New Here

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FrankDuke1619
Posts: 10
Joined: Thu Jan 24, 2019 7:57 am

New Here

Postby FrankDuke1619 » Thu Jan 24, 2019 8:05 am

Hey everyone,
My dad is currently in the hospital after going to the bathroom Friday night and a good amount of blood coming out they did a colonoscopy and found a 6cm mass on his colon. We’re still awaiting biopsy results but it seems to definitely be cancer according to his drs. They also did a CT scan and found there to be a lesion on his lung which they’re now doing a MRI and some other tests to see if that is also cancer. His oncologist recommended potentially starting with chemo to shrink the msss and then surgery to remove it. Do you think this is the best course of action? Also can there be a lesion on the liver that is benign? Either way we plan on fighting this all the way I already have a keto diet in the works and a stack of supplements. Any help we be greatly appreciated. Thanks

hiker
Posts: 139
Joined: Thu Aug 09, 2018 10:15 am

Re: New Here

Postby hiker » Thu Jan 24, 2019 10:54 am

Not sure about the keto diet and supplements, but if your dad is healthy/strong enough he can get through this. Before doing chemo, make sure you tell his oncologist about any supplements he's taking as some can interfere with the chemo.

Where is he being treated? You can search my postings to see my experience and how I had to go through several oncologists and surgeons before finding doctors who would aggressively treat my cancer. If your dad is in fact stage iv with liver and/or lung mets, please get a second opinion at a major cancer center.

hiker
Colonoscopy 2/17, 5cm tumor descending
Diagnosed stage iv, liver mets 3/17
Colon resection 3/17
Told surgery not an option, get my affairs in order
Meet w/MSK team 5/01/17
Folfox(3rds) 5/17-6/17
Liver resection/implant HAI pump 7/17
HAI pump chemo(5rds) 8/17-2/18
Folfiri+Vectibix(11rds) 8/17-2/18
Spot on chest CT 10/17
Lung biopsy (that was fun) 11/17
Nocardia bacterial infection w/spread to brain (this is serious) 11/17
IV antibiotics 12/17-2/18
Oral antibiotics 3/18-12/18
Clear of cancer since surgery

Pyro
Posts: 305
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: New Here

Postby Pyro » Thu Jan 24, 2019 11:21 am

FrankDuke1619 wrote:Hey everyone,
My dad is currently in the hospital after going to the bathroom Friday night and a good amount of blood coming out they did a colonoscopy and found a 6cm mass on his colon. We’re still awaiting biopsy results but it seems to definitely be cancer according to his drs. They also did a CT scan and found there to be a lesion on his lung which they’re now doing a MRI and some other tests to see if that is also cancer. His oncologist recommended potentially starting with chemo to shrink the msss and then surgery to remove it. Do you think this is the best course of action? Also can there be a lesion on the liver that is benign? Either way we plan on fighting this all the way I already have a keto diet in the works and a stack of supplements. Any help we be greatly appreciated. Thanks


In general that does sound like a normal standard of care.
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

rp1954
Posts: 1857
Joined: Mon Jun 13, 2011 1:13 am

Re: New Here

Postby rp1954 » Thu Jan 24, 2019 12:11 pm

Although I think that low carb diet and serious supplements have benefits, your dad will need to take multiple steps to maximize his life span, achieve NED, and highest quality of life. It is easy to over rely on random alternative medical "advice" that is inadequate to the job ahead where careful integration of standard and alternative medicine is required to make big gains long term.

The most successful steps typically include some kind of chemo, and surgery(s). If you want to do better than standard medicine, you need to be prepared to systematically get better opinions, better data, and more knowledge. Hugely improved supplement plans and targetable off label generic drugs can add substantial improvements. Most people greatly underestimate the information, quantities and potencies of supplements required to systematically add the big improvements.

Inadequate initial blood data is a serious problem that I've always encountered. Ordinary doctors and hospitals are usually varying degrees uncooperative on non standard tests that actually have cumulative long term consequences on (y)our options. But people can order their own blood tests online or on the phone.

The more specifics you can measure or document here, (extra) blood tests, pathology, and scans, the more chances you might find more answers, even less known world class options. Many people use their signature to summarize these.

It is important to not let any potential mets or micromets grow unchecked, some kind of treatment plan ASAP is important. Self-advocacy, reading/expertise, and a careful, action orientation are important factors. My wife used immune aids like cimetidine, modified citrus pectin (MCP), high dose vitamin D3, and other natural anti-cancer compounds my wife took for 2-4 weeks before her first surgery. Before her second surgery we used about 30,000-40,000 iu vitamin D3 per day for even more immune modulation and response, where she was clearly vitamin D deficient before cancer diagnosis (see my previous D3 comments on more magnesium and MK4 type of vitamin K2 and avoiding excess calcium).

My belief is that if you want to stay above average performance for whatever your family has been dealt, you have to combine expertises beyond "standard care". I read these articles early on: Life Extension Foundation's intro to CRC, cancer surgery, Beyond colonscopy, Preventing surgery induced metastasis. Adding some mild drugs and carefully chosen, extra potent supplements totally changed our situation, inexpensively.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper chemo to almost nothing mid 2018, IV C-->2021. Now supplements

FrankDuke1619
Posts: 10
Joined: Thu Jan 24, 2019 7:57 am

Re: New Here

Postby FrankDuke1619 » Thu Jan 24, 2019 12:25 pm

hiker wrote:Not sure about the keto diet and supplements, but if your dad is healthy/strong enough he can get through this. Before doing chemo, make sure you tell his oncologist about any supplements he's taking as some can interfere with the chemo.

Where is he being treated? You can search my postings to see my experience and how I had to go through several oncologists and surgeons before finding doctors who would aggressively treat my cancer. If your dad is in fact stage iv with liver and/or lung mets, please get a second opinion at a major cancer center.

hiker


Currently he’s being treated at Inspira Hospital in Woodbury, NJ but I may get a second opinion from somewhere else as they seem to be taking long to figure things out. They did a biopsy on Monday and as of yesterday it still wasn’t back yet. The oncologist suggested doing surgery first if it’s stage 4 to remove the spot on the liver and remove the tumor from the colon. Or if it’s stage 3 she suggested chemo followed by surgery. My dad is strong and in good spirits so far.

FrankDuke1619
Posts: 10
Joined: Thu Jan 24, 2019 7:57 am

Re: New Here

Postby FrankDuke1619 » Thu Jan 24, 2019 2:38 pm

Pyro wrote:
FrankDuke1619 wrote:Hey everyone,
My dad is currently in the hospital after going to the bathroom Friday night and a good amount of blood coming out they did a colonoscopy and found a 6cm mass on his colon. We’re still awaiting biopsy results but it seems to definitely be cancer according to his drs. They also did a CT scan and found there to be a lesion on his lung which they’re now doing a MRI and some other tests to see if that is also cancer. His oncologist recommended potentially starting with chemo to shrink the msss and then surgery to remove it. Do you think this is the best course of action? Also can there be a lesion on the liver that is benign? Either way we plan on fighting this all the way I already have a keto diet in the works and a stack of supplements. Any help we be greatly appreciated. Thanks


In general that does sound like a normal standard of care.


The thing that kinda scared me was and this hospital has not had a Greg reputation mainly for its ER wait time but the Oncologist sounded a little surprised that he was being treated there. Maybe it’s just me but I picked up my on that right away so I think we might look elsewhere.

User avatar
O Stoma Mia
Posts: 1709
Joined: Sat Jun 22, 2013 6:29 am
Location: On vacation. Off-line for now.

Re: New Here

Postby O Stoma Mia » Fri Jan 25, 2019 12:44 am

FrankDuke1619 wrote:...
The thing that kinda scared me was and this hospital has not had a great reputation mainly for its ER wait time but the Oncologist sounded a little surprised that he was being treated there. Maybe it’s just me but I picked up my on that right away so I think we might look elsewhere.


Inspira Medical Center (formerly known as Underwood Memorial Hospital, before 2012 merger)
https://health.usnews.com/best-hospitals/area/nj/underwood-memorial-hospital-6221630
https://health.usnews.com/best-hospitals/area/nj/underwood-memorial-hospital-6221630/gastroenterology-and-gi-surgery

You might be able to find a better hospital in Camden or in South Philadelphia

FrankDuke1619
Posts: 10
Joined: Thu Jan 24, 2019 7:57 am

Re: New Here

Postby FrankDuke1619 » Fri Jan 25, 2019 5:32 am

Yea I reached out to MD Anderson at Cooper hospital which isn’t to far away and they said as long as his Dr signed off on it they could put in a transfer and send an ambulance to pick him up. Those ratings are terrible and I looked up the one Dr (Dr Abrams) he only had one review and it looked to be fake.

Beckster
Posts: 438
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: New Here

Postby Beckster » Fri Jan 25, 2019 7:37 am

FrankDuke1619 wrote:
hiker wrote:Not sure about the keto diet and supplements, but if your dad is healthy/strong enough he can get through this. Before doing chemo, make sure you tell his oncologist about any supplements he's taking as some can interfere with the chemo.

Where is he being treated? You can search my postings to see my experience and how I had to go through several oncologists and surgeons before finding doctors who would aggressively treat my cancer. If your dad is in fact stage iv with liver and/or lung mets, please get a second opinion at a major cancer center.

hiker


Currently he’s being treated at Inspira Hospital in Woodbury, NJ but I may get a second opinion from somewhere else as they seem to be taking long to figure things out. They did a biopsy on Monday and as of yesterday it still wasn’t back yet. The oncologist suggested doing surgery first if it’s stage 4 to remove the spot on the liver and remove the tumor from the colon. Or if it’s stage 3 she suggested chemo followed by surgery. My dad is strong and in good spirits so far.


I am from the area....I went to Dr Steven McClane from Cooper ....He is the department head and Codirector of the MD Anderson Gastrointestional Center. McClane is a rock star and you will not be disappointed. He has 3 offices in South Jersey and is a top colonrectal surgeon. After surgery, I stayed there and went to MD Anderson....they were great. If you need additional info, let me know
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic
1/2/17 to 6/9/17- Xeloda
6/17,12/17,6/18,12/18,6/19,12/19,12/20,12/21 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8 6/20 3.0 12/20 2.7 6/21 2.9,[color=#000000]12/21 2.7[/color]
Clear Colonoscopy 10/17, 11/19,11/21 :D

FrankDuke1619
Posts: 10
Joined: Thu Jan 24, 2019 7:57 am

Re: New Here

Postby FrankDuke1619 » Fri Jan 25, 2019 8:10 am

Beckster wrote:
FrankDuke1619 wrote:
hiker wrote:Not sure about the keto diet and supplements, but if your dad is healthy/strong enough he can get through this. Before doing chemo, make sure you tell his oncologist about any supplements he's taking as some can interfere with the chemo.

Where is he being treated? You can search my postings to see my experience and how I had to go through several oncologists and surgeons before finding doctors who would aggressively treat my cancer. If your dad is in fact stage iv with liver and/or lung mets, please get a second opinion at a major cancer center.

hiker


Currently he’s being treated at Inspira Hospital in Woodbury, NJ but I may get a second opinion from somewhere else as they seem to be taking long to figure things out. They did a biopsy on Monday and as of yesterday it still wasn’t back yet. The oncologist suggested doing surgery first if it’s stage 4 to remove the spot on the liver and remove the tumor from the colon. Or if it’s stage 3 she suggested chemo followed by surgery. My dad is strong and in good spirits so far.



I am from the area....I went to Dr Steven McClane from Cooper ....He is the department head and Codirector of the MD Anderson Gastrointestional Center. McClane is a rock star and you will not be disappointed. He has 3 offices in South Jersey and is a top colonrectal surgeon. After surgery, I stayed there and went to MD Anderson....they were great. If you need additional info, let me know


That’s awesome I was just looking at his info and we’re working on getting him moved to MD Anderson today.

Beckster
Posts: 438
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: New Here

Postby Beckster » Fri Jan 25, 2019 12:24 pm

For some reason my post did not post....so here it is again

MD Anderson oncologist suggestions

Mine oncologist is Dr. Jamin Morrison. He is young and very smart! Dr. McCLane suggested him to me. Here is his bio https://www.cooperhealth.org/doctors/jamin-morrison-md Another oncologist I would suggest is Alexandre Hageboutros, MD https://www.cooperhealth.org/doctors/al ... boutros-md

They are a multidisciplary team, so he will probably see Dr Francis R Spitz, MD, FACS https://www.cooperhealth.org/doctors/francis-spitz-md

I hope this helps...Let me know how you make out. I have been going there for over 2 years. They are agressive with pathology and treatment, but worth it.
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic
1/2/17 to 6/9/17- Xeloda
6/17,12/17,6/18,12/18,6/19,12/19,12/20,12/21 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8 6/20 3.0 12/20 2.7 6/21 2.9,[color=#000000]12/21 2.7[/color]
Clear Colonoscopy 10/17, 11/19,11/21 :D

FrankDuke1619
Posts: 10
Joined: Thu Jan 24, 2019 7:57 am

Re: New Here

Postby FrankDuke1619 » Fri Jan 25, 2019 7:23 pm

Beckster wrote:For some reason my post did not post....so here it is again

MD Anderson oncologist suggestions

Mine oncologist is Dr. Jamin Morrison. He is young and very smart! Dr. McCLane suggested him to me. Here is his bio https://www.cooperhealth.org/doctors/jamin-morrison-md Another oncologist I would suggest is Alexandre Hageboutros, MD https://www.cooperhealth.org/doctors/al ... boutros-md

They are a multidisciplary team, so he will probably see Dr Francis R Spitz, MD, FACS https://www.cooperhealth.org/doctors/francis-spitz-md

I hope this helps...Let me know how you make out. I have been going there for over 2 years. They are agressive with pathology and treatment, but worth it.


Thank you so much. Will update soon when I know more.

FrankDuke1619
Posts: 10
Joined: Thu Jan 24, 2019 7:57 am

Re: New Here

Postby FrankDuke1619 » Sun Jan 27, 2019 1:42 pm

We finally received some good news today that the nodule on his liver is not cancer. They’re going to do a test tomorrow to see if it’s grew into the rectal wall and potentially remove it.

Beckster
Posts: 438
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: New Here

Postby Beckster » Sun Jan 27, 2019 1:55 pm

FrankDuke1619 wrote:We finally received some good news today that the nodule on his liver is not cancer. They’re going to do a test tomorrow to see if it’s grew into the rectal wall and potentially remove it.


Great News! Did you move him or are you still at Inspira?
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic
1/2/17 to 6/9/17- Xeloda
6/17,12/17,6/18,12/18,6/19,12/19,12/20,12/21 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8 6/20 3.0 12/20 2.7 6/21 2.9,[color=#000000]12/21 2.7[/color]
Clear Colonoscopy 10/17, 11/19,11/21 :D

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: New Here

Postby DarknessEmbraced » Sun Jan 27, 2019 1:58 pm

Wonderful news it wasn't cancer in his lung! :) I hope you get more information soon regarding the colon tumor.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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