Coming out of the Tunnel of Hospitalisation

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Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Coming out of the Tunnel of Hospitalisation

Postby SteveNZ » Sun Jan 27, 2019 5:24 pm

Hi folk I have not shared for ages.
The whole thing gets pretty depressing at times... :( :(

GREAT NEWS - Am home with no sign of any cancer and off to a job interview tomorrow.

In August last year had an 'AP resection' and from there on it was hell.... (Sorry but it was.... still the drugs helped me hide away...)
That tube up my nose and down to my stomach (I had to have it placed three times) had me continually gagging and choking away. Man they can be terrifying!

MY PROBLEM- My bowel refused to work and the post op ileus (plus complications) had me in for 79 days. Man it all 'HURT LIKE ......" :D :( :D
A second operation was required to resolve/for, I quote "..laparotomy, adhesiolysis, small bowel resection and an appendicectomy."
Had two blood transfusions which intrigued me. :(

One of the worse outcomes was that the wound on my butt just refused to heal. Was in January 2019 they finally declared it resolved.
An awkward outcome of it all is some nerve damage ???? and I have a slightly numb right leg and cannot balance on the crazy spots like I used to.
Haha .... and for all you folk who have it, I now do these 'George Foreman - Walk it off exercises' , with my wife, which has helped heaps. :D :x :D

Things do get better after surgery and I personally can rejoice that there is no sign of any cancer. :D :D :D I have the 3 monthly tests to check on things.
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
August 27th-November 2018 - Surgery and long, long recovery
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

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Maggie Nell
Posts: 1134
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Coming out of the Tunnel of Hospitalisation

Postby Maggie Nell » Sun Jan 27, 2019 7:05 pm

79 days straight!!

You might be the current holder of the forum record, SteveNZ!! Good to see you back
with a well-earned recovery under your belt. Kia kaha!
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
July 2019 : pending liver U/S, colonoscopy
rut roh

Posts: 677
Joined: Sat Dec 23, 2017 6:01 pm

Re: Coming out of the Tunnel of Hospitalisation

Postby Caat55 » Sun Jan 27, 2019 9:48 pm

Good luck with the interview. Glad you are home. Nothing in this process should be a surprise but there is always something new.

55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

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Posts: 156
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Coming out of the Tunnel of Hospitalisation

Postby mobrouser » Sun Jan 27, 2019 10:32 pm

I am thrilled to see a new post from you. Keep up the fight. Being NED is awesome.
mob 8)
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

Posts: 6059
Joined: Sun Apr 16, 2006 4:09 pm

Re: Coming out of the Tunnel of Hospitalisation

Postby Lee » Mon Jan 28, 2019 9:27 am

I hope 2019 brings you MUCH BETTER HEALTH!! So glad to read you are out of the big house.

Take care,

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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Posts: 3110
Joined: Thu Aug 05, 2010 12:59 pm

Re: Coming out of the Tunnel of Hospitalisation

Postby juliej » Mon Jan 28, 2019 7:44 pm

You definitely deserve a break! May 2019 bring you good health, continued NED status, and a fantastic new job!
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

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