Happy Post- Rectal Metastatic to Liver, now cured

Please feel free to read, share your thoughts, your stories and connect with others!
Badass
Posts: 1166
Joined: Sun Jan 15, 2012 11:42 am

Happy Post- Rectal Metastatic to Liver, now cured

Postby Badass » Tue Jan 29, 2019 10:20 am

Hi,
This is the post I would have loved to read six years ago. I had Stage 2 rectal dx in 2011, LAR, radiation and chemo, and a year-and-a-half later metastasis to liver. I went to see Dr. Kemeny at Sloan-Kettering (thanks to the wonderful users of this site) and had liver resection and hepatic pump installed. This past weekend my chemo port and hepatic pump were removed because my oncologists and surgeon feel the cancer is gone for good. I realize many on this Board are not going to have the same outcome and that gives me great pain-- just as well could have been me. I want to give hope to the newly diagnosed however because when I heard "liver met," I thought I was looking at the end of my life. Love and gratitude to all.

Jane
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

mpbser
Posts: 936
Joined: Wed Apr 19, 2017 11:52 am

Re: Happy Post- Rectal Metastatic to Liver, now cured

Postby mpbser » Tue Jan 29, 2019 11:18 am

Another HAI pump success story! I LOVE LOVE LOVE LOVE LOVE hearing these. This is why we switched to MSK recently and will be having a surgery/pump placement March 7th. Will keep everyone posted!
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Happy Post- Rectal Metastatic to Liver, now cured

Postby LPL » Tue Jan 29, 2019 12:03 pm

Badass, Wonderful news - BIG Congratulation!!! :D

mpbser, Good to see that you now have a date.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

Lee
Posts: 5974
Joined: Sun Apr 16, 2006 4:09 pm

Re: Happy Post- Rectal Metastatic to Liver, now cured

Postby Lee » Tue Jan 29, 2019 1:35 pm

AWESOME :D :D

Congratulations, may you always reside in NEDville,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

stu
Posts: 1223
Joined: Sat Aug 17, 2013 5:46 pm

Re: Happy Post- Rectal Metastatic to Liver, now cured

Postby stu » Tue Jan 29, 2019 4:34 pm

Lovely news Jane ,
Enjoy
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

heiders33
Posts: 362
Joined: Sat Nov 04, 2017 11:08 am

Re: Happy Post- Rectal Metastatic to Liver, now cured

Postby heiders33 » Tue Jan 29, 2019 6:23 pm

Wow, your signature is VERY similar to mine! I am in the middle of HAI treatment and hope to be where you are one day.
37 year-old female
May 2017: Dx rectal cancer T3N2M0
MSS, KRAS G12D
6/17: 28 days chemorad
9/17: LAR/loop ileostomy
10/17 - 2/18: XELOX six rounds
3/18: reversal
5/18: CT liver spot, blood counts normal
8/18: Abnormal PET, CEA 2.4
9/18: liver resection/HAI pump
10/18: Clear CT/sigmoidoscopy
10/18 - 4/19: 6MO FUDR/5FU
7/19 - Clear CT
9/19 - Clear colonoscopy/colonography
10/19 - Clear CT
11/19 - CEA 9.8, PET abnormal, confirmed local recurrence

User avatar
juliej
Posts: 3052
Joined: Thu Aug 05, 2010 12:59 pm

Re: Happy Post- Rectal Metastatic to Liver, now cured

Postby juliej » Tue Jan 29, 2019 7:23 pm

WOOO-HOOO!!! HIGH FIVE, Jane!!! :D :D :D I remember you were part of the original pump gang.

I'm due to have my HAI pump and medi-port removed in a few weeks too. My case was a little more complicated than yours (tumors in all lobes of my liver plus in both lungs), but here we both are, Stage 4's who have defied the odds thanks to the pump.

I wish you a long, happy, and healthy life!

xo,
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 9/23/2019, CEA<1

Punky44
Posts: 403
Joined: Mon Oct 01, 2018 4:29 pm

Re: Happy Post- Rectal Metastatic to Liver, now cured

Postby Punky44 » Tue Jan 29, 2019 11:16 pm

Congratulations!!!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

User avatar
ginabeewell
Posts: 371
Joined: Wed Oct 24, 2018 10:30 am

Re: Happy Post- Rectal Metastatic to Liver, now cured

Postby ginabeewell » Wed Jan 30, 2019 12:33 am

Wow - as someone who is on the cusp of an HAI pump (scan at MSK Feb 18 to confirm I'm ready for resection and pump placement), this comes as extremely encouraging news. So happy to read it - for your sake as well as mine!
; )

Go forth and be well!
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

Badass
Posts: 1166
Joined: Sun Jan 15, 2012 11:42 am

Re: Happy Post- Rectal Metastatic to Liver, now cured

Postby Badass » Mon Feb 18, 2019 8:08 am

Hi Ginabeewell,
MSKCC is a wonderful place! Are you working with Dr. Kemeny? I had Dr. Jarnigan as a surgeon-- fantastic doctor and human being.
Wishing you all the best. Feel free to PM me anytime!
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

User avatar
ginabeewell
Posts: 371
Joined: Wed Oct 24, 2018 10:30 am

Re: Happy Post- Rectal Metastatic to Liver, now cured

Postby ginabeewell » Mon Feb 18, 2019 9:09 am

Badass wrote:Hi Ginabeewell,
MSKCC is a wonderful place! Are you working with Dr. Kemeny? I had Dr. Jarnigan as a surgeon-- fantastic doctor and human being.
Wishing you all the best. Feel free to PM me anytime!


Yes we are working with Dr Kemeny. I'm actually at 55th Street waiting for my CT scan now! Next a consult with Dr Kingham and then Dr Kemeny this afternoon. It will feel good to get a little more clarity on what the next few weeks / months will hold.
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

Badass
Posts: 1166
Joined: Sun Jan 15, 2012 11:42 am

Re: Happy Post- Rectal Metastatic to Liver, now cured

Postby Badass » Mon Feb 18, 2019 9:22 am

Heider33,
So glad you found your way to HAI pump and having good results! Wonderful that this is available to us liver-folks! Wishing you permanent Ned-ville!

Jane
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

User avatar
CRguy
Posts: 10038
Joined: Sun Feb 10, 2008 6:00 pm

Re: Happy Post- Rectal Metastatic to Liver, now cured

Postby CRguy » Mon Feb 18, 2019 2:12 pm

Hey homie
glad to hear you are still kickin BADass and taking names !!

Mega Cheers for continued success
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

NHMike
Posts: 2338
Joined: Fri Jul 21, 2017 3:43 am

Re: Happy Post- Rectal Metastatic to Liver, now cured

Postby NHMike » Mon Feb 18, 2019 5:41 pm

I'm happy to hear that the treatment went very well.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

mariane
Posts: 676
Joined: Sun Sep 13, 2015 6:16 pm

Re: Happy Post- Rectal Metastatic to Liver, now cured

Postby mariane » Tue Feb 19, 2019 3:03 pm

Thank you for letting us know, Jane. I am so happy!! Congratulations!!!
mom of now 10 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Majestic-12 [Bot] and 32 guests