Its me....Again

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Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Its me....Again

Postby Trying » Sun Jan 27, 2019 8:59 pm

Im sorry i poat so much but please know each of you who replies helps me so ao much. I had a horrendous chemo experience last time and im petrified to go back tuesday. Im sick of this. Im in constant fear. Please pray ill be ok. I cant even get to the pychiatrist i was to see due to a mix up im child care. Can someone please enxpurage me with my situation. My baby is only 2 and his dad ran away after 10 years of being together. I thought tjat was the highlight of crap in my life but now we face this terrifying battle. I realuze it must be annoying how much i post but dont know what else to do and it really helps. Please offer words of encouragement forr my liver mets which are 2 from 10 and my ever so annoying peri met.

Thank you for reading

Nicole
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

Caat55
Posts: 694
Joined: Sat Dec 23, 2017 6:01 pm

Re: Its me....Again

Postby Caat55 » Sun Jan 27, 2019 9:46 pm

Hold tight and believe in yourself and your body.
Susan
Do at 55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19, 5/20

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: Its me....Again

Postby Trying » Sun Jan 27, 2019 9:55 pm

Thank you
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

martd
Posts: 128
Joined: Tue Nov 21, 2017 3:48 pm
Location: Phoenix, Az

Re: Its me....Again

Postby martd » Sun Jan 27, 2019 10:05 pm

Hang in there Nicole, you've come a long way so far and you're doing awesome. I had chemo sessions that were also much worse than previous ones but then the next would be a lot better. Be sure and hydrate the day before and stay hydrated during. You're having a really good response to chemo let that lift your spirits up.

Dan
49 y/o male dx 11/2017 crc
Stage 4 with 17 liver Mets, cea 490
RAS, BRAF WT Tp53 LOF
12 rounds folfox , avastin
5/18 cea 2.8 liver resection and pve
7/18 part 2 liver resection, remove right side of liver
Surgical site mrsa infection, wound vac
8/18 cea .9 cCR, rectal tumor is gone
Rectal surgery postponed, watch and wait
10/18 clear scan CEA .7
01/19 clear scan CEA .9
04/19 clear scan CEA .9
07/19 clear scan CEA 1.0

User avatar
ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

Re: Its me....Again

Postby ginabeewell » Sun Jan 27, 2019 11:39 pm

It looks like your body has done a great job of healing so far. It is strong, and it wants to be healthy.

Agree that hydration (or lack thereof) can really impact how diffuse a cycle is for me, so drink lots or don't be afraid to ask for fluids mid-cycle. My doctor set me up so I can do it myself at home when I disconnect the pump; and I have them reaccess me the following week for some more. It really helps.

You're a mom, you can do anything!!
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

Join me on a lookback of my journey via my Strive for Five on Substack here:
https://ginajacobson.substack.com

All treatment details here:
https://www.weareallmadeofstars.net/col ... nt-journey

My favorite posts here:
https://weareallmadeofstars.net/favorite-posts

debb
Posts: 191
Joined: Sun Dec 21, 2008 9:03 pm
Location: NJ

Re: Its me....Again

Postby debb » Sun Jan 27, 2019 11:55 pm

Hi...just wanted to join the others in encouraging you! You have been doing great! We all here can commiserate with you about how hard chemo is. Come hear and vent anytime you need it. There is always someone here who gets it and can encourage you.
Hydrate, sleep and snuggles with your little one will get you through this next round!! You got this!
(I’d help your with childcare issues in a sec if we lived closer.)
Good luck!!
2008, Stage 3C, age 42, mom of 4
Folfox 9/08-2/09
Met to right ovary, both removed 7/10
HIPEC 8/10
VATS 7/12, right lung
10/14 Stivarga clinical trial
3/15-7/15 Folfiri & avastin
8/16 Folfiri & avastin
Break! 10 months of freedom
1/18 - 4/23 many Folfiri & Avastin
6/23 Clinical trial REGN7075. Progression
8/23 radiation to femurs and L4
9/23 rechallenged Folfox. Allergic reaction at 4th infusion
11/23 will start Bot/Bal

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Its me....Again

Postby Punky44 » Mon Jan 28, 2019 12:36 am

Keeping you in my prayers Nicole—you got this!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

hopie
Posts: 90
Joined: Fri Jan 18, 2019 12:15 pm

Re: Its me....Again

Postby hopie » Mon Jan 28, 2019 3:46 am

Dear Nicole,
I'm new around here as a care-giver to my dear mom; she has mets in her liver too. That your liver mets were SO responsive to chemo is AMAZING. 10 to 2 means 80% response! Your body is on your side, it's fighting with you--would it help to think chemo as your arsenal?

I won't dare to say I fully understand since I'm not the one going through it, but as an only child of another strong woman going through this, I know your kid will get stronger as you fight this too.

I'm sorry I don't have much to offer practically to help, but this forum is amazing, it has lots of inspiring people. That said, it is OK to be miserable time to time. Just like our digestive systems (which we all know now might bring us trouble), I feel that we have to let our emotions out to avoid future blockage.
I'm sending energies your way.
Caregiver to my super-mom (62), diagnosed Dec 2018
Sigmoid colon, Stage IV
G3, Poorly differentiated adenocarcinoma (5,5 x 4 x 1 cm)
T4N2bM1
13 positive out of 23 lymph nodes, largest one 1,8 cm
4(?) mets in liver, located at Segment 3 & 7, largest one 2 cm
LVI & PNI present
Clear surgical margins
MSS, KRAS G13D mutant
Laparoscopic anterior resection, Jan 2019

First chemo 11 Feb 2019 (Folfox). 25/2/19 Folfox + Avastin.

dliu
Posts: 66
Joined: Sun Jun 03, 2018 7:16 am

Re: Its me....Again

Postby dliu » Mon Jan 28, 2019 4:31 am

Nicole, you're not annoying, you're going through a tough time! It doesn't look like life gave you much of a break in recent times, BUT your body is fighting like a champion. Chemo is awful, but it's been working wonders on you, so as painful as it is, try to focus on the idea one day you may be logging in to the forum to offer comforting words to other people who are going through what you went through... long ago!
Sadly I am not religious, but you are often in my thoughts as a fighter and an inspiration!
Caring for my mum, 65
Sigmoid resection, multiple liver mets
09/05/2018 Dx Stage IV, 6/11 LN - KRAS G12V
28/05/2018 First round of FOLFOX + Avastin

CEA down from 6000+ (05/2018) to 843 (08/2018) to 377 (11/2018)
9/10 rounds with Oxaliplatin
8/10 rounds with Bevacizumab

User avatar
Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Its me....Again

Postby Maggie Nell » Mon Jan 28, 2019 11:20 am

Bummer that your child care arrangements fell through. It is little craptacular things like this, that
call for a strategy to be put into place so you can pull back on the fear throttle. The most DIY way
to do that is to learn how to self-soothe.

This is a link to a Stillness Meditation sound file
Duration: 16min 07sec | 6.5 MB - Credit: Pauline McKinnon | Download mp3

http://www.abc.net.au/health/features/s ... 625627.htm

This technique was developed by Australian psychiatrist, Dr Ainslie Meares in the 1960s.

Pauline had been my teacher in the early 1990s. She has a lovely soothing and calming voice. Hopefully
you can download the mp file, save it on your PC or wherever. Give it a go and see how it feels. It's
about being aware of your body, where you are holding tension in your body (clenched jaw, hands in fist
instead of flat, etc) and releasing that - learning how to trust your body and how to 'drop into' that
chill zone whenever you feel yourself flipping out.

Pauline McKinnon was my godsend in 1990 when I thought I had seen the worst I would ever have
to go through.......and the beat and the breath goes on!
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

Detox
Posts: 61
Joined: Fri Apr 28, 2017 5:27 pm

Re: Its me....Again

Postby Detox » Mon Jan 28, 2019 12:43 pm

Hoping you get through the chemo okay.

I apologize that I don't have specific experience but I've heard of patients taking chemo breaks. I'm not sure if you would want to do this definitely ask your oncologist and surgeon about other methods available. Also talk to a GI doctor as they may have some other options for dealing with liver metastases rather than just chemo.

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: Its me....Again

Postby Trying » Mon Jan 28, 2019 8:54 pm

You are all so amazing. Thank you guys
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: Its me....Again

Postby Trying » Mon Jan 28, 2019 8:54 pm

You are all so amazing. Thank you guys
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020


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