I am sorry you have to be here, but if you must be this is a good group to support you through it!
I am one of those who doesn’t post much, but I do look in from time to time.
In March it will be 4 years since I was diagnosed stage 4 and wasnt really given a great deal of hope for survival. I changed my Dr and went to Mayo In Rochester MN. Was a pretty good choice as I am here to tell you that!
I went through the first line of treatment and then some more,see my signature for the whole story.
I want to tell you the fact that you have the rash is a good sign. Generally means the erbitux drug is working.
Have you been tested for your msh status? That is a game changer around here, and if you are mss you should read the thread from jake&katies mom I think. She is having great results well.
Hang on to the good stuff,but also give yourself a chance to mourn. My thoughts are with you as you find your way through this!
Eta: how I survive...one day at a time, each battle as it comes
DX 3/2015 53
Stage IVa CC w/liver met
BRAF/KRAS wild type MSI-High (MLH1, PMS2) not Lynch
Folfox 3 cycles
5/2015 ER for subtotal colectomomy due to perforated colon, ovary removed
Folfuri/Pantiumumab 5 cycles
8/2015 liver resection, gallbladder removed and new LN
10/2015 CT scan new nodes
10/2015 Pembro started CEA 2.2
5/2017 stable lung things, coltis, lymph nodes stable cea 1/2017 1.1
9/2017 NED CEA 1.1 ( stopped Pembro)
2/2019 ER for DVT/ PE
2/2019 clean CT (NED) CEA 1.1