Nordy1 wrote:Hello everyone
I've just finished my chemo in November and had a clean scan, except that 3 or 4 small unknown spots had disappeared or shrunk through chemo. It leaves a big question mark regarding if they were mets or not. I have another scan in 2 weeks and some blood work on for tomorrow and I wanted to ask everybody here if they regularly have the CTC (circulating tumor cell) test done? Is it standard for some treatment centers?
I feel that because I have the big question mark over my head regarding the disappearing spots that CTC might be a good indicator. My CEA has never been higher then 3.5 even right after surgery so not a good indicator, and CRP is sitting steady at 6.
Have any of you had independent CTC testing done?
I know from reading here I'm hardly alone in my fear of the uncertain, and that nothing is black and white, sometimes I feel like a formal pronouncement of yes it has progressed to stage 4 would be preferable to the cloud of doubt - the "we just wait and see" attitude. At least I would have a plan then.....
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