Postby jep » Tue Feb 05, 2019 8:06 pm
Hey Lee, thanks for checking in! It was a pretty positive experience overall....the MSK doc approves of the new chemo regiment that my husband is on and after reviewing his scans, she feels it is working. She, like our local onc, does not currently have an answer regarding the lymph nodes....they both seem to agree that we need to be patient and finish the 6 months of chemo before deciding on surgery vs radiation, etc. It was pretty reassuring to hear her agree with much of our local onc's opinions/decisions....the BEST part though is that she is having her MSK colorectal surgeon review all of my husband's scans/records to get the surgeon's input....this is perfect timing, as my husband's local surgeon (who is excellent and board cert colorectal) is presenting my husband's case before the regional tumor surgery board in the coming weeks!!! So excited to have all of these super smart people working on our behalf....so, that's where we are....lots of reassurance that we are taking the right path, but no clear plan yet as to what to do about these nodes....
All the best to everyone!!
Jep
Stage IV CC 5/16/17
Loc: recto-sig
Type: Adenocarcinoma
Size: 7.4 cm
Grade: G3
TNM: T3N2M1
LNs: 8/20
BL CEA: .9
LVI: present
Perineural invasion: present
LAR margins: clear (w/in microns)
Folfox (8/17-1/18)
Scope 6/18 - CLEAR! - 2 polyps
PET 10/17/18: 3 pos LNs
Irino + Vecti (11/18)
CEA: 1.7 (2/19)
Xel + rad (5/19)
Surgery: 8/21/19 (aborted)
P1 Trial 10/19 - 12/19
Bypass 12/6/19
Folfox + vecti 1/2/19 - 4/3/20
Kid Fail 5/1/20
Folfiri + Avastin 5/20 - 6/20
bypass 6/29/20
Stivarga 7/18/20 -
Home 9/10/20