I haven’t posted in several weeks because it’s been a lot of scans and bloodwork and prep for ileostomy reversal. But I wanted to let this board know that as of this morning my DH is now NED per his oncologist!!!!
It’s been quite the journey here from his July 4th Dx and we now enter a new phase of closely monitoring him, but I immediately wanted to share (1) because I’ve been so grateful to this group for the feedback and support throughout this tough road AND (2) because it gave and continues to give me so much hope to see the achievement of this moment from others, especially Stage IVs.
To everyone, thank you and I hope this provides some encouragement - there are paths to healthy for Stage IVs.
Wife to DH, 44
DX July 18 - RC at Rectosigmoid
Adenocarcinoma, Mod diff
Stage IV (but MSK said not a true Stage IV at Dx)
Pos nodes: 1/18
1 Liver Met and 1 Lung Met - liver Met dead tissue at surgery, hence MSK M1 status
Baseline CEA value of 25, now 3.4
LAR (Robotic)/Liver resect(dead tissue), VATS lung - clear margins
Temp Ileo- Reversal Feb 19
Folfox - 5 Rounds Neoadj, 3 rounds Adj, then discontinued Oxali and 4 rounds just 5FU
NED and Reversal Feb 2019 - clear contrast CT, clear contrast MRI