Lung Mets told. Inoperable. Need advice on options

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Donna wayne jake
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Joined: Sat Feb 09, 2019 2:39 am
Facebook Username: Donna Sherman

Lung Mets told. Inoperable. Need advice on options

Postby Donna wayne jake » Sat Feb 09, 2019 2:53 am

Hi I have 8 spots over both lungs and surgeon won't operate as they showed no shrinkage from chemo. Anyone in UK. Or anyone give advice what to do. I'm u der NHS. Not private. Biggest I think is 13mm.tbey did shrink a little with first 6 chemos. But I stopped. For 3 mo tha for liver surgery and scan showed the spots had regrown, and done another 4 chemos but kept stable only. I have kras. Ras etc

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LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Lung Mets told. Inoperable. Need advice on options

Postby LPL » Sat Feb 09, 2019 1:56 pm

Hi Donna, while we wait for experts to comment.

My husband will have RFA (Radiofrequcy ablation) on lung lesion(s), (I’m not sure today if it will be done on 1 or 2.)
While looking on internet for info about ‘our’ doctor, who will be doing the RFA, I found that he had written this paper about a patient.
”10 years later, tolerance and efficacy are excellent; 23 lung metastases have been treated during 11 sessions without current relapse. Respiratory function and quality of life are not altered.”
https://www.mendeley.com/catalogue/23-l ... cal-out-1/

RFA can not be done if lesions/tumors are bigger than 30mm if I understand correct.. but it sounds as yours are smaller!? My husband’s lesions/CRCmets? are 11mm and 8mm. Both of them showed moderate SUVmax on PETscan. As I understand it because they have grown (very slowly) they might be mets but could be inflammation? :? Our doctors want to know for sure so that’s why hubby is scheduled for the ablation (a biopsi will be included).
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

stu
Posts: 1166
Joined: Sat Aug 17, 2013 5:46 pm

Re: Lung Mets told. Inoperable. Need advice on options

Postby stu » Sat Feb 09, 2019 2:54 pm

Hi Donna,

We are in the UK . You will need to check out with your oncologist if they can access funding for treatment not available in the UK if you wish to look into Laser treatment in Germany . It used to be done in London but to date I have not heard of anyone taking over . Correct me if this is wrong .
The Nice Guidelines cover the clinical criteria for Radio Frequency Ablation to see if that’s suitable for you .
Accessing funding and understanding criteria can be tricky in the NHS so if you have not done so I would access some help from Macmillan 0808 808 0000 to see if they can guide you regarding funding . Or Bowel cancer UK who have a specialist nurse who you can leave a message for .
Some people use Go Fund Me to access treatment .
Have you looked into Immuotherapy trials ? There is also one running in three locations for mms patients . One In GLASGOW , Manchester and a third somewhere else !! Might be worth looking into .
Keep pressing on ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .


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