Book Group

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Mohrfamily
Posts: 58
Joined: Tue May 22, 2018 4:04 pm

Book Group

Postby Mohrfamily » Thu Jan 10, 2019 11:23 am

Have you read a book that's provided you with hope lately? Lets share!

I have read a book about a religious man who was diagnosed with a brain tumor. He wrote his book about his struggles and identifying with Christianity. Every "chapter" has a bible verse there's even a list of songs he felt were uplifting in dark times.
If interested its "Anchored in the storm" by Adam Holland. Based on his truth. My cousin sent it to me when she first found out about my husband and I write to her (She's in California and I'm in Ohio) admit the chapters that resonate with me most.
DH dx officially stage IV with liver mets
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.

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O Stoma Mia
Posts: 1464
Joined: Sat Jun 22, 2013 6:29 am

Re: Book Group

Postby O Stoma Mia » Thu Jan 10, 2019 1:53 pm

Mohrfamily wrote:Have you read a book that's provided you with hope lately? Lets share!

Here's the book that you mentioned in your post. (It can be read for free in the Kindle unlimited edition):
Anchored in the Storm

Here are some other books mentioned on the Forum over 5 years ago. You might be interested in some of them:
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=44129&p=317202#p317202

Also, more recently there have been several Colon Club members who have published their own books, for example:

T.E. Bradford’s book (2017)
https://www.amazon.com/Surviving-Cancer-Story-T-Bradford/dp/1520504977

Julie Yip-Williams’ book (2019)
https://www.amazon.com/Unwinding-Miracle-Memoir-Death-Everything/dp/0525511350

Julie's book is being released two weeks from now, on the occasion of Chinese New Year.

Gravelyguy
Posts: 92
Joined: Thu Jul 05, 2018 6:03 pm

Re: Book Group

Postby Gravelyguy » Thu Jan 10, 2019 2:29 pm

"Don't Waste Your Cancer" by John Piper was a very helpful book for me. It is more of a long booklet than actual book but that was good for me as I had a hard time focusing on written words while I was undergoing chemo.

Dave
6/17 dx mCRC t3n1m1 very low rectal tumor 2 very small liver Mets

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection cancer is out of here!
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12 clear scans, CEA .9 still NED!

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LPL
Posts: 458
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Book Group

Postby LPL » Thu Jan 10, 2019 4:55 pm

Julie Yip-Williams’ book (2019)
https://www.amazon.com/Unwinding-Miracl ... 0525511350

Julie's book is being released two weeks from now, on the occasion of Chinese New Year

Really looking forward to read Julie’s book. All the feelings & history with her own family - that she shared on her site/blog affected me so very much!! She was fantastic in many ways including especially expressing herself with words!!!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

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Maggie Nell
Posts: 891
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Book Group

Postby Maggie Nell » Fri Jan 11, 2019 2:02 am

These are on my "to-read" list for 2019, I like the reviews.

A Life on the Toilet: Memoirs of a Bowel Cancer Survivor (true cancer stories &
support books) - Kindle edition by Kat Ward.

Semicolon; Memoir of a Colon Cancer Survivor by Mark T Arsenault.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX

Steph20021
Posts: 550
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Book Group

Postby Steph20021 » Fri Jan 11, 2019 12:55 pm

LPL wrote:
Julie Yip-Williams’ book (2019)
https://www.amazon.com/Unwinding-Miracl ... 0525511350

Julie's book is being released two weeks from now, on the occasion of Chinese New Year

Really looking forward to read Julie’s book. All the feelings & history with her own family - that she shared on her site/blog affected me so very much!! She was fantastic in many ways including especially expressing herself with words!!!


I’m also really looking forward to it and I hope there is a lot of content that we haven’t already read on her blog. She was a beautiful, eloquent writer.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab


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