CT scan results in

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Cmac1275
Posts: 54
Joined: Mon Aug 06, 2018 4:21 pm

CT scan results in

Postby Cmac1275 » Mon Feb 04, 2019 4:12 pm

Hello folks,

Been a bit since I’ve stopped by. Wanted to update anyone interested on my latest CT scans and what I’ve been doing of late on this journey. If you’ve been following my other posts, I started a clinical trial sponosered by Abbvie in December (fyi, did not get randomized to trial drug). This was the result of discovering:

• several new mets in liver within a couple of months of my 1st liver resection last July (2018)
• two new mets, 2 enlarged lymph nodes, suspicious peritoneal soft tissue after 4 more rounds of Folfox + Avastin beginning October 2018

I also have to add that I started taking both CBD and THC pure cannabis oils beginning January 9th 2019. So here’s what we learned today:

• Generally speaking, shrinkage across the board with the exception of two liver mets (oncologist is not convinced she see’s growth. It’s slight it might be the CT scan margins)
• Suspicious peritoneal soft tissue is stable. Oncologist actually thinks it looks smaller.
• 1 lymph node shrunk, 1 lymph node is slightly enlarged
• No new spots anywhere else, including my pesky liver

So overall, good news indeed. Can’t say for sure what the cannabis is doing in terms of actually targeting cancer cells. I’m still micro-dosing and building up tolerance. What I can say is that the oils completely eliminated my chemo side-effects within a couple of days. In fact, I kept waiting for my two “bad” chemo days after I take my pump off. Nothing. Nada. Zip. No nausea, no loss of appetite (the opposite, actually), no pains, no neuropathy, no consitpation, no cold sensitivity.

Hope this is helpful to some/any of you.
42 yr, male, husband and father of 3
DX Stage IV Colon Cancer Jan 2018
Multiple liver mets
KRAS G13D / MSS

Jan 2018 Partial colon resection
Mar 2018 FOLFOX + Avastin | CEA 60.1
July 2018 Partial liver resection | CEA 4.7
Sep 2018 Recurrence in liver | CEA 2.9
Oct 2018 FOLFOX + Avastin
Nov 2018 Stopping FOLFOX. New mets | CEA 4.3
Dec 2018 Beginning AbbVie ABT-165 Trial

Punky44
Posts: 334
Joined: Mon Oct 01, 2018 4:29 pm

Re: CT scan results in

Postby Punky44 » Mon Feb 04, 2019 4:13 pm

Glad your overall results were positive! Keep fighting!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9
6/28/19 Reversal and port out

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

mandosquiddy
Posts: 32
Joined: Sat Oct 06, 2018 11:45 am
Location: Colorado
Contact:

Re: CT scan results in

Postby mandosquiddy » Mon Feb 04, 2019 6:46 pm

Greats news!
4/2017 DX: sigmoid colon cancer
colectomy/colostomy
stage II with one positive margin
5/2017 - 11/17 12 rounds of FOLFOX
11/17 - 12/17 Increase in back pain and testicular pain.
CEA increased, CT scan indicated mass on rectal portion of colon
1/18 - 2/18 25 rounds of radiation treatment
5/18 surgery, interoperative radiation, bladder/ureter modification
7/18 normal blood work and CT scan
9/18 increased CEA, mass on outside of small intestine
10/18 Debulking surgery/illeostomy
1/19 Ostomy reversal

Caat55
Posts: 665
Joined: Sat Dec 23, 2017 6:01 pm

Re: CT scan results in

Postby Caat55 » Mon Feb 04, 2019 11:52 pm

That's great. I found CBD gummies helped with funny gas, gi distress during chemo.

Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

Cmac1275
Posts: 54
Joined: Mon Aug 06, 2018 4:21 pm

Re: CT scan results in

Postby Cmac1275 » Wed Feb 06, 2019 12:32 pm

Thanks, guy. Pretty encouraged.
42 yr, male, husband and father of 3
DX Stage IV Colon Cancer Jan 2018
Multiple liver mets
KRAS G13D / MSS

Jan 2018 Partial colon resection
Mar 2018 FOLFOX + Avastin | CEA 60.1
July 2018 Partial liver resection | CEA 4.7
Sep 2018 Recurrence in liver | CEA 2.9
Oct 2018 FOLFOX + Avastin
Nov 2018 Stopping FOLFOX. New mets | CEA 4.3
Dec 2018 Beginning AbbVie ABT-165 Trial

DarknessEmbraced
Posts: 3308
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: CT scan results in

Postby DarknessEmbraced » Sat Feb 09, 2019 11:48 am

That's wonderful news!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18


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