So scared I cant stop crying

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Pleasedontletitbe
Posts: 5
Joined: Sun Feb 10, 2019 4:27 pm
Facebook Username: Desiree Holland

So scared I cant stop crying

Postby Pleasedontletitbe » Sun Feb 10, 2019 4:38 pm

Been constipated for about 3 weeks now took some laxatives and when they kicked in I noticed blood when I wiped and it was only the once so far but the next day I was constipated again my stool has little black specks in it alot and my poop is soft but hard to push out I'm 23 with cystic fibrosis so it puts me at increased risk for colon cancer for the past 3 days all I can push out is pebbles and have lots of gas and stomach rumbling mainly at night i have a colonoscopy scheduled for the 20th and I cant stop crying cause I show all the signs of colon cancer and it's all happened so fast was pooping fine one day and the next not I don't know what to do anymore or how I can handle it I'm afraid its spread to my liver cause my poop is a pale color

Lee
Posts: 5873
Joined: Sun Apr 16, 2006 4:09 pm

Re: So scared I cant stop crying

Postby Lee » Sun Feb 10, 2019 5:48 pm

First avoid Dr. Google!! The information out there is either out of date or flat out wrong. Until you get that scope ask questions here and vent your frustration. Believe me, you all understand your fear.

Your symptoms could be cause by many things, cancer is just "one" possibility. So don't assume it's cancer.

For what it's worth, I had no symptoms. No pain, no constipation, nothing, just bleeding hemorrhoids. All test that should have been a red flag for cancer, came back neg or normal. My PCP figured my hemorrhoids were my excuse for getting my baseline early in life. The rest is history.

Many years ago, my mother ended up in the ER with serious stomach pain and rectal bleeding. A colonoscopy was done, no cancer, not even one polyp, just a bad case of of diverticulotisis. So again, do not assume you have cancer. Something could be going on, but cancer is just "one" possibility out of many.

Butt do get that scope. Anytime there is bleeding, it should be checked out. That colonoscopy will give you a true diagnoses, anything else is just a speculation.

Hope this helps, again don't just "assume" it's cancer.

Lee

PS Edited to add, maybe increase your water intake, it might help with the constipation.
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Pleasedontletitbe
Posts: 5
Joined: Sun Feb 10, 2019 4:27 pm
Facebook Username: Desiree Holland

Re: So scared I cant stop crying

Postby Pleasedontletitbe » Sun Feb 10, 2019 6:23 pm

I just have been in the hospital and my fiance left me all in the last couple months now this and I'm so scared and at my end with all the stress so I havent been hardly eating or sleeping cause I'm just so terrified

Lee
Posts: 5873
Joined: Sun Apr 16, 2006 4:09 pm

Re: So scared I cant stop crying

Postby Lee » Sun Feb 10, 2019 7:08 pm

Pleasedontletitbe wrote: . . . . so I havent been hardly eating or sleeping cause I'm just so terrified


I am sorry for all that you have been going through. I was a little bit older than you are now, I broke it off with him, 3 months later I'm talking to a therapist, crying my heart out. What's wrong with me, therapist replied, "life, sometimes it just piles up". Sometimes it's hard to be young. But know, "this too shall pass" and you will have good days again.

I suspect stress is probably effecting your quality of life right now. Why were you in the hospital recently? Eating the wrong food can cause constipation. Cheese will bulk me faster than anything, greens especially spinach will have me going in an hour.

Does colon cancer run in your family?

Over the next 10 days, be kind to yourself, Try to find things that puts a smile on your face. Sometimes just walking can really help emotionally. Know that when one door closes (end of engagement) another door opens, usually a better one.

Every time you think I've got cancer, remember your symptoms could be caused by many things. It may turn out to be nothing at all. Good friend of my mine, her 25 yr old daughter was scoped. They were not really worried about cancer, but why she was having stomach issues. I forgot what they diagnosed her with, butt it was NOT cancer.

Again, please avoid Dr. Google, you can diagnoses yourself with anything with Dr. Google.

You are not alone here,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Eleda
Posts: 262
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: So scared I cant stop crying

Postby Eleda » Sun Feb 10, 2019 7:21 pm

Hi there, so sorry ur going threw such a tough patch ATM, but as previously stated, it will pass, it will just take time,,,
For what it's worth, my youngest son has CF so I'm pretty familiar with this condition...

First if all as far as I'm aware, there is no direct link between CF and Colon cancer ( but as always I'm up for correction on that )
Secondly, many CF patient suffer with bowel issues because of the pancreatic insufficiency, and bowel blockage being a common thing,
Also blood in stool because of the blockage, and inflammation, both in the bowel and pancreas and also stomach,,,, Ur creon my b inaccurate fir u and thus will most certainly cause gastric issues,,,

Hopefully you will get it sorted out either way and in the meantime try to calm down, because even though the symptoms SEEM To point to cancer, they also seem to be completely CF related

ADELE X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Pleasedontletitbe
Posts: 5
Joined: Sun Feb 10, 2019 4:27 pm
Facebook Username: Desiree Holland

Re: So scared I cant stop crying

Postby Pleasedontletitbe » Sun Feb 10, 2019 7:25 pm

Cf does have a 5 to 10 times higher chance of developing it yet they dont screen till 40 for it I just got out of the hospital recently which is why I have to wait so long for the colonoscopy I've never had bowel issues till these last 3 weeks it was all of a sudden

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Maggie Nell
Posts: 993
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: So scared I cant stop crying

Postby Maggie Nell » Sun Feb 10, 2019 9:16 pm

Pleasedontletitbe wrote:I just have been in the hospital and my fiance left me all in the last couple months now this and I'm so scared and at my end with all the stress so I havent been hardly eating or sleeping cause I'm just so terrified


As it is coming up to Valentine's Day and you are in the ranks of the newly-dumped, stay away from TINDER as well as Dr. Google. You might
like to join in with El Paso Zoo who will name a cockroach after your ex and then feed it to a meerkat live on camera this Valentine's Day.
Last edited by Maggie Nell on Wed Feb 13, 2019 11:39 pm, edited 1 time in total.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX

Pyro
Posts: 154
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: So scared I cant stop crying

Postby Pyro » Mon Feb 11, 2019 8:14 am

Who else had to lookup meerkat? You made me laugh.
Aug 2015- Diag Stage 4 CC with mets to liver (38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not a surgery candidate for liver
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery, Dr. Vauthey
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda, CEA @30, shit still here

Pleasedontletitbe
Posts: 5
Joined: Sun Feb 10, 2019 4:27 pm
Facebook Username: Desiree Holland

Re: So scared I cant stop crying

Postby Pleasedontletitbe » Mon Feb 11, 2019 8:32 am

Had a normal passing today should I be worried about really dark brown color in the stool mixed in with light brown

Lee
Posts: 5873
Joined: Sun Apr 16, 2006 4:09 pm

Re: So scared I cant stop crying

Postby Lee » Mon Feb 11, 2019 11:06 am

Pyro wrote:Who else had to lookup meerkat? You made me laugh.


What you never saw Lion King :D Timon???

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
Freddy18
Posts: 22
Joined: Sat Jan 26, 2019 8:06 am

Re: So scared I cant stop crying

Postby Freddy18 » Tue Feb 12, 2019 9:36 am

I can relate to you my health has got me down lately. And when you worry it makes everything worse so try to block that out. Do things you like and talking it out really helps.I also have blood sometimes in my poo i have to have colonoscopy in march. I also had an operation back in November a colon resection.

Pyro
Posts: 154
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: So scared I cant stop crying

Postby Pyro » Tue Feb 12, 2019 9:52 am

Lee wrote:
Pyro wrote:Who else had to lookup meerkat? You made me laugh.


What you never saw Lion King :D Timon???

Lee


Many moons ago, looking forward to the new one!
Aug 2015- Diag Stage 4 CC with mets to liver (38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not a surgery candidate for liver
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery, Dr. Vauthey
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda, CEA @30, shit still here

Eleda
Posts: 262
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: So scared I cant stop crying

Postby Eleda » Wed Feb 13, 2019 5:55 am

Pleasedontletitbe

Glad to hear Ur having normal( ISH) stool,
everything in life will attribute Ur increase Risk if cancer really.........
Overweight
Drinker
Meat eater
IBS , ETC
Evironmental issues
Chemicals
Plastics
I could go on and on,,,,, ( so it's generally not just one thing)

While u have very rightly gone and had this looked into.
Just because it is "Risk " doesn't men u will develop any,,,
TBH I'm not aware of anyone with CF and Colon cancer (if that's any concelation), but that's just n my circle
If u then look at vegans/ vegetarians, non drinker, non smokers,Health fanatics etc, that have it so unfortunately sometimes is just unlucky, but u can't live under the worry of waiting for it to happen.
Hopefully this is a blessing and Ur all clear but hopefully u will continue to have Ur colonoscopy regularly, and then u should never develop CRC.
NB have you had Ur blood markers take for cancer???

Adele x
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Pleasedontletitbe
Posts: 5
Joined: Sun Feb 10, 2019 4:27 pm
Facebook Username: Desiree Holland

Re: So scared I cant stop crying

Postby Pleasedontletitbe » Wed Feb 13, 2019 8:39 am

No they havent done any test on me but cf has high markers anyway so it wouldnt be all that effective the gp said he was doing this for my peace of mind so he wasnt going to run any other test

Eleda
Posts: 262
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: So scared I cant stop crying

Postby Eleda » Wed Feb 13, 2019 12:56 pm

Well at least Ur getting a colonoscopy pretty quickly , so thats good,
Can't understand why they still don't do bloods( not expansive, or difficult) but every practice is different I suppose
Fingers crossed for u for next week for a negative result
ADELE X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th


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