Terrified - 3cm polyp

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JBell550
Posts: 20
Joined: Sun Feb 03, 2019 3:57 am

Terrified - 3cm polyp

Postby JBell550 » Sun Feb 03, 2019 4:02 am

Hello everyone,

I'm new. And terrified. 

Had an OGD and colonoscopy all at once under General anaesthetic.  I feel pretty battered and bruised after it,  back and abdominal pain. 

But that's nothing compared to how sick I feel knowing that they found A 3cm polyp in my colon.  (Rest of bowel clear apart from slight diverticulitis). I am 47 and pretty fit and healthy. 

I had few symptoms, just some random flareups of random bowel movements - a couple of times a year only.  I asked for a colonoscopy as a bit of an after thought as I knew I was getting a general anaesthetic and thought they might as well.  

I had a CT scan about 5-6 years ago which showed only slight diverticulitis.  Now suddenly a 3cm polyp.

Of course I've googled this and realised that the odds of it being benign aren't good.

I am nearly sick with fear.  I have 2 young kids.  

My blood work is fine.

Jdfb xxxx

Lee
Posts: 5939
Joined: Sun Apr 16, 2006 4:09 pm

Re: Terrified - 3cm polyp

Postby Lee » Sun Feb 03, 2019 4:18 pm

First breath, do not assume anything until the pathology report comes back. It could be cancer, it could not be cancer. Colon cancer in the beginning tends to be a very slow growing cancer. Dr.(s) figured I had my tumor probably 10-15 yrs. (please note I had a tumor, far more advanced than a polyp). That was almost 15 yrs ago. Also generally (butt not always),IF it does have cancer cells, it probably is a very early stage. If that is the case, your chances of beating it are VERY high.

Please avoid Dr. Google, it is either very out of date or flat our wrong. Ask questions or vent your frustrations here until you get you pathology. If it turns out you do have cancer cells, know that you have found the right forum for info and support.

Know that you are not alone here.

When will you get your pathology report.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

JBell550
Posts: 20
Joined: Sun Feb 03, 2019 3:57 am

Re: Terrified - 3cm polyp

Postby JBell550 » Sun Feb 03, 2019 6:42 pm

Thank you so much for taking the time to reply.
J x

Beckster
Posts: 374
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Terrified - 3cm polyp

Postby Beckster » Sun Feb 03, 2019 7:44 pm

JBell550 wrote:Hello everyone,

I'm new. And terrified. 

Had an OGD and colonoscopy all at once under General anaesthetic.  I feel pretty battered and bruised after it,  back and abdominal pain. 

But that's nothing compared to how sick I feel knowing that they found A 3cm polyp in my colon.  (Rest of bowel clear apart from slight diverticulitis). I am 47 and pretty fit and healthy. 

I had few symptoms, just some random flareups of random bowel movements - a couple of times a year only.  I asked for a colonoscopy as a bit of an after thought as I knew I was getting a general anaesthetic and thought they might as well.  

I had a CT scan about 5-6 years ago which showed only slight diverticulitis.  Now suddenly a 3cm polyp.

Of course I've googled this and realised that the odds of it being benign aren't good.

I am nearly sick with fear.  I have 2 young kids.  

My blood work is fine.

Jdfb xxxx


Welcome.... did your dr remove the polp during your colonoscopy? What I do remember is that my dr knew it was cancer after my colonoscopy. The biopsy just confirmed what he already knew. My bloodwork should no evidence of cancer and my CEA was 1.9
57/Female
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction to oxaliplatin on first infusion
1/2/17 to 6/9/17- Xeloda monotherapy
6/17, 12/17, 6/18, 12/18, 6/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1
Clear Colonoscopy 10/17 :D

del
Posts: 109
Joined: Thu Mar 03, 2016 11:21 pm
Location: Sydney, Australia

Re: Terrified - 3cm polyp

Postby del » Sun Feb 03, 2019 9:38 pm

Sorry for the reason you're here. I think everyone in this forum can sympathise with the terrible emotions you go through waiting for biopsy results. But please do yourself a favour and stay off Dr Google, it will only make you feel more anxious.

If it is cancerous, 3cm is still rather small, so hopefully it would be early stage (mine was about the same size as yours). Bowel cancer is very much curable these days and most folks do survive it.

Hang in there!
Male, 33 @ dx, stage 1 RC (T1N0M0 0/29 LNs)
2016-02 - Cancerous polyp removed during colonscopy, 0.5 mm margin
2016-03 - ULAR & TME surgery, temp ileostomy
2016-04 - DVT, pulmonary embolism
2016-11 - Ileostomy reversal
2018-10 - Another DVT & PE

JBell550
Posts: 20
Joined: Sun Feb 03, 2019 3:57 am

Re: Terrified - 3cm polyp

Postby JBell550 » Mon Feb 04, 2019 4:20 am

Thanks so much for your words or support. The doctor said it looked like a benign polyp, however the size (3cm) made it suspicious.
J x

DarknessEmbraced
Posts: 3308
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Terrified - 3cm polyp

Postby DarknessEmbraced » Mon Feb 04, 2019 12:28 pm

I'm sorry you're going through this and hopefully you won't have to wait long for biopsy results!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

Dionca
Posts: 34
Joined: Sat Dec 02, 2017 2:04 am

Re: Terrified - 3cm polyp

Postby Dionca » Mon Feb 04, 2019 3:42 pm

If your dr is experienced, he can probably tell by just looking at it, if it's cancer or not. Immediately after my colonoscopy, the dr told me it was cancer, and recommended a surgeon, without even waiting for a biopsy. I was then given a blood test, which showed an elevated CEA.

Your dr told you that it has the appearance of being benign, but of course, you have to wait for the biopsy to confirm (which is the hard part). Try not to worry too much - the chances are that it's benign and if it's not, then you can deal with it.
May 2015 right hemi CC cecum
removed terminal ileum, illeocecal valve, appendix, cecum, ascending colon, omentum
stage 3b T3 N1b MX 2/27 nodes (isolated tumour cells in 1 add'l node)
moderately differentiated
PNI - positive
LVI - positive
Folfox 12 sessions (without oxi for 11 & 12)
Neulasta with 3-12 due to low WBC count
CEA at diagnosis 8.6
CEA after surgery 1.2
CEA during chemo 4.6 / 3.3 / 2.3
CEA after chemo 1.5 / 1.2 / 1.2 /1.2 /1.2 / 1.4 / 1.1 / 1.2 / 1.9 / 1.3 / 1.6 /1.4 /1.5
neuropathy

AmyG
Posts: 218
Joined: Tue Dec 25, 2018 8:08 pm

Re: Terrified - 3cm polyp

Postby AmyG » Mon Feb 04, 2019 3:45 pm

Dionca wrote:If your dr is experienced, he can probably tell by just looking at it, if it's cancer or not. Immediately after my colonoscopy, the dr told me it was cancer, and recommended a surgeon, without even waiting for a biopsy. I was then given a blood test, which showed an elevated CEA.



That's what happened to me too. I just had the added bonus of being fully awake during my colonoscopy so we all found it together. :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19

Ehut
Posts: 207
Joined: Wed Sep 26, 2012 4:24 pm
Location: Algonquin, IL

Re: Terrified - 3cm polyp

Postby Ehut » Tue Feb 05, 2019 11:10 pm

I had a similar polyp found and was told by phone by some non-doctor at the office that the polyp was "negative". The GI doctor told me to come back in 2 years for a follow up colonoscopy. Just over a year later I was diagnosed stage IV. After my Mayo care team reviewed the original pathology report, they said they would have had me back for a follow up colonoscopy in 3 months because the polyp was advanced in it's progression towards being cancerous. My original local doctor told me none of this. If I were you I would:
1) Make sure you get a physical copy of the pathology report and have a doctor explain it to you and
2) push for a follow up colonoscopy in a few months.
Dx 12/11 rectal stage IV w/ 6 mets to liver, age 35
4 cycles FOLFOX 12/11 to 2/12
short course radiation 2/12
rectal/liver resection 3/12, temp ileostomy
8 cycles FOLFOX/FOLFIRI 4/12 to 8/12
ileostomy reversal 10/12
port out 10/13
NED for 7+ years and counting!

JBell550
Posts: 20
Joined: Sun Feb 03, 2019 3:57 am

Re: Terrified - 3cm polyp

Postby JBell550 » Wed Feb 06, 2019 3:31 am

It's being removed regardless. My GI doctor told me 3cm is too risky regardless of what the biopsies reveal today. Thanks. X

Lee
Posts: 5939
Joined: Sun Apr 16, 2006 4:09 pm

Re: Terrified - 3cm polyp

Postby Lee » Thu Feb 07, 2019 2:33 pm

JBell550 wrote:It's being removed regardless. My GI doctor told me 3cm is too risky regardless of what the biopsies reveal today. Thanks. X


Is it being removed via surgery?

Good luck, so glad to hear about your good news.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

del
Posts: 109
Joined: Thu Mar 03, 2016 11:21 pm
Location: Sydney, Australia

Re: Terrified - 3cm polyp

Postby del » Sat Feb 09, 2019 1:36 am

Ehut wrote:I had a similar polyp found and was told by phone by some non-doctor at the office that the polyp was "negative". The GI doctor told me to come back in 2 years for a follow up colonoscopy. Just over a year later I was diagnosed stage IV. After my Mayo care team reviewed the original pathology report, they said they would have had me back for a follow up colonoscopy in 3 months because the polyp was advanced in it's progression towards being cancerous. My original local doctor told me none of this. If I were you I would:
1) Make sure you get a physical copy of the pathology report and have a doctor explain it to you and
2) push for a follow up colonoscopy in a few months.


Wow, unbelievable. That is serious negligence. Glad to hear you are in better hands now. Was it the original pre-cancerous polyp that progressed to stage 4 in a year or was it somewhere else?
Male, 33 @ dx, stage 1 RC (T1N0M0 0/29 LNs)
2016-02 - Cancerous polyp removed during colonscopy, 0.5 mm margin
2016-03 - ULAR & TME surgery, temp ileostomy
2016-04 - DVT, pulmonary embolism
2016-11 - Ileostomy reversal
2018-10 - Another DVT & PE

JBell550
Posts: 20
Joined: Sun Feb 03, 2019 3:57 am

Re: Terrified - 3cm polyp

Postby JBell550 » Thu Feb 14, 2019 7:43 am

Being removed by colonoscopy.

gwvet91
Posts: 3
Joined: Thu Feb 14, 2019 1:46 pm
Facebook Username: bulldog67

Re: Terrified - 3cm polyp

Postby gwvet91 » Thu Feb 14, 2019 2:58 pm

I just had my colonscopy on Tuesday and they found a 4cm polyp. The doctor referred me to a colorectal surgeon and said they need to open me up and do a colon resection to take out the polyp. Who is removing your 3cm polyp via colonoscopy? I was told mine was too big but I did find a specialist at Johns Hopkins and Brigham and Women's who do these through the colonoscope.


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