Liver ultrasound tomorrow! Update!!

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AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Liver ultrasound tomorrow! Update!!

Postby AmyG » Wed Jan 30, 2019 12:49 pm

Wish me luck yall.

My medical team was fine with delaying chemo if my liver is cooperating, at least a few more weeks to let this baby bake a little longer. Ultrasound is the easiest way to check on my liver met, so as long as there is still only one and it's not a lot bigger..I can stay pregnant for another 3 weeks! That will put baby at 34 weeks gestation at induction.

However, if it's significantly larger or there's more than one, I'm going to be advised to induce next week and start treatment immediately.

So think small, single thoughts for me!! :lol:


2/1/19

So my liver met is growing, but there's still just the one. Saw my high risk OB yesterday, he's been in constant contact with my surgeon and I get to go....to 37 weeks!!!!!!! :shock: :shock:

High risk doctor and I broke up yesterday, we were both thrilled. I get to have a term baby, he'll get to come from the hospital with us and I'll hopefully have a couple of weeks with him before starting chemo.

Saw my regular OB today, we're getting everything in place to induce the week of March 10. Pre registered at our hospital and got a tour of labor and delivery. We had been anticipating a very early baby, never in our wildest dreams did we think term was possible.

Seeing the oncologist next week to see what happens when and get everything planned out. I know I should have a list of questions about port placement and chemo and liver resection but I'm not sure what to ask!!

Thanks so much for all the good thoughts, keep it up because they're working!
Last edited by AmyG on Fri Feb 01, 2019 1:24 pm, edited 1 time in total.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

hopie
Posts: 90
Joined: Fri Jan 18, 2019 12:15 pm

Re: Liver ultrasound tomorrow!

Postby hopie » Wed Jan 30, 2019 1:00 pm

Dear Amy,
Good luck with your scan tomorrow and I hope your liver is cooperating! I'm wishing the tiniest things for you.
I also want to say that I've been reading your posts and I admire your attitude. And a side note: I was born a month earlier than planned, but I grew up just fine and made it to Harvard, where I found out that my cohort of 6 consisted of 5 early-borns, so even if might work for the best after all :lol:
Caregiver to my super-mom (62), diagnosed Dec 2018
Sigmoid colon, Stage IV
G3, Poorly differentiated adenocarcinoma (5,5 x 4 x 1 cm)
T4N2bM1
13 positive out of 23 lymph nodes, largest one 1,8 cm
4(?) mets in liver, located at Segment 3 & 7, largest one 2 cm
LVI & PNI present
Clear surgical margins
MSS, KRAS G13D mutant
Laparoscopic anterior resection, Jan 2019

First chemo 11 Feb 2019 (Folfox). 25/2/19 Folfox + Avastin.

debb
Posts: 191
Joined: Sun Dec 21, 2008 9:03 pm
Location: NJ

Re: Liver ultrasound tomorrow!

Postby debb » Wed Jan 30, 2019 1:24 pm

Sending lots of positive energy your way for the best possible outcome! You got this, mama!
2008, Stage 3C, age 42, mom of 4
Folfox 9/08-2/09
Met to right ovary, both removed 7/10
HIPEC 8/10
VATS 7/12, right lung
10/14 Stivarga clinical trial
3/15-7/15 Folfiri & avastin
8/16 Folfiri & avastin
Break! 10 months of freedom
1/18 - 4/23 many Folfiri & Avastin
6/23 Clinical trial REGN7075. Progression
8/23 radiation to femurs and L4
9/23 rechallenged Folfox. Allergic reaction at 4th infusion
11/23 will start Bot/Bal

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Liver ultrasound tomorrow!

Postby Punky44 » Wed Jan 30, 2019 2:10 pm

Sending good vibes your way!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: Liver ultrasound tomorrow!

Postby stu » Wed Jan 30, 2019 2:22 pm

Holding out for all things good for you and your wee baby !
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Nohogirl
Posts: 116
Joined: Sun Oct 14, 2018 12:15 am

Re: Liver ultrasound tomorrow!

Postby Nohogirl » Wed Jan 30, 2019 3:23 pm

Prayers for you and your baby
04/18 DH 49 Stage 2A T3N0M0 rectal cancer moderately differentiated.
05/18 chemorad. (Xeloda) 28 days
08/18 Surgery- 24 cm, including entire rectum out
Path -Stage II T2N0M0 moderate to poorly diff. adenocarcinoma
0 of 15 lymph nodes
No PNI
No LVI
Clear margins
10/18-02/19 8 cycles of Folfox
02/19 Pet Scan. NED
08/19 Pet Scan NED
08/19 Colonoscopy Clear

User avatar
texmexflute
Posts: 12
Joined: Mon Dec 31, 2018 9:59 pm
Location: Dallas, Texas

Re: Liver ultrasound tomorrow!

Postby texmexflute » Wed Jan 30, 2019 3:31 pm

My last child born was 24 weeks gestation - 1 lb 14 oz. The survival rate at that time was 10%. She is now 25 and has just finished her masters degree in social work. When we saw 30+ week babies, they looked HUGE! And they were in and out of the NICU so fast. Just like cancer care has changed, so has preemie care. So your little one will do GREAT no matter whether 31 weeks or 34 weeks. We'll keep you both in our prayers. You are amazing!
62 yo Male (polio survivor) DX 2-2018
2-18 right hemi-colectomy (robotic/minimally invasive)
Stage 3b - T4N1Mx
3-18 thru 8-18 xeloda
9-18 scans indicate 4 liver mets
and possibly in omentum/peritoneum
Upgraded to stage 4
9-18 thru 11-18 4 rounds Folfiri + Avastin, 2 rounds Folfiri only
12-26-18 3 liver mets removed (robotic/minimally invasive) + omentum biopsy (no cancer)
1-19 SBRT remaining 2 liver mets that were hard to reach
2-19 begin 6 rounds of mop-up chemo but folfox this time

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Liver ultrasound tomorrow!

Postby LPL » Wed Jan 30, 2019 5:06 pm

Sending lots of good vibration to you for the ultrasound tomorrow!!!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Re: Liver ultrasound tomorrow!

Postby AmyG » Thu Jan 31, 2019 12:57 pm

Well, the ultrasound tech only measured the one spot. And while it's grown it's not like...giganticly bigger than it was. 4.7cm was the last measurement and she has it at 6.4cm and I want to say that's over a few months. I'm thinking I should be okay for another 2.5 weeks.

Will have to wait for the radiologist to read it, but I'm tentatively thinking I get to wait to deliver! I realize that could change, but as of right now I'm feeling pretty good about things.

Thank you all for the well wishes!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

Deb m
Posts: 558
Joined: Tue Jan 14, 2014 10:08 am

Re: Liver ultrasound tomorrow!

Postby Deb m » Thu Jan 31, 2019 1:00 pm

Praying that everything goes well for you and you new little one soon to arrive!
Deb m

AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Re: Liver ultrasound tomorrow! Update!!

Postby AmyG » Sat Feb 02, 2019 2:03 pm

We've settled on a tentative induction date: 3/15!!! That's the very end of 37 weeks!!

:shock:

Can you tell I'm excited? :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Liver ultrasound tomorrow! Update!!

Postby Punky44 » Sat Feb 02, 2019 4:10 pm

Happy baby can cook a little longer! :)
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

erins
Posts: 44
Joined: Sun May 27, 2018 12:41 pm

Re: Liver ultrasound tomorrow! Update!!

Postby erins » Sat Feb 02, 2019 6:46 pm

Happy for you and the little one (also, they’ll be able to make AWESOME ‘ides of March’ birthday jokes...we’ll, likely their siblings will :P )
38 yr old female
Rectal bleeding for 1 month—>
5/4/18 colonoscopy found mass in sigmoid colon
5/21/18 LAR
stage 2a, 0/17 lymph, clean margins
T3N0M0 G1
LVI neg, PNI neg, MSS
9/21/18 CEA 0.8
11/16/18 CEA 0.8 & CT clear
12/7/18 iron infusion
2/1/18 iron improved, CEA stable.


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