Does anyone talk to StephenWinsToday?

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Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Does anyone talk to StephenWinsToday?

Postby Steph20021 » Sat Jan 26, 2019 12:08 pm

It’s been a while since StephenWinsToday has been active on this board. Does anyone talk to him and know how he is doing? Is he still NED? Is he having routine blood tests and scans? I miss following his journey and getting updates.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab

FightCRC
Posts: 55
Joined: Fri May 25, 2018 10:39 pm

Re: Does anyone talk to StephenWinsToday?

Postby FightCRC » Sat Jan 26, 2019 12:25 pm

He is quite active on the various CRC groups on Facebook. Still doing well, and now serving (iirc) as an advocate via Colon Cancer Alliance.

The groups are well worth joining for information and networking. I'm not a fan of FB at all, and wouldn't be there if it wasn't for those groups. Feel free to PM me if you want to learn more.

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Does anyone talk to StephenWinsToday?

Postby Steph20021 » Sat Jan 26, 2019 1:33 pm

FightCRC wrote:He is quite active on the various CRC groups on Facebook. Still doing well, and now serving (iirc) as an advocate via Colon Cancer Alliance.

The groups are well worth joining for information and networking. I'm not a fan of FB at all, and wouldn't be there if it wasn't for those groups. Feel free to PM me if you want to learn more.

I’ll msg you, thanks!!! That’s so great to hear he is still doing well. Such a role model, especially for lynch patients (I’m not but it’s still encouraging).
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab


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