank you for staying here on ColonClub, helping us ’on the journey’ (as CRguy says).
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

AmyG
Posts: 218
Joined: Tue Dec 25, 2018 8:08 pm

Re: O/T but I completed my half marathon!

Postby AmyG » Mon Feb 11, 2019 5:21 pm

I wish I had the eloquence and grace to convey my feelings after reading about your wife.

Since I don't, I'll just tell you that she sounds like an amazing woman and I would have been a better person for having known her. I'm sorry I didn't get the chance.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19

lakeswim
Posts: 209
Joined: Sat Mar 31, 2018 9:37 am

Re: O/T but I completed my half marathon!

Postby lakeswim » Tue Feb 12, 2019 1:21 pm

WOW! WOW! Wow! CONGRATS!!!! WAY TO GO!

p.s. I'd rather run in dry single digits than in the 30's and wet! (Forget the rest of your major challenges for a moment - just that is incredible!)
50 - F - Mom
RC - dgns 3/18 at age 49
Adenocarcinoma
10-11 cm frm anal verge ("large")
Stage 3a - T4N0M0
FOLFOX May -Sept '18
Capecetabine + Radiation - 28 sessions - Oct - Nov 2018
Jan 19 - MRI & flex sig show tumor gone
Mid-Feb 19 - MRI & flex sig show tumor gone
W&W

SGNYC
Posts: 35
Joined: Mon Sep 03, 2018 9:20 pm

Re: O/T but I completed my half marathon!

Postby SGNYC » Tue Feb 12, 2019 4:01 pm

Congrats Amy!!! You’re amazing and your tenacity is an incredible asset as you continue on this path of healing!!!!
Wife to DH, 44
DX July 18 - RC at Rectosigmoid
Adenocarcinoma, Mod diff
T3N1M1
Stage IV (but MSK said not a true Stage IV at Dx)
Pos nodes: 1/18
1 Liver Met and 1 Lung Met - liver Met dead tissue at surgery, hence MSK M1 status
Baseline CEA value of 25, now 3.4
LAR (Robotic)/Liver resect(dead tissue), VATS lung - clear margins
Temp Ileo- Reversal Feb 19
Folfox - 5 Rounds Neoadj, 3 rounds Adj, then discontinued Oxali and 4 rounds just 5FU
NED and Reversal Feb 2019 - clear contrast CT, clear contrast MRI

Punky44
Posts: 334
Joined: Mon Oct 01, 2018 4:29 pm

Re: O/T but I completed my half marathon!

Postby Punky44 » Tue Feb 12, 2019 4:10 pm

You are INCREDIBLE!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9
6/28/19 Reversal and port out

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

jenbklyn
Posts: 2
Joined: Sat Nov 17, 2018 7:11 am

Re: O/T but I completed my half marathon!

Postby jenbklyn » Tue Feb 12, 2019 7:12 pm

AmyG wrote:
jenbklyn wrote:Have been wondering about whether I'll be able to do the half marathon that I have on the calendar for May (will be in between radation and surgery) and you are giving me a ton of hope!


Yes. Yes you can. I believe in you. :D

I signed up for a race series, I need to complete 7 more half marathons between now and the end of next year. I'm hoping to be able to complete my next one this September, but have zero idea what to expect with chemo and possibly a liver resection. No clue if it would be open or not.



Thanks for the positive thoughts! based on your record so far, I believe in your ability to power through your series :!: :!:
51 F DX oct/18
4cm, mod-poor differentiated
~10cm from av straddling rectum/sigmoid
T4a N+ M0,
11/8 started round 1 of 8 rounds of FOLFOX
To be followed by CRT and then surgery


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