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Scanxiety - Good thoughts Please

Posted: Sun Jan 06, 2019 1:08 pm
by LPL
Tomorrow it will be hubby’s first ‘6 month between’. He is feeling fine and the blood tests is not alarming. But these scans are always!! making me scared :?

Re: Scanxiety - Good thoughts Please

Posted: Sun Jan 06, 2019 1:57 pm
by O Stoma Mia
LPL wrote:Tomorrow it will be hubby’s first ‘6 month between’. He is feeling fine and the blood tests is not alarming. But these scans are always!! making me scared :?

Jag ber för dig.

ӧʂɱ

Re: Scanxiety - Good thoughts Please

Posted: Sun Jan 06, 2019 2:29 pm
by Punky44
Sending positive vibes!!

Re: Scanxiety - Good thoughts Please

Posted: Sun Jan 06, 2019 4:11 pm
by LPL
Thank you for kind support O Stoma Mia & Punky44.
Also it is so good to see a post from you O Stoma Mia :) I was afraid that you had left us. Please stay.. I have learned So Much from your posts !! <3 & thank you for words in my 1st language! How did you know ;-)

Re: Scanxiety - Good thoughts Please

Posted: Sun Jan 06, 2019 4:56 pm
by stu
I hate them too . My mum has had over 25 and they still cause a reaction although getting better .
All the very best for the scan .
Stu

Re: Scanxiety - Good thoughts Please

Posted: Sun Jan 06, 2019 8:22 pm
by lakeswim
I just had my post-TNT treatment scans (to determine next steps) and I can understand how you feel. (And the kicker is that I met with my surgeon the next day and she said results were vague, so I still don't know the deal.) Sending positive vibes to you!

And, yes, O Stoma Mia - so happy to see a post from you - even though you definitely deserve a "sabbatical" if you want one! Hope you are feeling good.

Re: Scanxiety - Good thoughts Please

Posted: Mon Jan 07, 2019 4:19 am
by dliu
You are in my thoughts! Hoping for good results!

Re: Scanxiety - Good thoughts Please

Posted: Mon Jan 07, 2019 4:28 pm
by LPL
Thank you all <3
The CT-scan result...+ appointment with the Onc, was not the best=what I had hoped for iike -> “all is fine!”
She wanted a PET-scan.. of DH’s lungs.. and a biopsi and perhaps if possible an ablation at the same time. There is a nodel (ore some nodels) in the lungs that has been there (watched..) for a long time. Have grown?! This has not been a priority until now.
Yes, I am worried :(

Re: Scanxiety - Good thoughts Please

Posted: Tue Jan 08, 2019 12:28 pm
by O Stoma Mia
LPL wrote:... The CT-scan result... She wanted a PET-scan.. of DH’s lungs.. and a biopsi and perhaps if possible an ablation at the same time...

LPL - I'm sorry to hear the news of lung nodules. Actually, I think the best strategy for dealing with them right now is just what the oncologist suggested: a PET scan. This will determine if they are in fact cancer, or just benign scar tissue -- such as what you frequently find with atelectasis-related nodules

If you want to read some posts or articles before your PET scan review, here are some links you might want to explore:

What Does Having a Nodule on the Lung Mean?
https://www.verywellhealth.com/lung-nodules-symptoms-causes-and-diagnosis-2249304

Some ColonTalk posts on "Nodules" and "Lung Thingies":
http://coloncancersupport.colonclub.com/search.php?keywords=nodules+lung+atelec*&terms=all&author=&sc=1&sf=all&sr=posts&sk=t&sd=d&st=0&ch=300&t=0&submit=Search

A Wikipedia article describing the atelectasis type of benign nodule:
https://en.m.wikipedia.org/wiki/Atelectasis

I'm mentioning the atelectasis-related benign nodule specifically because that is what I had to deal with two years ago, and the PET scan cleared up any ambiguity. In my case, the nodules had been there all along since my original surgery, in all 5 of the previous CT scans, but were never large enough to be reported in the scan reports until the 6th CT scan in 2016. These types of benign nodules tend to develop during abdominal surgery and recovery, and consist basically of scar tissue.

"Surgery: Having surgery is a major risk factor for having atelectasis. There are two primary reasons for this: the being on a ventilator during surgery and the inability to cough to clear the lungs while under anesthesia. The ability to take a deep breath and cough helps prevent atelectasis.
Ref: https://www.verywellhealth.com/atelectasis-after-surgery-3156853"

Re: Scanxiety - Good thoughts Please

Posted: Tue Jan 08, 2019 12:35 pm
by LPL
Thank you SO Much O Stoma Mia
I will read your links to learn more about this.

Re: Scanxiety - Good thoughts Please

Posted: Sun Jan 13, 2019 2:08 am
by O Stoma Mia
LPL wrote:...The PET is Thursday next week. We see Onc the Monday after. Reading now about different scenarios ... trying to be prepared...

Best wishes for a good PET scan on Thursday. Be sure that DH follows the PET preparation guidelines closely in order to avoid possible mis-diagnosis. If you weren't given prep guidelines by the doctor you can find some suitable ones on the internet:

https://m.scintigraphie-tep.fr/precautions-a-prendre-pour-un-petscan.php

This week, be sure to stay warm and not catch a cold. (It's not a good idea to show up for a lung scan when you have a bad chest cold!)

Re: Scanxiety - Good thoughts Please

Posted: Sun Jan 13, 2019 7:33 am
by LPL
O Stoma Mia wrote:
LPL wrote:...The PET is Thursday next week. We see Onc the Monday after. Reading now about different scenarios ... trying to be prepared...

Best wishes for a good PET scan on Thursday. Be sure that DH follows the PET preparation guidelines closely in order to avoid possible mis-diagnosis. If you weren't given prep guidelines by the doctor you can find some suitable ones on the internet:

https://m.scintigraphie-tep.fr/precautions-a-prendre-pour-un-petscan.php

This week, be sure to stay warm and not catch a cold. (It's not a good idea to show up for a lung scan when you have a bad chest cold!)

Thank You OSM for your kind comments & info.
We are waiting for them to call us and give instructions - thanks to your link I am now prepared with questions ;-)

Re: Scanxiety - Good thoughts Please

Posted: Sun Jan 13, 2019 8:09 am
by mpbser
You are in my thoughts. Best of luck and keep us posted!

P.S. I second what has said about getting this PET scan done.

Re: Scanxiety - Good thoughts Please

Posted: Sun Jan 13, 2019 8:47 am
by stu
All the best for Thursday . Thinking of you both .
Stu

Re: Scanxiety - Good thoughts Please

Posted: Sun Jan 13, 2019 3:13 pm
by LPL
Thank you lakeswim, dliu, mpbser and stu for your kind words.