mpbser wrote:...some super powerful supplements to his regime a few weeks ago. Very glad they work but now their efficacy is impeding on what were firm plans to get the pump.
Almost as importantly (to my husband), Dr. Kemeny showed her true colors to us last night. She was extraordinarily abrasive. I am a very clinical thinker and put my feelings aside when it comes to these matters,
You're simply outside Dr K's expectations on her time involved, clinical assumptions and her clinical requirements. You all are trying to control the situation, locking horns. Dr K notoriously insists on the last word in calling the shots.
In the great distance here, I get the impression Dr K is like most of her generation of drs on supplements, the normal garbled background and probably considers almost any substantial claim about them largely superstitious nonsense. (There is a lot of garble, pro, con and anti) In any case, from her perspective, she doesn't want someone jumping up and down on her high wire with unknowns that she's been working on for 30-40 years to gain control, to dynamically poison the liver at its Maximum Tolerated Dose of FUDR, finely monitored in real time. Most oncologists don't seem to master the detailed knowledge and work involved for "simple" FUDR with HAI at MTD, no excuses allowed.
Do I think some
supplements could improve things on HAI toxicities and met kill? Sure, but who is going to do so much homework? Most people simply can't. I have not seen any indication that anyone
at MSK has tried to master supplements at that level of performance or experimentation, either. Gathering detailed information is a problem. People usually don't collaborate that well either, even small (important) things are like pulling teeth e.g. whither CA199, AFP, LDH etc. after two years.
Your chemical choices in my opinion:
2. standard chemos +- supplements with a 2nd/3rd doctor
3. immunochemo with 1-2 doctors (who?)