Coffee...yes or no?

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CF_69
Posts: 90
Joined: Sat Dec 22, 2018 9:44 pm

Coffee...yes or no?

Postby CF_69 » Mon Feb 04, 2019 1:10 pm

Coffee is one of the things I stopped drinking as soon as I was diagnosed, however I’ve been reading a lot of articles that suggest that coffee is actually good for us.

I drank two large coffees every day minimum for years, maybe decades, and obviously it didn’t prevent anything in my case, though maybe it allowed the disease to progress slower than it would have. Who knows.

Anyway I’m just curious to hear / read the opinions of others on coffee consumption post diagnosis.
47 year old male
Distal sigmoid near rectosigmoid junction adjacent to upper rectum
Adenocarcinoma
2.8 x 1.8 x 3.5 cm
G2
T3N0M0 after pathology
CEA:
Dec 2018 - 1.9
September 2019 - 2.5
Xeloda / radiation x 25
Laparoscopic LAR April 2019
0 of 12 nodes
Stage 2A
4 cycles of adjuvant Xeloda
MRI on liver for 2mm hypodensity not suspicious.
Clear CT - September 2019

teachpdx
Posts: 632
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: Coffee...yes or no?

Postby teachpdx » Mon Feb 04, 2019 2:55 pm

My coffee consumption is based on it being a vise and nothing else - and I protect this with my whole being. I love coffee and since my surgery consumption of it can cause me to cluster more and recently painful indigestion. I've fixed it with a few tweeks. No more than one cup of coffee on an empty stomach and preferably with some carb such as bread and/or homemade sweet. I also figured out that by using heavy cream instead of milk (in my coffee) much less stomach upset.

I say do what makes you happy because this is a VERY long journey and you being happy is the best thing for YOU.

Peace, Kristi
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

Dionca
Posts: 39
Joined: Sat Dec 02, 2017 2:04 am

Re: Coffee...yes or no?

Postby Dionca » Mon Feb 04, 2019 3:09 pm

Coffee was the only thing I enjoyed drinking during chemo - cold drinks/water had a metallic taste and I had to force them down. If I had to give up my morning coffee, I would have been really depressed.

So my take is, that it was beneficial to my mental health, during a time when I neeed a boost, and is probably neither good or bad as far as general health is concerned.

In the following article it says that "early research suggested that coffee increased the risk of bladder cancer, but the true causal factor was later found to be smoking". (coffee and smoking can go hand in hand)

It then goes on to say "Recent studies find that coffee may lower the risk of several types of cancer, including head and neck, colorectal, breast, and liver cancer, although the potential beneficial effects of coffee are not completely understood"
https://www.cancer.org/latest-news/coff ... shows.html

So I will second Kristi and say thumbs up to coffee - enjoy! 
May 2015 right hemi CC cecum
removed terminal ileum, illeocecal valve, appendix, cecum, ascending colon, omentum
stage 3b T3 N1b MX 2/27 nodes (isolated tumour cells in 1 add'l node)
moderately differentiated
PNI - positive
LVI - positive
Folfox 12 sessions (without oxi for 11 & 12)
Neulasta with 3-12 due to low WBC count
CEA at diagnosis 8.6
CEA after surgery 1.2
CEA during chemo 4.6 / 3.3 / 2.3
CEA after chemo 1.5 / 1.2 / 1.2 /1.2 /1.2 / 1.4 / 1.1 / 1.2 / 1.9 / 1.3 / 1.6 /1.4 /1.5
neuropathy

Lee
Posts: 5974
Joined: Sun Apr 16, 2006 4:09 pm

Re: Coffee...yes or no?

Postby Lee » Mon Feb 04, 2019 3:22 pm

Many years ago, when I worked in downtown Denver, CO. As a female, I was told to not drink coffee as it can cause breast cancer. A few years back I was told to drink 2 cups of coffee (or more) a day as we now know it can actually help prevent breast cancer. This was per a GYN visit.

I love coffee, butt as I get older, anything more than 1 cup a day causes one of my eyes to twitch big time. Very annoying!!

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

hiker
Posts: 139
Joined: Thu Aug 09, 2018 10:15 am

Re: Coffee...yes or no?

Postby hiker » Mon Feb 04, 2019 3:59 pm

Drink and eat what you want. If you already have cancer, it's certainly not going to make it worse. If you don't, it's certainly not going to cause you to get it. Unless you grow your own food and control it from seed to harvest, you really have little say in what's going into your body. From the genetically modified foods to the chemicals put on it in the fields, our food supply is polluted. Think eating organic is the answer? Not unless you can independently verify that the claim of being organic on that product is valid.

hiker
Colonoscopy 2/17, 5cm tumor descending
Diagnosed stage iv, liver mets 3/17
Colon resection 3/17
Told surgery not an option, get my affairs in order
Meet w/MSK team 5/01/17
Folfox(3rds) 5/17-6/17
Liver resection/implant HAI pump 7/17
HAI pump chemo(5rds) 8/17-2/18
Folfiri+Vectibix(11rds) 8/17-2/18
Spot on chest CT 10/17
Lung biopsy (that was fun) 11/17
Nocardia bacterial infection w/spread to brain (this is serious) 11/17
IV antibiotics 12/17-2/18
Oral antibiotics 3/18-12/18
Clear of cancer since surgery

Punky44
Posts: 403
Joined: Mon Oct 01, 2018 4:29 pm

Re: Coffee...yes or no?

Postby Punky44 » Mon Feb 04, 2019 4:07 pm

My mom and coffee are one. Lol.
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

kiwiinoz
Posts: 1133
Joined: Thu Jan 03, 2013 11:44 pm

Re: Coffee...yes or no?

Postby kiwiinoz » Mon Feb 04, 2019 4:48 pm

I only drink decaf. Does that actually count as coffee?
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

KimT
Posts: 675
Joined: Sat Feb 20, 2010 8:53 pm

Re: Coffee...yes or no?

Postby KimT » Mon Feb 04, 2019 7:26 pm

I will never give up coffee. Ever. I like coffee better than food.
2/10 dx colon cancer
right hemicolectomy 3/19/10
Stage 2a 0/43 nodes
Lynch syndrome
3/14/10 colon resection/ removal of metal clips
Nov 11 dx ovarian cancer

Lee
Posts: 5974
Joined: Sun Apr 16, 2006 4:09 pm

Re: Coffee...yes or no?

Postby Lee » Mon Feb 04, 2019 7:47 pm

hiker wrote: . . . Think eating organic is the answer? Not unless you can independently verify that the claim of being organic on that product is valid.
hiker


That is SO TRUE!!! Sorry butt I've seen some of the chemicals that go into the ground prior to planting. Some of those farmers claim to be "organic" :roll: Butt at least the customer feels good about what they are buying for a premium $$$ :roll:

There is a small market here, that sells only greens. They grow vertical, lite weight plants. They might be onto the right solutions. Butt you gotta eat greens, and only greens!!

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
ginabeewell
Posts: 371
Joined: Wed Oct 24, 2018 10:30 am

Re: Coffee...yes or no?

Postby ginabeewell » Tue Feb 05, 2019 8:04 am

I read an article that cited lower recurrence rates of colon cancer among coffee drinkers. That was enough for me to feel fine maintaining my habit. I went off the taste of plain coffee with cream a few cycles in, but still liked lattes. And I drank a LOT of eggnog lattes during my chemo break trying to get my weight up. Worked for me!
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

Deb m
Posts: 518
Joined: Tue Jan 14, 2014 10:08 am

Re: Coffee...yes or no?

Postby Deb m » Tue Feb 05, 2019 9:33 am

My husband loves coffee, but for some reason after his surgery he has been unable to drink it. It causes severe diarrhea! Even being over 8 years out, still happens. I guess it's Gods way of telling him hot to drink it. No problems at all with tea. Go figure.

Debm

hiker
Posts: 139
Joined: Thu Aug 09, 2018 10:15 am

Re: Coffee...yes or no?

Postby hiker » Tue Feb 05, 2019 12:28 pm

Lee wrote:There is a small market here, that sells only greens. They grow vertical, lite weight plants. They might be onto the right solutions. Butt you gotta eat greens, and only greens!!

Lee


And I am just not willing to do that. I love to eat. You put it in front of me and I will eat it (except guacamole - that stuff just doesn't look right). After going through of year of absolute hell, I'm gonna eat what I want.

hiker
Colonoscopy 2/17, 5cm tumor descending
Diagnosed stage iv, liver mets 3/17
Colon resection 3/17
Told surgery not an option, get my affairs in order
Meet w/MSK team 5/01/17
Folfox(3rds) 5/17-6/17
Liver resection/implant HAI pump 7/17
HAI pump chemo(5rds) 8/17-2/18
Folfiri+Vectibix(11rds) 8/17-2/18
Spot on chest CT 10/17
Lung biopsy (that was fun) 11/17
Nocardia bacterial infection w/spread to brain (this is serious) 11/17
IV antibiotics 12/17-2/18
Oral antibiotics 3/18-12/18
Clear of cancer since surgery

Lee
Posts: 5974
Joined: Sun Apr 16, 2006 4:09 pm

Re: Coffee...yes or no?

Postby Lee » Tue Feb 05, 2019 5:38 pm

hiker wrote:
Lee wrote:There is a small market here, that sells only greens. They grow vertical, lite weight plants. They might be onto the right solutions. Butt you gotta eat greens, and only greens!!

Lee


And I am just not willing to do that. I love to eat. You put it in front of me and I will eat it (except guacamole - that stuff just doesn't look right). After going through of year of absolute hell, I'm gonna eat what I want.

hiker


Amen brother!! Butt I do LOVE my guacamole.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Utwo
Posts: 260
Joined: Mon May 23, 2016 10:14 am
Location: T.O.

Re: Coffee...yes or no?

Postby Utwo » Tue Feb 05, 2019 8:58 pm

After my right hemicolectomy I discovered that coffee had rather strong laxative effect.
Prior to my surgery I had no clue that coffee was supposed to have such effect.

Coffee laxative effect is rather strong in my case. :(
When I am in the office I need a few cups of coffee through the day, that leads to a few extra trips to a bathroom.
The obvious solution is to stay at home and do not drink coffee.
Unfortunately I can't afford to retire right now and still need to work.

Can you think of another way of dealing with this issue?
Do you believe that different ways of coffee preparation have different laxative effects?
For example, have you noticed any difference between black coffee and coffee with milk, between dripping coffee, espresso and instant coffee, between dark roast and light roast?

Does tea have similar laxative effect or not?
I am willing to trade coffee for tea for my caffeine fix.
Last edited by Utwo on Thu Mar 21, 2019 9:50 pm, edited 1 time in total.
58 yo male at diagnosis: T1bN0M0, 0/15 nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy #1: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy #2: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 "prophylactic" laparoscopic right hemicolectomy - bleeding, leak, infection
06/2017 CT scan, colonoscopy OK; CEA = 1.6
A lot of funny stuff discovered by CT scans in liver, kidney, lungs, arteries, gallbladder and a lymph node

radnyc
Posts: 413
Joined: Tue Apr 06, 2010 6:32 pm

Re: Coffee...yes or no?

Postby radnyc » Wed Feb 06, 2019 7:36 am

Absolutely nothing wrong with drinking coffee, unless you just never liked it.
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15


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