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Multiple reoccurrence survival stories

Posted: Sat Feb 02, 2019 6:24 am
by hopeful1
Hi everyone. Have been feeling very nervous since my husband had his third reoccurrence diagnosed in November last year. It feels sometimes like we are fighting a losing battle. If there is anyone who'd like to share their multiple reoccurrence survival story I would love to hear it.

Re: Multiple reoccurrence survival stories

Posted: Sat Feb 02, 2019 8:21 am
by stu
My mum has recurred twice . Once after a liver resection then a few years later a lung resection . She is doing great . Keeps healthy and I make her walk . She does say I am becoming very bossy!
Sounds as though his recurrence was need the first liver met so many just revealing what was already there .
It has been three years since her last recurrence!!
Keep going ,
Stu

Re: Multiple reoccurrence survival stories

Posted: Sat Feb 02, 2019 10:43 pm
by Jack&KatiesMommy
Me! I was diagnosed Stage IV in August 2011 and I have had a number or recurrences (lungs and then lymph nodes). Happily NED with immunotherapy!
Cynthia

Re: Multiple reoccurrence survival stories

Posted: Tue Feb 05, 2019 2:31 am
by hopeful1
Thanks for posting your stories. :D

Re: Multiple reoccurrence survival stories

Posted: Tue Feb 05, 2019 8:41 am
by plastikos
I’ve had 2 since my initial diagnosis and surgery in 2014. I am NED now. Don’t lose hope.

Re: Multiple reoccurrence survival stories

Posted: Sun Feb 10, 2019 4:08 pm
by rp1954
Not exactly multiple recurrences, because we couldn't get rid of it all, no one anywhere expected us to get rid of all the micromets - "chemo forever". Our backstory. The imaged masses and the markers do change and we changed the supplemental chemistry, a la whack-a-mole. After 8 years immunochemo, my wife has been off chemo for over 7 months, she's pretty low on other chemistry too. This week she brought home her lowest CEA ever, 1.3, down from 1.8 several months ago. Her lowest, steady, previous baseline was 2.1 back in 2011 while on chemo.

Treat the markers, nicely, chemistry-wise. If you can see it, snip it, and if you can't, still treat the (extra) markers, augment the immune processes, and remove immune stresses. Since she came off chemo and a lot of the supplements, an old, crowned and root canaled tooth blew up with a big abscess, and was removed days before this last CEA. One more immune stressor gone.